- Location
- Rochester, NY
So the list of things to complain about with IBD can be long, and my top problems change regularly, but these are my top today, what are yours?
1. Pain. That's always a tough one since it's so draining and takes such a toll.
2. Frequent flatulence. Especially since I never know what may come out with it - blood, mucous, stool, suppositories... Lovely. Makes it difficult to leave the house, which brings me to
3. Inability to do the things I want to do because of pain, not feeling well, weakness, etc. Can't always make it through the grocery store so can't cook my family the dinner I'd like to. Can't take my kid to his music lesson because it's a long walk from where we need to park, there's no bathroom close by, and I would have to sit on a hard bench. Can't volunteer any more in the school since the biologics make me prone to all the kids' sicknesses.....
Make me feel I'm not alone - share your top three difficult to deal with things!
1. Pain. That's always a tough one since it's so draining and takes such a toll.
2. Frequent flatulence. Especially since I never know what may come out with it - blood, mucous, stool, suppositories... Lovely. Makes it difficult to leave the house, which brings me to
3. Inability to do the things I want to do because of pain, not feeling well, weakness, etc. Can't always make it through the grocery store so can't cook my family the dinner I'd like to. Can't take my kid to his music lesson because it's a long walk from where we need to park, there's no bathroom close by, and I would have to sit on a hard bench. Can't volunteer any more in the school since the biologics make me prone to all the kids' sicknesses.....
Make me feel I'm not alone - share your top three difficult to deal with things!