Crohn's Disease Forum » Treatment » Low Dose Naltrexone » Low Dose Naltrexone (LDN) Support Group


 
09-08-2017, 06:36 AM   #571
Corpcleg
 
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Join Date: Dec 2013
Location: Dublin, Ireland

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PS :
Enjoy the vivid dreams , I just see it as my brain is now making big budget blockbusters with great special effects instead of home movies :
09-08-2017, 10:57 PM   #572
RNGirl
Senior Member
 
Join Date: Dec 2014

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∑ Stelara
Thank you so much for the feedback. So glad it is working and hopeful for everyone else taking it as well. The dreams are amazing and interesting huh? My dreams aren't bad at all, but sometimes you wonder where this stuff comes from. Bizarre 😳
09-25-2017, 01:34 PM   #573
hamster139
 
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Join Date: Mar 2009

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Just wanted to update on my LDN progress. I slowly went up to 4.5, and it seemed like it wasn't benefiting too much. I took a break, and then went to 1.5mg, and it seems like its working great, and is helping a lot with the 'brain fog'.
09-25-2017, 11:34 PM   #574
RNGirl
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Join Date: Dec 2014

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I just tried to increase from 1.5 to 2.0mg. Seemed to make me very anxious and possibly flare a bit. Only increased to 2.0mg for 2 days, but feel much better on 1.5, so guess that's where my body feels best. Per my pharmacist, it's not the increased dose, just what feels best for you. Hamster 139---thanks for sharing!
03-15-2018, 03:15 PM   #575
hamster139
 
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Join Date: Mar 2009

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Just a question for any LDN users here. I've been taking it for reducing brain-fog... and it works quite well. But I never really noticed any patterns with Crohn's flareups while on it. But I might be now...maybe. I havent had a flare in a while, and just took a break from LDN... and wala... I got a flareup. I'm wondering... It could be a coincidence... or maybe it helps with flareups... but only after taking it for long periods of time?
07-11-2018, 08:02 PM   #576
spirit3
 
Join Date: Jul 2018

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just made app't with dr. that highly recommends me getting off azathioprine and prendisone, which make me feel terrible......side effects...!! dr. uses LDN,
going to ween off meds. with ALL the side effects and hopefully start LDN. I am willing to take chances.hope i made right decision.
07-11-2018, 09:14 PM   #577
JDTM
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Join Date: Feb 2012
Location: Providence, Rhode Island

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Hi spirit3 -- I wish you the best of luck with LDN. Keep in mind that people's experiences seem to vary; some have said they felt a difference pretty quickly, and for others it takes time. My personal experience with LDN was very gradual improvement, and it took a while to really feel significantly better. That said, the side-effects from the medication are pretty much non-existent. Maybe you'll have some vivid dreams, but that's pretty much it. Far easier on the system than prednisone or azathioprine.

Keep us posted!
__________________
Hi, I'm Jesse!

Current meds:
prednisone (40mg taper)
Lialda (4.8g)
fluoxetine (20mg)

Previous meds:
Dexilant (too pricey!), Xifaxan (short course), budesonide (tapered off), Pentasa (had to switch in January 2016), omeprazole, LDN

Supplements:
multivitamin
2000IU vitamin D-3

Diagnosis:
gastritis & duodenal ulcers, August 2011
Mild Crohn's in terminal ileum, February 2012
5cm of narrowing w/ no signs of active inflammation, May 2014
07-11-2018, 11:15 PM   #578
RNGirl
Senior Member
 
Join Date: Dec 2014

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∑ Stelara
Just checking back in. Been off line for quite some time now. Iíve been on LDN now for close to a year. I think itís helped me significantly and Iím in remission. I also have Hashimotos and itís lowered my Thyroid autoimmune antibodies from greater than 900 to under 400, so know my immune system is turning around. Iím going to continue with 2mg nightly. Feel blessed that itís working and will continue indefinitely. Would love to hear from others regarding long term use and success stories. Best of luck to all!
10-16-2018, 05:18 AM   #579
Jonny84
 
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Join Date: Jun 2015
Location: Edinburgh, United Kingdom

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Hi folks,

I have recently been taken off Inlfiximab due to the side effects and I am not on medication at the moment. I'm doing ok.

I have found a pharmacist in Scotland who will prescribe LDN for me and I am just looking for some advice and support from others that have used it.

Does it work for you? Is it an advantage that I am starting from a place where I relativity well rather than in a bad flare? how long did it take to work? Is it a long term medication?
10-16-2018, 05:47 AM   #580
Jonny84
 
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Join Date: Jun 2015
Location: Edinburgh, United Kingdom

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One additional question - is it essential to take it in the evening? I've had serious problems over the years with sleep and I would be far, far more comfortable taking it in the morning.
Yesterday, 03:06 AM   #581
xs11ax
 
Join Date: Nov 2018
Hi. My son has Crohn's Disease and has been taking 4.5mg LDN for about 5 weeks now. We started off low and built up to 4.5mg. Apart from the LDN and a specific diet he has had no other treatment. He has gone from watery, bloody diarrheah up to 10-14 times a day with weight loss to non bloody, normally formed stools once a day and is now gaining weight. He has had a very detailed blood test carried out through Genova Labs in London which showed a bacterial imbalance. We will be adding other supplements to his treatment such as probiotics, boswellia, CBD, vitamins, L-glutamine. He has been under the care of a private doctor in London.

My Question

Just last week he had a blood test which showed elevated liver enzymes in his blood. He was admitted to hospital for 3 days so they could monitor the liver enzymes levels. In them 3 days the liver enzymes levels improved and he has been discharged. They still want to monitor his blood once a week. While at the hospital he stopped taking LDN. Do you think it was the LDN that spiked his liver enzymes levels? LDN does come with a warning for this, but at higher dosages. What do you think? Thanks.

Btw this is in the UK so there is no charge at the hospital.
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