Crohn's Disease Forum » Parents of Kids with IBD » First Anniverary for Azathioprine (Imuran)!

02-14-2013, 03:10 PM   #1
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Twiggy930's Avatar
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Location: Canada

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First Anniverary for Azathioprine (Imuran)!

Well today marks my son being on azathioprine for exactly 1 year! Where did that year go? I never thought I'd get used to giving him what initially seemed like such a dangerous drug but I have. Do I wish he didn't have to take it? YOU BET. But it no longer seems so bad.

If I compare the kid in front of me today with the kid I had a year ago it is amazing. His weight is back up, he can go to school for the whole day, he can go play with his friends, he is skiing up a storm, he is no longer living on the toilet, etc., etc. Thank you azathioprine!
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
02-14-2013, 03:13 PM   #2
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Clash's Avatar
Woohoo for the AZA getting him back to normal kid activities!!! Long may his good times last!!!!
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
02-14-2013, 03:16 PM   #3
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Kimberly27's Avatar
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Location: Mendocino County, Northern California

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I can almost hear your deep sigh of relief! Yeah!
02-14-2013, 03:16 PM   #4
Jmrogers4's Avatar
Fabulous! Thanks for the reminder of why we choose these seemingly horrible (at the time at least) drugs is so they can get to that point. Hope out lasts forever!

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
02-14-2013, 03:17 PM   #5
Tesscorm's Avatar
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Location: Ontario

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What a great post!!! I so glad he's doing well!!!

And, WOW, it's been a year!?!? It did fly by... I remember when he was just starting out with EEN and actually finding some fun with the whole NG tube experience! (Hope I'm not mistaking him with someone else!!! )

Great to hear!!
Tess, mom to S
Diagnosed May 2011

May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
02-14-2013, 03:35 PM   #6
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Sascot's Avatar
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Location: Falkirk, United Kingdom

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That's really great! Glad things are still going well.
02-14-2013, 03:47 PM   #7
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Location: Swindon, United Kingdom

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Wow.. That's so good to hear! :-D..

I really hope he continues to be happy and healthy, and just able to be a child!

02-14-2013, 05:46 PM   #8
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Tink572's Avatar
Join Date: Mar 2012
Location: Alabama
Woohoo!! Love that he's doing so good!
02-14-2013, 06:53 PM   #9
AZMOM's Avatar
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Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
02-14-2013, 07:45 PM   #10
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

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Great news!
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
02-14-2013, 07:52 PM   #11
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Hobbes650's Avatar
Join Date: Jun 2012
Location: Burlingame, California
I can almost hear your deep sigh of relief! Yeah!

What do you mean "almost"? I could here it over here!

Ulcerative Colitis 1986
Complete Proctocolectomy with j-pouch 1987
Permanent Ileostomy 1991
Crohn's Disease (just inside stoma) 2012
No meds post 1987 surgery to 2012

Current Meds:
Pentasa 3000mg daily
Imuran (Azathioprine) 100mg daily
Folic Acid supplement: 1mg daily
Mulit Vitamin/Fish Oil or Flaxseed Oil daily
Tumeric and Boswelia occasionally.
02-14-2013, 08:37 PM   #12
my little penguin
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Woohoo for a full year !!!
DS - -Crohn's -Stelara -mtx
02-14-2013, 10:32 PM   #13
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Location: Barrington, New Jersey

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I am so happy for you and your son, Twiggy.
02-15-2013, 05:01 PM   #14
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Join Date: Jan 2013
Location: North Central, Illinois

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That is great news! I love to hear the positive reports!
J's story:
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.

Crohn's Disease Forum » Parents of Kids with IBD » First Anniverary for Azathioprine (Imuran)!
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