Crohn's Disease Forum » Treatment » Remicade/Infliximab » First remicade infusion yesterday and think it made it worse


04-02-2015, 07:23 AM   #1
mightymocha
 
Join Date: Feb 2015
Location: Florida

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First remicade infusion yesterday and think it made it worse

I had my first infusion yesterday and woke up last night in the worse pain i have been in since my first surgery. I feel like i have a a blockage. Before I had surgery 10 years ago these blockages with severe pain landed me in and out of the hospital until I finally had surgery. I was in remission for 8 years. Then my crohns was back and I have been in pain up and down while suffering with good days and bad, but manageable pain I could live with. Colonoscopy showed a mess by my resection and we decided on remicade since other medicines never worked for me.. The pain I am experiencing right now I haven't felt since before surgery. Its like the remicade kicked me into overdrive. Could this happen? should I continue remicade in 2 weeks.
04-05-2015, 10:01 PM   #2
araceli
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Join Date: Nov 2012
Location: El paso, Texas

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I think you should call your GI or go to ER if you are having pain. I will suggest you give remicade a chance. It may take a while to see any improvement. I hope you feel better soon and remicade works for you.
__________________
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
04-09-2015, 03:17 PM   #3
mightymocha
 
Join Date: Feb 2015
Location: Florida

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Thanks for your response. I ended up going to the ER with a blockage in my small and large intestine. I spent 5 days in the hospital and was able to avoid surgery which was good.. They said it nothing to to with the remicade, just a coincidence that it happened the same day. Going to stick with the remicade and hope it works for me and I can go back to eating normal, and stop worrying about being blocked again.
04-13-2015, 10:27 AM   #4
araceli
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Join Date: Nov 2012
Location: El paso, Texas

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Sorry about the blockage. I hope remicade works. Let us know how it goes.
06-23-2015, 11:29 AM   #5
droopymonthly
 
Join Date: Mar 2015
Location: Adelaide, South Australia, Australia
Remicade may have some side affects with other issues(such as skin). But it will never cause blockage. I hope remicade creates a miracle to you.
__________________
Diagnosis: confirmed CD in 03/2015 by flexible sigmoidoscopy at age 34. But it started from 2006 and misdiagnosised by all doctors before.
Surgeries: 2 times fistulotomies(2007, 2009), endoscopic dilation of pylorus(2011) , 2 times abscess drainages(03/2015, 06/2015)
Meds for CD: AZA 100mg + Remicade
Currently in: No symptom and everything is under control.
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Crohn's Disease Forum » Treatment » Remicade/Infliximab » First remicade infusion yesterday and think it made it worse
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