Hi everyone hope you're doing well. I just had to vent, and wanted to ask any of you if you've experienced this as well.
Now that i've finally got my diagnosis i thought i'd be taken seriously when i was having a flare. I just moved recently, and was feeling great so i decided not to refer myself to a new GI straight away (in hindsight i'm an idiot. lol.)
Anyway, the flare of flares started. I was unable to eat, in pain, losing a lot of weight, and overflow diarrhoea. I have another stricture....Anyway. Went to my gp who suspected i had a partial obstruction, and considering my history called ahead to A&E to get a bed ready for me. Lmao. I actually thought i was being taken seriously at this point....Went to A&E and guess what....'You have to wait to see the triage nurse first, and she'll decide where you go' Lol. Went in to see the triage nurse, and she decided my symptoms didn't warrant being admitted and sent me to the hospital's GP , who decided i wasn't having a flare, and that i was probably having the flu for the last 2 months. They didn't even bother taking any bloods or even an x-ray. Decided to go home before i ended up screaming down everyone in the hospital. Called my GP the next morning, and safe to say she gave the hospital a real bollocking.
Day 2: Went to A&E this time with them expecting me, and this time round, I was seen by one of the A&E drs. explained my symptoms to him, explained the treatment i usually had, and we both agreed i was having a flare. He took some bloods....surprise surprise they were elevated, however they weren't elevated enough for him. I asked for the numbers, and for some reason he wouldn't even give them to me. Instead his 'diagnosis' was that i wasn't having a Crohn's flare. G fugdiojfodijf damn it. I had to deal with 'it's just ibs' for 4 damn years before i was diagnosed. I would have thought that with a diagnosis you'd actually get taken more seriously. lol. I even had a fucking piece of paper that had: DIAGNOSIS: CROHN'S DISEASE from a hospital discharge summary which showed the exact same symptoms as i was experiencing that day.
He kept going on about 'His medical opinion, he's the doctor' oh and the best part just because i know my symptoms and i know some of the better medical terminology to explain them i should 'Stop reading on google.' and that i was 'wasting valuable resources for sicker patients.'
Went home again after being given IV paracetamol and a quarter of a bag of fluids.
Decided to call the local GI secretary and after explaining everything to her she instantly put me through to the IBD nurse who after a 5 minute chat with the gastro and a quick chat with my GP prescribed me pred, and humira.
I know A&E/E.R are good when it comes to treating acute emergencies but they really faulter when it comes to chronic conditions. It's incredibly frustrating. At least i know my lesson now. If i have to go back in. I have to call the IBD nurse first. I'm probably gonna have to because this partial obstruction isn't getting any better, and i don't think i can wait 2 weeks for meds to start working. Nervous about going in again because even though the IBD nurse said that they'd have my back if i have to go in, that i'm going to get treated like that again.
Sorry this is so long everyone but i just needed to vent. I really thought finally being diagnosed and IBS being completely ruled out would mean i'd be taken much more seriously.
Has this happened to anyone else? If so....what route do you usually take, do you go through your GI?
Now that i've finally got my diagnosis i thought i'd be taken seriously when i was having a flare. I just moved recently, and was feeling great so i decided not to refer myself to a new GI straight away (in hindsight i'm an idiot. lol.)
Anyway, the flare of flares started. I was unable to eat, in pain, losing a lot of weight, and overflow diarrhoea. I have another stricture....Anyway. Went to my gp who suspected i had a partial obstruction, and considering my history called ahead to A&E to get a bed ready for me. Lmao. I actually thought i was being taken seriously at this point....Went to A&E and guess what....'You have to wait to see the triage nurse first, and she'll decide where you go' Lol. Went in to see the triage nurse, and she decided my symptoms didn't warrant being admitted and sent me to the hospital's GP , who decided i wasn't having a flare, and that i was probably having the flu for the last 2 months. They didn't even bother taking any bloods or even an x-ray. Decided to go home before i ended up screaming down everyone in the hospital. Called my GP the next morning, and safe to say she gave the hospital a real bollocking.
Day 2: Went to A&E this time with them expecting me, and this time round, I was seen by one of the A&E drs. explained my symptoms to him, explained the treatment i usually had, and we both agreed i was having a flare. He took some bloods....surprise surprise they were elevated, however they weren't elevated enough for him. I asked for the numbers, and for some reason he wouldn't even give them to me. Instead his 'diagnosis' was that i wasn't having a Crohn's flare. G fugdiojfodijf damn it. I had to deal with 'it's just ibs' for 4 damn years before i was diagnosed. I would have thought that with a diagnosis you'd actually get taken more seriously. lol. I even had a fucking piece of paper that had: DIAGNOSIS: CROHN'S DISEASE from a hospital discharge summary which showed the exact same symptoms as i was experiencing that day.
He kept going on about 'His medical opinion, he's the doctor' oh and the best part just because i know my symptoms and i know some of the better medical terminology to explain them i should 'Stop reading on google.' and that i was 'wasting valuable resources for sicker patients.'
Went home again after being given IV paracetamol and a quarter of a bag of fluids.
Decided to call the local GI secretary and after explaining everything to her she instantly put me through to the IBD nurse who after a 5 minute chat with the gastro and a quick chat with my GP prescribed me pred, and humira.
I know A&E/E.R are good when it comes to treating acute emergencies but they really faulter when it comes to chronic conditions. It's incredibly frustrating. At least i know my lesson now. If i have to go back in. I have to call the IBD nurse first. I'm probably gonna have to because this partial obstruction isn't getting any better, and i don't think i can wait 2 weeks for meds to start working. Nervous about going in again because even though the IBD nurse said that they'd have my back if i have to go in, that i'm going to get treated like that again.
Sorry this is so long everyone but i just needed to vent. I really thought finally being diagnosed and IBS being completely ruled out would mean i'd be taken much more seriously.
Has this happened to anyone else? If so....what route do you usually take, do you go through your GI?