Crohn's Disease Forum » Parents of Kids with IBD » First scope after starting Stelara

02-24-2018, 09:42 PM   #1
my little penguin
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First scope after starting Stelara

So Ds started Stelara six months ago
Scope was last week entire upper/lower looked pristine
Biopsies only showed minimally active chronic illeitis which the GI GI said shows the mucosal is in the process of healing itself
He would expect this on any Crohns patient after starting remicade etc...
So for DS Stelara is working for his GI tract

His joints are another story so still trying to get the dose increased to every 4 weeks
So far no luck due to insurance
DS - -Crohn's -Stelara -mtx
02-24-2018, 10:35 PM   #2
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Join Date: Dec 2014
Location: Portland, Oregon

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Great to hear that Stelara is working so well for his Crohn's, but sorry that it's not helping enough with the arthritis. Hope that you can get approval for every 4 weeks soon.
Daughter E (16) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (20 mg weekly)
vitamin D, folic acid, iron, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15, 3/24/18-5/18/18
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Clobetasol for Remicade-induced psoriasis
02-25-2018, 09:33 AM   #3
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Pilgrim's Avatar
Join Date: Jul 2014
Location: Ontario

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Good news! Hope insurance will move.
02-25-2018, 12:05 PM   #4
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Join Date: Oct 2017
Location: North Carolina
Great news! I hope things start to fall into place on the joint pain. Wish I could offer more like you do for everyone else.
02-26-2018, 02:55 PM   #5
Jmrogers4's Avatar
That's fantastic! hoping joint pains soon follow.

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
02-28-2018, 06:09 PM   #6
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good news
02-28-2018, 07:09 PM   #7
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polly13's Avatar
Join Date: Jan 2012
Location: Tipperary, Ireland

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Good news mlp hopefully insurance will move for you
02-28-2018, 10:03 PM   #8
Tesscorm's Avatar
Join Date: Jun 2011
Location: Ontario

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Really happy to hear such great news re his crohns!

and, hopefully, you'll hear positive news from insurance soon! He's long overdue to finally feel good all over!
Tess, mom to S
Diagnosed May 2011

May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil

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