Hi #Stardust_Fiddle,
Have you been checked for genetic mutations? There is a MAPP test going around by Millennium PGT that can check to see if you can't produce certain enzymes.
Usually, the coating or lining of the intestines is afflicted and gets inflammed when the IgA and IgG levels drop, and sometimes if they are too high. Also, since the immune system is worn out, the Innate immune system will sometimes step in. If that happens, it just attacks the afflicted area with a vengence and destroys everything. It is trying to combat something, or protect the body. When this is caused by an unknown, like in the case with Crohn's, it is often a missing or damaged cycle in the enzyme or protein level. Some people can't process folic acid, so they are missing the folate cycle. Without that, they have a tendency to inflammation, and many other problems like anemia, mouth or digestive tract sores, etc.
Since most foods contain things that you cannot process, all of them become a possible source for issues. Medicines are in the same boat. Learning to live wih a deficiency is a hard path. Sometimes there is no cure and you have to supplement or be on a constant watch. Sometimes removing the infection allows the body enough of a respite to rebuild the broken down systems. Sometimes an antibiotic is enough.
So finding the cause is important. Being dismissed with a diagnosis that is difficult to treat is negligence in my book. Most specialists are in the boat with insurances. They only get a certain amount of time and testing, and then you are finished. The results are what they are, and if they haven't found a solution, then you are dismissed. It should be a crime.
In any case, my theory is that many people either have an invader, or something has gone wrong in the cycle processing. The successful cures in Europe and Australia were by using the approach that it is an invader. By bombarding it with multiple antibiotics, they killed it and the body recovered. The successful treatment for cycle errors like genetic mutation, are watching the diet very closely in combination with replacing as much of the missing components as possible, and hoping that is enough to set the body back to a healthy state. Examples of this are the COMT and MTHFKR mutations. If you have it, you man not be able to process folic acid into the proper components to supply Vitamin B9 and B12. When those are missing you have major issues that have all kinds of similar symptoms, and can cause all kinds of physical problems. To fix this, you would need to supply the body with Methylfolate versions that do not need to be remanufactured into what the body uses. You may also have a build-up of folic acid waste in your body, making you quite toxic. With some mutations, you can't rid yourself of the waste products, making your blood toxic again.
It is a simple test, a swab in your mouth. Takes a few weeks to see what mutations you may have. Once known, it is a matter of seeing what works, and in what quantities.
What will always help is to detox the waste, keep the circulation up, watch what you eat and drink, watch the medications. If you notice problems, keep a journal of the time and date, what was consumed, and how long it lasted. Sometimes watching in morph into something else.
Also, when the damage to organs and tissues is done, it may be that it can't be fixed. Such is the case with kidney damage, bone damage, nerves, and so on. So catching all of this as early as possible is also key. The watch and wait attitude of doctors and insurances is causing more damage and mayhem than it is any good. All to make a profit. Squeeky wheels get greased, so raise some questions, ask and ask and ask. Sometimes a doctor will think about it and agree that it is worth a try.
The Millenium PGT test was free for me. And it has opened up a brand new diagnosis for me. They are finally willing to toss the misdiagnosis of Crohn's out the window, and call it what it is, a genetic mutation that leaves me unable to process many drugs and foods. Some of them can make me very sick in a sneaky way. It can takes days for me to become ill from something. So the connection is very difficult without knowing that I don't have the ability to process folic acid, and that many medications will not leave my body in the usual amount of time. I get poisoned slowly by the drugs they try to give me, and the food and drink that is supposed to keep me healthy. The answer is knowledge. I can avoid certain things now, and I know what is happening when my body falls apart. Blocking the whole process like some of these drugs are doing is not the answer. Looking at why the body is producing the toxins in the first place is the first step to proper treatment and possible cures.
Don't let your doctors dismiss you with a Crohn's verdict. That is giving up without finding any answers. If the medicines give you a break, enjoy it. But read the labels carefully, that is also poison.
I would like to believe that we are on the path to a cure through genetic modification. There has already been great success with sickel cell anemia. Hopefully this type of research will continue.
I hope this helps and that many of you will check into the MAPP testing. It is a real eye opener.