Crohn's Disease Forum » Parents of Kids with IBD » First Anniverary for Azathioprine (Imuran)!


02-14-2013, 03:10 PM   #1
Twiggy930
Forum Monitor
 
Twiggy930's Avatar
 
Join Date: Feb 2012
Location: Canada

My Support Groups:
First Anniverary for Azathioprine (Imuran)!

Well today marks my son being on azathioprine for exactly 1 year! Where did that year go? I never thought I'd get used to giving him what initially seemed like such a dangerous drug but I have. Do I wish he didn't have to take it? YOU BET. But it no longer seems so bad.

If I compare the kid in front of me today with the kid I had a year ago it is amazing. His weight is back up, he can go to school for the whole day, he can go play with his friends, he is skiing up a storm, he is no longer living on the toilet, etc., etc. Thank you azathioprine!
__________________
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
02-14-2013, 03:13 PM   #2
Clash
Forum Monitor
 
Clash's Avatar
Woohoo for the AZA getting him back to normal kid activities!!! Long may his good times last!!!!
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
02-14-2013, 03:16 PM   #3
Kimberly27
Senior Member
 
Kimberly27's Avatar
 
Join Date: Feb 2013
Location: Mendocino County, Northern California

My Support Groups:
I can almost hear your deep sigh of relief! Yeah!
02-14-2013, 03:16 PM   #4
Jmrogers4
Moderator
 
Jmrogers4's Avatar
Fabulous! Thanks for the reminder of why we choose these seemingly horrible (at the time at least) drugs is so they can get to that point. Hope out lasts forever!
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
02-14-2013, 03:17 PM   #5
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
What a great post!!! I so glad he's doing well!!!

And, WOW, it's been a year!?!? It did fly by... I remember when he was just starting out with EEN and actually finding some fun with the whole NG tube experience! (Hope I'm not mistaking him with someone else!!! )

Great to hear!!
__________________
Tess, mom to S
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
02-14-2013, 03:35 PM   #6
Sascot
Forum Monitor
 
Sascot's Avatar
 
Join Date: Aug 2011
Location: Falkirk, United Kingdom

My Support Groups:
That's really great! Glad things are still going well.
02-14-2013, 03:47 PM   #7
Niks
Forum Monitor
 
Niks's Avatar
 
Join Date: Nov 2012
Location: Swindon, United Kingdom

My Support Groups:
Wow.. That's so good to hear! :-D..

I really hope he continues to be happy and healthy, and just able to be a child!

02-14-2013, 05:46 PM   #8
Tink572
Senior Member
 
Tink572's Avatar
 
Join Date: Mar 2012
Location: Alabama
Woohoo!! Love that he's doing so good!
02-14-2013, 06:53 PM   #9
AZMOM
Moderator
 
AZMOM's Avatar
 
Join Date: Nov 2010

My Support Groups:
yay!
__________________
Julie

Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
02-14-2013, 07:45 PM   #10
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Great news!
__________________
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
02-14-2013, 07:52 PM   #11
Hobbes650
Forum Monitor
 
Hobbes650's Avatar
 
Join Date: Jun 2012
Location: Burlingame, California
I can almost hear your deep sigh of relief! Yeah!

What do you mean "almost"? I could here it over here!
__________________
Hobbes650

Ulcerative Colitis 1986
Complete Proctocolectomy with j-pouch 1987
Permanent Ileostomy 1991
Crohn's Disease (just inside stoma) 2012
No meds post 1987 surgery to 2012

Current Meds:
Pentasa 3000mg daily
Imuran (Azathioprine) 100mg daily
Folic Acid supplement: 1mg daily
Mulit Vitamin/Fish Oil or Flaxseed Oil daily
Tumeric and Boswelia occasionally.
02-14-2013, 08:37 PM   #12
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Woohoo for a full year !!!
__________________
DS - -Crohn's -Stelara -mtx
02-14-2013, 10:32 PM   #13
kh216
Forum Monitor
 
Join Date: Jul 2012
Location: Barrington, New Jersey

My Support Groups:
I am so happy for you and your son, Twiggy.
02-15-2013, 05:01 PM   #14
CarolinAlaska
Holding It Together
 
CarolinAlaska's Avatar
 
Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
That is great news! I love to hear the positive reports!
__________________
Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
Reply

Crohn's Disease Forum » Parents of Kids with IBD » First Anniverary for Azathioprine (Imuran)!
Thread Tools


All times are GMT -5. The time now is 10:58 AM.
Copyright 2006-2017 Crohnsforum.com