Crohn's Mom,
Yes, we're all aware of the NSAID thing, but it's kind of a last ditch fix. Nothing else works. And, as I said, we're not even sure if Celebrex will work, so it might be a moot point anwyay.
NOTHING has worked so far. It's so frustrating.
The only thing that helps her abdominal pain is Tylenol #3. I crush one to one and a half tablets and mix it with water. She takes it via her G tube. I worry about giving this to her, especially when she's in pain for extended periods of time like she is right now, but like I said, nothing else works.
We're waiting to see if the new combination of meds helps, which is Humira and Methotrexate. Technically Humira should help with the joint pain, too, but so far NADA. I'm going to wait a few more weeks, as she's only had two rounds of Methotrexate so far, but if this new regimen doesn't work, I'm tempted to stop all meds all together.
What do you all do for joint pain when your kids are experiencing it?