Crohn's Disease Forum » Parents of Kids with IBD » Lactose intolerance blood test


 
02-12-2013, 04:08 PM   #1
Devynnsmom
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Lactose intolerance blood test

Has anyone had it done? Or your kids? Devynn will be having it done this Friday. The breath hydrogen test came back with a whacky reading, turns out it was because she didn't brush her teeth. BUT we were told not to. So on the advice of some people here and after talking to our dr we have decided to do the blood test. They said its a 3 hour test and she will be poked every 30 min (I think.. correct me if I'm wrong please). She has to fast for 9 hours before. They told me the drink is bad.. how bad is it? I'm hoping that bad for most people isn't really THAT bad for our kids, who are used to a whole lot of different nasty drinks??? Please tell me yes
Wish us luck! I know she is NOT going to be happy.
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Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
02-12-2013, 04:30 PM   #2
Tesscorm
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Sorry, no experience... but good luck!!! I hope the drink isn't too nasty!
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Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
02-12-2013, 04:33 PM   #3
Devynnsmom
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Thank you Tess
02-12-2013, 05:06 PM   #4
Jmrogers4
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Sorry only breath ones done here. Hope it is not too bad.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
02-12-2013, 05:15 PM   #5
Devynnsmom
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Thank you Jacqui I will let you know.
02-12-2013, 05:16 PM   #6
my little penguin
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No idea hope it goes quickly
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02-12-2013, 05:24 PM   #7
Sascot
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Never had that done, just wanted to send good wishes. Hope it goes well.
02-12-2013, 06:03 PM   #8
Devynnsmom
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Thank you
02-12-2013, 08:19 PM   #9
Crohn's Mom
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Ive had the breath one done myself, but not the blood one.
Sorry no advice, but I do wish her the best of luck !
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DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
02-12-2013, 08:21 PM   #10
Farmwife
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No idea hope it goes quickly




But...but... you know everything mlp.

Oh wait did you misplace your lab coat and black think brim glasses again.


I hope her testing goes well!
Hugs
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I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
02-12-2013, 09:20 PM   #11
kimmidwife
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Hope her test goes well. Didn't even know there was a test like that available. I am very curious to hear about it.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
02-12-2013, 09:41 PM   #12
my little penguin
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FW

I said it once ... I will say it again
I only "know"
What my kid has or at one time tested for.

Lactose intolerance was not something he has had an issue with.

As far as the lab coat/glasses comment-FW you can


But you can't hide
I will remember it .........( evil laugh)
02-13-2013, 01:18 AM   #13
CarolinAlaska
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Sorry, too new to the game here to help. I hope it isn't any worse than a glucose tolerance test...
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
02-13-2013, 08:13 AM   #14
Devynnsmom
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Thank you all. I'm sure the drink won't be THAT bad... its the blood I'm worried about. I wouldn't want to be poked over and over.
02-13-2013, 08:57 AM   #15
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We have not had the test but the blood draw should involve one poke to place a butterfly or other draw device. then they should draw blood every thirty minutes for two hours, four draws, to complete the lactose toleranace test.

The hard part is the lactose shake.... my daughter has a hard time with any of these drinks from radiology contrast drinks to nutritional shakes. They all taste awful and hurt her stomach. The heavy fluids hit her stomach like a brick and she wants to stop.
I do not have any solutions to help with the drink. I have tried them all from bribery to treats and it all comes down to the doctor or nurse administering it. Some can talk her through it some not.

Good luck!
02-13-2013, 09:00 AM   #16
Devynnsmom
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Thank you Wildanimalpark. They told me they don't leave the butterfly in, they will poke her for every draw. I called every lab I could find in my area and was told the same thing at each one. I was told if we choose to do it in hosp, they could do a butterfly. But when I called, they said no they won't do the lactose test there.
02-13-2013, 01:42 PM   #17
CarolinAlaska
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See if your doctor will prescribe some EMLA cream then. You can put this on with a tegaderm to cover it and it will numb the area. We use it for most blood draws that Jaedyn has and it usually works great. The lab technician wipes it off and draws the blood. We usually put it on before going to the lab so it has time to work.
02-13-2013, 03:05 PM   #18
Wildanimalpark
 
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More from the web......

LACTOLE is a brand of lactose fluid for the lactose tolerance test and its maker descibed it as a "slightly carbonated cola taste product" " Many people describe it as too sweet?"

It does sound better than the X-RAY drinks. It sounds as if it is similar to glucose tolerance drinks that are available in many flavors.

Hope this helps a bit.

Good luck
02-13-2013, 04:04 PM   #19
upsetmom
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Good luck and please let us know how it goes.
02-13-2013, 04:10 PM   #20
Devynnsmom
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Carol, we can't use Emla. She is either allergic to that or the clear tape that goes over it. We used it before for some kind of needles (can't remember which ones) but she was so itchy she was crying. We ended up taking it off long before it numbed her and her skin was red and sore.

Wildanimalpark, thank you! Lets hope this is easier than the xray crap and it HAS to be better than the picosalax! haha

Upsetmom, Thank you! I sure will
02-13-2013, 04:27 PM   #21
CarolinAlaska
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Too bad. I'm sorry.
02-13-2013, 04:36 PM   #22
Devynnsmom
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Thats ok, I'm sure she will do fine. She has gotten so much better with blood work. When we first started on this journey, she had to be held down to get blood. It was awful. They NEEDED to get the blood ASAP because she was so sick, but it was heart wrenching watching them hold her down. Just thinking about it makes me sad.
02-13-2013, 05:09 PM   #23
Johnnysmom
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We use Lidocaine cream for the blood draws. It takes about 25 minutes to numb. We are suppose to use a tegaderm patch with it but those hurt worse than the blood draw! One of our nurses suggested Saran wrap, it works like a charm.

Good luck (((((Hugs))))))
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02-13-2013, 05:22 PM   #24
Devynnsmom
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Thank you! Is lidocaine the same as emla?
02-13-2013, 05:28 PM   #25
Johnnysmom
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Emla is lidocaine and prilocaine. So, I guess she could still have a problem. Unless it's the tegaderm that bothers her. I am allergic to adhesives in band aids and it can be very painful and irritating.
02-13-2013, 09:22 PM   #26
my little penguin
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Buzzy bee???
It works great for shots
Your hospital
May have one
But we have out own for all blood draws , Iv's and shots

http://www.buzzy4shots.com/
02-13-2013, 11:12 PM   #27
Devynnsmom
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She's never had any reaction to bandaids and believe me.. she was The bandaid queen for a looong time! lol
02-13-2013, 11:16 PM   #28
Devynnsmom
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mlp thank you, I've heard of Buzzy but had no idea if it really worked. I will ask about it. Were just going to a lab for the test.
02-13-2013, 11:35 PM   #29
CarolinAlaska
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Thank you! Is lidocaine the same as emla?
Its the main ingredient.
02-14-2013, 08:23 AM   #30
Devynnsmom
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Thank you Carol, that's what I thought.
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