Thanks Dave13. I appreciate the welcome. With your surgical remission, are you on any meds? Gosh, Thanksgiving!!
Does the fear ever go away? I understand, my onset was severe, ridiculously. With in three days of being sick, I had a picc line...and it only got worse from there. I foggily remember one day, early on, a nurse asking me, well, what do you normally for constipation? (they were trying to give me a quick prep) and I looked at her nuts and said, I never had constipation!!
I told me kids, as the second one looked at me and said, So ma...you always said, take care of your body, and your body will take care of you. I said, Well, the good lord decided I had a few more lessons to learn, and he and to look long and hard to pick this disease. (there went my great lesson on staying healthy away from drugs and drinking, lol.) All I am is doped up on drugs, hehe. I never did any drugs in my life.
I am still trying to find out the difference between Crohn's colitis and UC. My DR said since he found four polyps in my lower bowel, its Crohn's. All my brothers and sisters have polyps, but no IBD. I am so confused. LOL The confusion goes great with the brain fog. Thank goodness I have habit to rely on!!
I see you belong to fitness and exercise. That is the one thing I am looking forward to. One of the things that was devastating to me was the severity of my illness at the onset. I was so strong and in such excellent shape, and within weeks became totally atrophied and stayed that way, due to the osteoporosis. I am so fortunate, because my doctors trusted me to not go on any osteo medication. WE fought about it, but they trusted me. The 6MP I was on at the time, caused weeks of vomiting, and one day, as I was vomiting I just started breaking bones. I firmly believe that if fed well, with time my bodies memory will kick in. And it is. In two weeks, I will be able to start gentle exercise with resistant bands. Fortunately I am a walker, but the 30 minute limit, 3 times a week, with no weight, is making me nuts. My recent weight gain of 15 pounds is so exciting, as I know my body is really in remission, but now I look like a short little italian lady!! While i am grateful to be alive, I am now impatient. Also, I am finally going back to work, and I work in a business where, no one will know of my illness, and I need to keep it that way. However, there is no way to explain how I look, but I am sure somehow my humor will kick in and come up with something. I think I may go with something along the lines of ...lounging poolside, being fed peeled grapes and chocolate!
Thanks again dave13.