First I just want to say I can tell already that I should have found this forum right when my son was diagnosed.
My son is 10 now and last year he had his first abscess. It was quite large (I thought so anyway) about the size of a golf ball by the time they have him surgery. It was on his butt cheek and the whole process was really painful for him. They said it was staph. I thought it was a fluke situation, but here we are a year later and the Dr.s wanted him to see a Dermatologist because he had what looked like psoriasis on the bridge of his nose and his big toe. Then when I was still looking for a Peds. Derm. he was getting these pimple like puss pockets all over his body that leave little scars.
He had one of those by his bellybutton. It went away and a little bit later there was a lump under the skin there. No white pus visible. It got bigger gradually. His primary just said it is something for the Derm. to look at. Fast forward 2 weeks and it is sticking out of his belly a pen width and is the size of a quarter, red, hot to the touch, and hurts him. Looks exactly like his last abscess only a little smaller.
We go in tomorrow and I'm 99% sure it will be another surgery. My SIL mentioned MRSA. I looked it up and some of the pictures look similar to the little pimple like things. I just feel like there is so much that the pamphlets and things I read when he was first diagnosed that got left out.
The Derm. office didn't have openings until November, but I'm not thinking it's a Dermatologist thing anyways, is it? His gastro Dr wanted them to make sure about the psoriasis looking spots, I get that. But I just feel like after he was diagnosed with cancer at 6 they (primary) think I'm a hypochondriac or something. And his Gastro is 2 hours away.
I was taking him in every week before they diagnosed him with Crohn's disease. He looked like we were starving him and had so many symptoms; mouth sores, high fevers, severe stomach pain, constant diarrhea, vomiting. It still took 6 months and the only reason he was diagnosed was because his Oncologist decided to admit him to the Children's hospital to get it figured out. (It's 2 hours from home)
I'm going to have to take some serious time to read through these threads and get a better understanding of what our life is going to be. They say he can lead a relatively normal life, but it doesn't feel like that so far.
My son is 10 now and last year he had his first abscess. It was quite large (I thought so anyway) about the size of a golf ball by the time they have him surgery. It was on his butt cheek and the whole process was really painful for him. They said it was staph. I thought it was a fluke situation, but here we are a year later and the Dr.s wanted him to see a Dermatologist because he had what looked like psoriasis on the bridge of his nose and his big toe. Then when I was still looking for a Peds. Derm. he was getting these pimple like puss pockets all over his body that leave little scars.
He had one of those by his bellybutton. It went away and a little bit later there was a lump under the skin there. No white pus visible. It got bigger gradually. His primary just said it is something for the Derm. to look at. Fast forward 2 weeks and it is sticking out of his belly a pen width and is the size of a quarter, red, hot to the touch, and hurts him. Looks exactly like his last abscess only a little smaller.
We go in tomorrow and I'm 99% sure it will be another surgery. My SIL mentioned MRSA. I looked it up and some of the pictures look similar to the little pimple like things. I just feel like there is so much that the pamphlets and things I read when he was first diagnosed that got left out.
The Derm. office didn't have openings until November, but I'm not thinking it's a Dermatologist thing anyways, is it? His gastro Dr wanted them to make sure about the psoriasis looking spots, I get that. But I just feel like after he was diagnosed with cancer at 6 they (primary) think I'm a hypochondriac or something. And his Gastro is 2 hours away.
I was taking him in every week before they diagnosed him with Crohn's disease. He looked like we were starving him and had so many symptoms; mouth sores, high fevers, severe stomach pain, constant diarrhea, vomiting. It still took 6 months and the only reason he was diagnosed was because his Oncologist decided to admit him to the Children's hospital to get it figured out. (It's 2 hours from home)
I'm going to have to take some serious time to read through these threads and get a better understanding of what our life is going to be. They say he can lead a relatively normal life, but it doesn't feel like that so far.
Last edited: