Hi Everyone,
My name is Juliet from New Zealand and I was diagnosed with UC in December 2011.
I've been hospitalised 6 times since then with various bad reactions to the drugs. So far I've tried prednisone and had to go off it after I had an episode of atrial fribulation (AF) where my heart went 200bmp for 8 hrs and I needed cardiac paddles to bring me back. Yeah, thanks steroids! So since then I've tried and failed with further hospitalisations on Azathioprine, Cyclosporine and MP6. The next step is Methotrexate which I'm not willing to try just yet, so since my colitis isn't severe enough to have my colon removed, I'm getting the slightly experimental appendectomy done. I'm now on the waitlist for that, so I hope that might help things, or at least to keep the drugs away.
I'm on long term sick leave from work at the moment while I try and figure all this out. Anyway, just thought I'd join the community and say hi!
Thanks in advance for all your support!
Juliet
My name is Juliet from New Zealand and I was diagnosed with UC in December 2011.
I've been hospitalised 6 times since then with various bad reactions to the drugs. So far I've tried prednisone and had to go off it after I had an episode of atrial fribulation (AF) where my heart went 200bmp for 8 hrs and I needed cardiac paddles to bring me back. Yeah, thanks steroids! So since then I've tried and failed with further hospitalisations on Azathioprine, Cyclosporine and MP6. The next step is Methotrexate which I'm not willing to try just yet, so since my colitis isn't severe enough to have my colon removed, I'm getting the slightly experimental appendectomy done. I'm now on the waitlist for that, so I hope that might help things, or at least to keep the drugs away.
I'm on long term sick leave from work at the moment while I try and figure all this out. Anyway, just thought I'd join the community and say hi!
Thanks in advance for all your support!
Juliet