Crohn's Disease Forum » Parents of Kids with IBD » Doctor in Salt Lake City area?


02-19-2013, 05:45 PM   #1
MomRocksOut
 
Join Date: Dec 2012
Location: Utah
Doctor in Salt Lake City area?

Looking for a GI for my son with Crohn's in the Salt Lake City area. We are wanting someone who is willing to monitor and help get drug free if possible. Currently we have a doctor that thinks drugs are part of life and he doesn't even believe in EN.

Thanks everyone!
Beth

12 yr old son dx Crohn's 6/12
methotraxte 7/12 - 9/12
remicade 8/12 -present
02-19-2013, 05:55 PM   #2
Jmrogers4
Moderator
 
Jmrogers4's Avatar
Did you check the doctor directory here? http://www.crohnsforum.com/doctor/us/ut/ I don't know if one of them would work for you but hopefully some other SLC area people will be along shortly.
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
02-19-2013, 07:52 PM   #3
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
I see JM directed you to the directory here, so I just wanted to say good luck !

Are you talking about going completely drug free? Or just trying EN for short time to get your son into remission ?
Is the Remicade/Mtx combo not working ?

Or is he only on Remicade now ?

EN is normally only used to gain remission, and isn't normally recommended for long term only.
There are quite a few parents here that have used it to induce remission, however, meds are usually highly recommended to maintain it.

Is your current doctor not willing to do even a short term on EN?

best wishes, and sorry for all the questions and no advice
__________________
~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
02-19-2013, 08:11 PM   #4
MomRocksOut
 
Join Date: Dec 2012
Location: Utah
He is only on Remicade now. The methotraxate was causing problems and was stopped. I was interested in EN to help put some weight on my son and hopefully some height.

He grew 1" from August 2011 to June 2012 and gained 1 lb. He's gained 6 lbs over the last 8 weeks since tweeking his diet - eliminated lactose and grains.

He seems to have skin issues the longer he's on Remicade. So, am looking for another maintenance drug.
02-19-2013, 08:26 PM   #5
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Does your son see a dermatologist ?
They can help with the skin issues .
DS has skin issues but so far we have found a mix that seems to help.
Outside of 6-mp or humira there are not alot of other drug options.
En ( formula in addition to food) can be used in addition to remicade or humira or 6-mp
But your child is going to still need a maintenance med.
EEN ( formula - no food) only works similar to pred - it puts people into remission but meds are needed once food is started.
Generally EEN only truly brings remission to kids with mild disease as well.

I wish there was an easy answer but the goal is to keep the inflammation down as much as possible as long possible until they can come up with better drugs.
__________________
DS - -Crohn's -Stelara -mtx
Reply

Crohn's Disease Forum » Parents of Kids with IBD » Doctor in Salt Lake City area?
Thread Tools


All times are GMT -5. The time now is 07:57 PM.
Copyright 2006-2017 Crohnsforum.com