Crohn's Disease Forum » Support Forum » IBD and Mental Health Support Group


 
04-10-2018, 05:47 PM   #61
Lynda Lynda
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Why is there a sheep emoji ? Ha Ha.
04-11-2018, 03:48 PM   #62
bobbet
 
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Where are the emoji's hiding?? I can't seem to find them only the ☺
04-11-2018, 03:49 PM   #63
bobbet
 
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Loving your skipping sheep lynda lynda!!
04-12-2018, 02:07 AM   #64
Lukesky36
 
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I hope everyone is doing good today =)
04-12-2018, 04:59 AM   #65
Spooky1
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Bobbet, when you comment like this, there is the 'Post Quick Reply' or 'Go Advanced' just below this message block. Click on go advanced and choose your emoji.
04-12-2018, 12:18 PM   #66
Lynda Lynda
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Going to read today and relax.
04-12-2018, 12:45 PM   #67
ronroush7
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Going to read today and relax.
Sounds great, Lynda

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
04-29-2018, 01:41 AM   #68
Lynda Lynda
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Oh, I have new emojis 😄.
🍟🍔 Wish I could eat this.
🍻Wish I could drink this.
☕I had to give up drinking coffee. Bummer.
📱🎧 I love my headphones and new phone.
🛏 I had better go to bed now.
🚽 There is a toilet emoji. Ha Ha.

Lynda
04-29-2018, 05:32 AM   #69
ronroush7
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I gave up coffee years ago.
04-29-2018, 09:58 AM   #70
Spooky1
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Sometimes i watch people drinking their latte or cappuccino and just wish i could have one. Tea is not good for me either.
04-29-2018, 12:41 PM   #71
cmack
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I miss steaks and hamburgers the most.
05-07-2018, 10:16 PM   #72
Lynda Lynda
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Tonight I am regretting all the stupid things I have posted on this forum. 🤐

It's just a bunch of rambling babble. 🤐

Sad. 😕
05-07-2018, 11:16 PM   #73
cmack
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It's okay, we all have our moments of regret. Don't be hard on yourself, nobody is perfect. Hugs.
05-08-2018, 12:14 AM   #74
Lynda Lynda
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It's okay, we all have our moments of regret. Don't be hard on yourself, nobody is perfect. Hugs.
Thank You. 🐝
05-27-2018, 01:23 PM   #75
Jess72707
 
Join Date: May 2018
Location: San Bernardino, California

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Everyone talks about this oil ? Does a doctor give it to you ?
Don't know if anyone else mentioned it but there is a medical marijuana forum, I posted there today (It does wonders)
It depends on your state laws if you can just buy it or order it.
05-27-2018, 01:38 PM   #76
Jess72707
 
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For my own expierence, I didn't have any real mental health problems until I was diagnosed with crohns disease and some time after the realization sunk in. Then it was being pregnant with my kids and having crohns disease, they were all three born premature and I swore up and down it was my fault 100%. When I got over that, which this one still gets to me is when I cant actually get up and go play with my children 10,8,6 years old.. Im 29 and I feel like I should be able to do these things. My husband gets annoyed with me always being sick (or so i think) the list goes on. Job thing too.. I used to work ..

The thing that gets me the most into my "depressed" state is that my husband was in the military for 13 years and had to get out due to me always having issues with my health (i have random unknown seizures as well as crohns disease). He didn't want to lose his career and is having a really hard time finding job out here in CA (we were in CT). I try to tell myself its not 100% my fault but its only been about a year since he got out and still hasnt been able to find a stable job, we ended up at my parents house with our three kids...
Health issues aren't just physical..But getting better day by day trying to stay positive!

Just wanted to add I have been diagnosed with depression and anxiety, which i have been on the same medication for years... A couple hospital stays for it.

Last edited by Jess72707; 05-27-2018 at 01:43 PM. Reason: adding
05-28-2018, 10:16 AM   #77
Spooky1
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I really feel for you Jess, it's such a sad situation. I'm so pleased i chose not to have children. These days i only have me to look after and that's hard enough. Sincerely hope things get better.
05-28-2018, 06:47 PM   #78
cmack
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I'm sorry things are hard right now, Jess. It isn't your fault that you got sick, nobody asks for this. You have my support.
05-28-2018, 08:01 PM   #79
Lynda Lynda
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Jess, I have been to the hospital too. I suffer from Major Depressive Disorder and Anxiety and I also take medications.
You have my support. Take Care. 💕
Lynda
05-28-2018, 09:40 PM   #80
TxGrizzlyBear
 
Join Date: Mar 2018
Location: Conroe, Texas

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Jess, I definitely understand your feeling. My husband gets ticked at me sometimes to, especially when I am sick and not feeling like doing anything. Like Lynda, I have DX'd major depression and anxiety. There are days where I just don't want to get out of bed, and when I do, it is to move to the lazy-boy. Today was a good day though and we actually went out to dinner. I'll probably regret it, but damn it tasted good! LOL Anyway, know that you have people here that care.

Jason
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Montgomery County, Texas
Dx: Crohn's (March 2018)
Medication:
...Remicade
...Cholestyramine
...EnteraGam
...Budesonide
...Viberzi
...Paroxetine
Also have:
...GERD
...Gout
...Obstructive Sleep Apnea
...Major Depression/Anxiety
06-22-2018, 06:40 PM   #81
Lynda Lynda
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Peeps !

Well, I go to a "clinic" to see a psychiatrist. My appointment was scheduled for March 30th. I arrive and find out my appointment had been changed to April 13th and they did notify me of this change. I was in tears in their lobby. I was feeling physically sick before I arrived for my appointment because of my Crohn's and I showed up in my pajama bottoms and a t-shirt ! I put in all that effort to get to my appointment on March 30th on time ( and without having a diarrhea emergency on the way there. )

My April 13th "psychiatrist" appointment was with their Nurse Practioner because their psychiatrist was no longer working there. A clinic with hundreds of clients with no doctor ? The Nurse Practioner and I talked and she refilled my prescriptions for 3 more months. I went home without a three month follow-up appointment.

I call my clinic this week. When am I going to get to see a psychiatrist for my next appointment? I am told that they only have a part time, 20 hour a week, psychiatrist working there right now. They are still looking for a full time psychiatrist.

I was told today that the soonest I may be able to get an appointment with their current, part-time, psychiatrist isn't until September. That is unacceptable because my appointments are supposed to be scheduled for every 3 months. It's not my fault they cannot find a doctor. Hundreds of people there need help.

[ I am not a big fan of "Nurse Practioners" and the gal I saw on April 13th is not a psychiatrist. The are Psychiatric Nurses that are qualified to treat folks with behavioral health issues, but never a regular Nurse Practioner. ] I understand these clinics are surely filled with employees who are over-worked and underpaid and they have to deal with some pretty unstable clients a lot of the time, so it is not as though I have no compassion for them. [ sigh ]

My mental health situation is stable at this time, so I will be okay. My medications work. This "clinic" is a special program I qualified for and is free to me. They bill Medicare for their services. They are part of an organization that is called the "Regional Behavioral Health Authority" for the County I live in.

The reason this psychiatrist appointment situation is bothering me is because recently the inept staff at my Gastroenterologists office screwed up so badly on just getting one piece of paper faxed over to my Humira Patient Assistance Program last month that my Humira Nurse Ambassador actually had a Humira representative sent to my Gastroenterologists office to make sure my Gastroenterologists staff knew what they were doing ! The staffs incompetence delayed my Humira medication order, so I was taking my 6mp pill for a month before actually starting my first loading dose of Humira. My Gastroenterologists treatment plan is the 6mp pill along with the Humira. I understand that I am extremely blessed by this free Humira and I have health insurance coverage, but why do I have to make many phone calls to many people to get things done. Ridiculous !

In general, I am sick and tired of people not doing the job they are getting paid to do. I worked my a** off for 30 years and if I had screwed things up I would have been fired. [ ugh ] Its so frustrating and this stupidly happens everywhere, every day.

I wish I could eat a root beer float right now, but I can't because my body is being held prisoner by something called "Crohn's."

🤬
06-22-2018, 06:56 PM   #82
cmack
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I'm so sorry that you have to deal with this, Lynda. That just isn't right. I am very happy that you get your humira for free though, I just hope it all comes together for you soon. You have my support bud. The medical system here and elsewhere was designed by the government of the day and they always just screw everything up... Hugs.
09-23-2018, 11:42 PM   #83
Lynda Lynda
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Join Date: Feb 2018
Location: Arizona
Well, my last post here was 3 months ago and I still feel the same way as I did then !!

Title of my post: Stress

I filed a grievance against my clinic. In 2018 there have been major changes in the clinic staff. No one calls me back . Problems with scheduling appointments, leaving me just sitting at home wondering if I will ever be scheduled for an appointment in a timely manner. A new Psychiatrist there I have yet to meet and it is 9 months into 2018 ( I saw an NP and a part-time Psychiatrist this year. ) (Since when is an NP a "Psychiatrist.") My Case Manager has changed and I was never informed. They changed an appointment from September to August and gave me 19 hours notice.

There was a conversation between the grievance people and my clinic. It is pretty much a "he said, she said" situation. I gave the grievance people my information and my interpretation of the situation, as did the clinic. No disciplinary action was taken against the clinic, but it felt good for me to at least have my voice heard !! Hoorah.

This is not mental health related, but is related to anxiety and stress.....It is about my Gastroenterologist office ( specifically the FNP I see frequently but dont really care for. ) She keeps insisting that I discontinue taking my Protonics because it is bad for my bones. I have been taking acid reflux medication for years. She told me in March to stop taking it, I did and I ended up in the ER!! I know protonics ( ppi ) are bad for the bones and I know I already have osteoporosis and osteopenia.

I called my Gastroenterologists office on Friday and gave the medical assistant some information to pass on to my Gastroenterologist doctor about this FNP, because, once again, I needed my voice to be heard. My information was this.....
1 ) The FNP needs to stop insisting I stop taking my Protonics because I get so sick I end up in the ER and I am not going through that again. No OTC stuff works.
2 ) The FNP and Gastroenterologist ARE NOT THE PRESCRIBERS OF MY PROTONICS, MY PCP IS THE PRESCRIBER. So why is this FNP telling me to discontinue a medication that she does not even prescribe.
3 ) My Endocrinologist monitors my hypothyroidism AND my bones. She knows what meds I take, my health conditions, surgeries, everything. I had one Reclast infusion for my bones a while back. I get yearly DEXA scans and I take Vitamin D3. She is a great doctor. She monitors my osteopenia and osteoporosis, so why is this FNP sticking her nose into this.

The FNP / Gastroenterologist are in charge of monitoring my CROHN'S. I have Specialist Doctors for everything and that works out just fine, as a Specialist Doctor has been educated in what they are practicing. I just wanted my voice to be heard, so I hope my Gastroenterologist actually reads my message.

And last, as far as my apartment complex and the new owner and new management company.....I have had to put up the white flag of surrender, as no amount of my time of effort would result in resolving any issues on this property. I give up. I give up.

Lynda
09-25-2018, 06:20 PM   #84
TxGrizzlyBear
 
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Lynda,

I certainly feel your issues! Just remember, we are here for you!

I am having the same issue here with my psych clinic trying to see the right person for the job. They can't seem to figure out whether I am majorly depressed/anxious or if I am bi-polar! I think it is just a bit of depression because a year ago today I was working full time driving trucks, relatively healthy and functioning somewhat normal, what ever that is now-a-days. For some reason they think that my taking a two week rx of muscle relaxers in one swallow has something to do with it!

As for my GI office, once i told them that I had an issue with the NP and her attitude, I have never seen/heard from her again. They are nice enough to make sure she leaves me alone.

If you don't mind my asking, what's going on with the apartment complex? I understand your "surrendering" there, sometimes you just have to figure out which battles are worth the stress and hassle.
09-25-2018, 07:29 PM   #85
Lynda Lynda
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Join Date: Feb 2018
Location: Arizona
Thanks for replying. 😊

First of all, I am sorry that you have had to deal with doctors, NP's and mental health. In 2007 I believe I was misdiagnosed with bipolar by a psychiatrist ( not a clinic psychiatrist, one in private practice. ) He prescribed me very powerful drugs that wasted 6 years of my life drugged up and never getting any better. It wasnt until I went broke $$ and had no health insurance and couldn't buy the medicines that I got better......well. shit got way worse BEFORE they got better ( isolation from people, severe depression and the an 11 day stay in psyche ward) Once I was properly diagnosed with Major Depression, and NOT bipolar was I given the correct medications and started to get my life back. ( During this time I also applied for SSD and was approved. ) 🙂

So, if I had not ever gone off those terrible strong medications I would still be in thel Twiilight Zone. 😳 The last 5 years for me have given me more of a "normal life" but still is hard to find joy in much of anything, but I can function real well and am stable.

I hope you find out your correct diagnosis, really until you get the right diagnosis can they prescribe the right medications but also you may need counseling. My clinic has places to go to socialize with my peers. But I have tried that and it's just like being in a day-care retirement home.....some classes to learn and reinforce coping skills ( Cognitive Behavioral Therapy ) but then art and bingo and "field trips....I'm done with that crap. One good thing I learned is Cognitive Behavioral Therapy. I learned these skills in the Hospital and an aftercare program. You can learn it one-on-one with a therapist.

That's enough of my ranting and rambling 😮

Take Care and Keep In Touch 🌻
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