Crohn's Disease Forum » Your Story » Rectovaginal fistula


04-16-2019, 02:37 PM   #1
Aminakhaan
 
Join Date: Apr 2019
Rectovaginal fistula

Hello everyone I am new to this form and I have a Rectovaginal fistula and the surgeons wants me to have a temporary stoma to let the fistula heal but I do not want to go through another operation. I have a j pouch and I have multiple Fistulaís. Any suggestions other than temporary stoma or anyone that had the same problem as me what did you do?
04-17-2019, 10:11 AM   #2
Lisa
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Join Date: Apr 2010
Location: New York

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Can you tell us what types of medication you are on and/or have been on?

Remicade is known for helping fistulas heal, that is what helped mine.
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30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
04-17-2019, 11:17 AM   #3
Aminakhaan
 
Join Date: Apr 2019
I have been on Humira which failed and currently on my first infusion for Remicade and Azathioprine. If this doesnít work then I donít know what other options I have?
04-17-2019, 11:18 AM   #4
Aminakhaan
 
Join Date: Apr 2019
Can you tell us what types of medication you are on and/or have been on?

Remicade is known for helping fistulas heal, that is what helped mine.
Can I ask has your fistula healed? How long did it take you? What were the signs of healing? And how long has it been since then? Did you take any supplements?
04-17-2019, 02:56 PM   #5
Lisa
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Join Date: Apr 2010
Location: New York

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Yes - I had multiple fistulas that healed once I started Remicade. It took only a month or two to see results, and I've been on Remicade for over 12 years now.

No, I do not take any supplements, am only on Remicade right now for my Crohn's.
04-17-2019, 04:09 PM   #6
Aminakhaan
 
Join Date: Apr 2019
Lucky you ;( I hope it works for me... i really donít want a stoma
04-19-2019, 11:10 PM   #7
Lady Organic
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Join Date: Apr 2013
Location: Montrťal, Quebec

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I hope it works for you too. Remicade is the medication of choice for fistulizing crohn's. Wishing you well.
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''UC-like Crohn's'' (2001)
wrists + ankles arthropathies (2013)
on: Humira
Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only, Vitamin D + B12 shots
Past meds: prednisone 50mg, 5-ASA (pill, rectal), cortifoam, cortenema, Imuran, Purinethol, methotrexate.
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