Crohn's Disease Forum » Parents of Kids with IBD » Sick for months, then well overnight???


02-17-2013, 02:55 PM   #1
1tiredmama
 
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Sick for months, then well overnight???

Do your kids suffer for long periods of time and then, even without intervention, turn a corner overnight? This is my son's pattern and I don't get it. Severe, persistent nausea lifts and somewhat normal eating resumes. Appetite is poor in that most foods do not appeal to him, but the nausea is mostly gone as is early satiety.

The big picture over the last two years shows that each flare lasts longer than the previous ones. Is this what you see?
02-17-2013, 03:04 PM   #2
CarolinAlaska
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Yes, that is our pattern, Crohn's symptoms are cyclic with or without reason.
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J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
02-17-2013, 03:15 PM   #3
Farmwife
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YES, YES, YES!

Vote one for Grace!

Each time is comes back it's worse.
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I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
02-17-2013, 04:28 PM   #4
Sascot
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My son's flares never lasted past 2 weeks. He would be doubled over in pain and nauseous, then absolutely fine for ages, then doubled over for another week, then fine. Had a 2 week period in alot of pain and then gone again. Weird. Never understood how something could be so sore and then gone completely.
02-17-2013, 06:10 PM   #5
Niks
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Think we're a yes with this too!! Over last 4 years have got longer and more frequent though x
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Daughter 24, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteoporosis
Sacral Nerve Stimulator fitted Nov 17.



Peristeen Irrigation every day.
Self Catheterisation
Citramag/Picolax

Waiting for bowel stimulator!
02-17-2013, 08:57 PM   #6
Catherine
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Sarah's flares lasted for about 24-48 hours, at first they were every 2-3 months, then monthly, then finally her last flare before dx was pain for 3 months.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
02-17-2013, 10:37 PM   #7
1tiredmama
 
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Sarah's flares lasted for about 24-48 hours, at first they were every 2-3 months, then monthly, then finally her last flare before dx was pain for 3 months.
Yes! We thought our son was having school anxiety because at first his nausea lasted for less than 24 hours here and there. It wasn't until he was placed on homebound education and still having increasingly bad episodes that we realized this wasn't anxiety. I really feel guilty for having made him go to school nauseous to the point of vomiting.
02-17-2013, 10:47 PM   #8
my little penguin
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Before dx same here - lots of waxing and waning
Each time getting longer and more severe which lead to testing and finally dx.
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02-18-2013, 01:18 AM   #9
upsetmom
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When my daughter starts flaring it doesn't stop till we put her on prednisone or antibiotics.
02-18-2013, 04:39 AM   #10
Catherine
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Sarah's then gp try to dx her with stress from school, she was only 13.
02-18-2013, 04:55 AM   #11
Lewis,s mum
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I with all the other mums the flares get longer and more severe, and shorter in between , and we usually need strong pain relief and up the mess or bring the mess closer together . X
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lewis dx age 5

had first peri anal abcess age 2.
fought for his dx for 3 years
disease is located in . his peri anal, rectum colan and small bowel
meds todate are
infliximab 6 weekly
Azathioprine 50 mg daily
omeprazole 40 mg daily
buscopan 30 mg Daily
movicol 5 sachets at present a day
02-19-2013, 03:26 PM   #12
Kimberly27
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I am soooo depressed. I had no idea! Is this true for most people? Hit the "hug" button. I need it!

Does the bad news ever stop?

Kimberly
02-19-2013, 04:04 PM   #13
upsetmom
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I am soooo depressed. I had no idea! Is this true for most people? Hit the "hug" button. I need it!

Does the bad news ever stop?

Kimberly
02-19-2013, 05:29 PM   #14
Kimberly27
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I'm so sorry for hijacking the post. My mouth literally dropped open when I read the news. Thanks for the kindness.
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