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vent: a little nervous.. (long..)
i am glad to have found the "vent" area..(i think..)
i have been reading many stories here today..
i am trying to learn about crohn's as much as i can..(was just diagnosed like 3 weeks ago--even though i am 43)--(did have troubles along the way..but-like with everyone-got the "ibs" thing-or it isw in your head-or similar. ...not that the dr's didnt care at all..i don't know..but-diarrhea and cramps and heartburn-i guess until i had my gi go into my terminal ileum (via colonoscopy)-no one knew what was up. i am still in a bit of shock-but-it helps to not put my head in the sand..
my vent..
just-reading stories and all helps -knowing what symptoms to watch out for..but..
still-it is scary--and hard to read symptoms sometimes--and i don't like to call my dr unless i have to (like when i had a fever when i frist started the pentasa) (went away though)
thing is-lastnight-i woke up with some nausea--but-nothing too bad-so-i let it go.
i have been drinking only ensure and water today. all foods just seem to make me feel not great ..so-wanted to try this..(had 3 bottles today since 7 am)
but..the past 2 or so hours--feel like a tension in abdonmen and stomach (maybe just stress -tight muscles--or-empty stomach--i'm not sure) (i think less eating hasn't been great--but again--eating is not fun right now--and i do take in the ensure at least-and supplements)
but-i also have some "pain" (well..not "pain"--but-not cramps--not sure what to call it--in my stomach-as well as the tightness. but-otherwise i feel ok--altho heartburn has been acting up over past hour again.
i have had quite a bit of gas today..but..i have always had that--or--so it seems.
the pain/tightness is new though..so..not sure..
i hate over-reacting --so..i don't know..i guess play it out til tomorrow
i will take an ambien soon-just because it seems to help-and i get some sleep...(usually take a few hours to hit though..)
i feel some nausea--and it wasn't as easy to drink the 3/4 bottle of ensure to take the pentasa about an hour ago.
maybe i do need to eat..but..it is so hard to know what to do..
i see my dr thursday..
this in no way seems like some emergency--so-thursday seems fine..but--any new stuff..it is scary. is it just me-or -ever since i got diagnosed and put on meds (pentasa and entocort-mild crohns) i have noticed a few new symptoms.
good thing is i have only had diarrhea like 3x--including today...
just--this stomach thing-i don't know what it is..
ithe "pain" (or..gas? or--whatever it is-is in my chest area-center-..at least i think it is my stomach thats causing some trouble this evening...
i am going to ask my dr about getting a ct scan--just to be sure..but..he is very thorough-so whatever he thinks-if i need that-or some other test-or no test--i will know more thursday..but-need to check a few other things..
sorry..this is just scary...
2-3 days ago i felt a bit better-and it was great to just get back to some other stuff and not think about all this...but-it just seems to keep reminding me-i need to know more-and need to get it in control (if possible)-or-at least-be sure nothing else is going on..and be sure ..i dont know--this "pain" thing..just--scary..
ok--i am saying things over and over--guess i am in "worry-mode"
ps-i am glad yesterday i finally got a petsitter (one who works at hospital for my cat--she has hcm--she has been on meds a year--she is only 7 though) but-i feel better knowing that if i ever did have an emergency and had to leave her for more than a day--she'd get her pill and food-and good care. it puts my mind at rest a bit..as it was stressing me--worrying about that.. and my dad has an operation (rotator cuff surgery) in 1 1/2 weeks..so--yucky time. (he just had hip replacement)-and-i am also going crazy with not getting intol work (i am an artist) and..cumputer-work-it is good-but no way is it enough...this is just a true mess to get used to.
ok-vent over..sorry
andrea
i am glad to have found the "vent" area..(i think..)
i have been reading many stories here today..
i am trying to learn about crohn's as much as i can..(was just diagnosed like 3 weeks ago--even though i am 43)--(did have troubles along the way..but-like with everyone-got the "ibs" thing-or it isw in your head-or similar. ...not that the dr's didnt care at all..i don't know..but-diarrhea and cramps and heartburn-i guess until i had my gi go into my terminal ileum (via colonoscopy)-no one knew what was up. i am still in a bit of shock-but-it helps to not put my head in the sand..
my vent..
just-reading stories and all helps -knowing what symptoms to watch out for..but..
still-it is scary--and hard to read symptoms sometimes--and i don't like to call my dr unless i have to (like when i had a fever when i frist started the pentasa) (went away though)
thing is-lastnight-i woke up with some nausea--but-nothing too bad-so-i let it go.
i have been drinking only ensure and water today. all foods just seem to make me feel not great ..so-wanted to try this..(had 3 bottles today since 7 am)
but..the past 2 or so hours--feel like a tension in abdonmen and stomach (maybe just stress -tight muscles--or-empty stomach--i'm not sure) (i think less eating hasn't been great--but again--eating is not fun right now--and i do take in the ensure at least-and supplements)
but-i also have some "pain" (well..not "pain"--but-not cramps--not sure what to call it--in my stomach-as well as the tightness. but-otherwise i feel ok--altho heartburn has been acting up over past hour again.
i have had quite a bit of gas today..but..i have always had that--or--so it seems.
the pain/tightness is new though..so..not sure..
i hate over-reacting --so..i don't know..i guess play it out til tomorrow
i will take an ambien soon-just because it seems to help-and i get some sleep...(usually take a few hours to hit though..)
i feel some nausea--and it wasn't as easy to drink the 3/4 bottle of ensure to take the pentasa about an hour ago.
maybe i do need to eat..but..it is so hard to know what to do..
i see my dr thursday..
this in no way seems like some emergency--so-thursday seems fine..but--any new stuff..it is scary. is it just me-or -ever since i got diagnosed and put on meds (pentasa and entocort-mild crohns) i have noticed a few new symptoms.
good thing is i have only had diarrhea like 3x--including today...
just--this stomach thing-i don't know what it is..
ithe "pain" (or..gas? or--whatever it is-is in my chest area-center-..at least i think it is my stomach thats causing some trouble this evening...
i am going to ask my dr about getting a ct scan--just to be sure..but..he is very thorough-so whatever he thinks-if i need that-or some other test-or no test--i will know more thursday..but-need to check a few other things..
sorry..this is just scary...
2-3 days ago i felt a bit better-and it was great to just get back to some other stuff and not think about all this...but-it just seems to keep reminding me-i need to know more-and need to get it in control (if possible)-or-at least-be sure nothing else is going on..and be sure ..i dont know--this "pain" thing..just--scary..
ok--i am saying things over and over--guess i am in "worry-mode"
ps-i am glad yesterday i finally got a petsitter (one who works at hospital for my cat--she has hcm--she has been on meds a year--she is only 7 though) but-i feel better knowing that if i ever did have an emergency and had to leave her for more than a day--she'd get her pill and food-and good care. it puts my mind at rest a bit..as it was stressing me--worrying about that.. and my dad has an operation (rotator cuff surgery) in 1 1/2 weeks..so--yucky time. (he just had hip replacement)-and-i am also going crazy with not getting intol work (i am an artist) and..cumputer-work-it is good-but no way is it enough...this is just a true mess to get used to.
ok-vent over..sorry
andrea