01-20-2012, 11:33 AM   #1
Join Date: Dec 2011
First Infussion

Hello All, I had my first Remicade infussion yesterday and everything went well! I'm not sure why but, I slept through the entire night, which is something that I don't usually do and did'nt get up this morning with a mad dash to the Biffy, when I did go there was'nt as much blood! Could this be working already or is it that I've been waiting soooo long and want it to work soooo bad? Anyway, I'm not complaining and will have to wait and see. I go back to the infussion center in 2 weeks for the second one and will keep you posted as to how things go. Till then good luck to all, Crazylegs

Last edited by CRAZYLEGS; 01-20-2012 at 01:08 PM.
01-20-2012, 01:15 PM   #2
rygon's Avatar
Join Date: Jan 2010
Location: Grimsby, United Kingdom

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I foumnd my 1st few infusions made me tired. I found my 1st infusion halved my symptoms within a day or 2, so suprised how quick it worked. Although I didnt feel "normal" until after my 5th infusion, but as each infusion went I became progressively better.

Hope it all works out for you
Current Meds:
2x 1200mg Mezavant, 3x50mg Azathioprine, Infliximab (6 weekly)
01-23-2012, 12:47 PM   #3
Senior Member
moogie's Avatar
Join Date: Jan 2011
Location: Boisbriand, Quebec
Welcome to the club.

Enjoy the relief

I'm the Rat Man!!
DX - CD summer of 1987
Current Meds -
Getting Remicade every 8 weeks
Getting 5mg now. full dose. cost 5500$ )
Purinathol 75mg a day

3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!
01-23-2012, 12:54 PM   #4
Senior Member
chrisnsteph1022's Avatar
Join Date: Jan 2011
Location: Tennessee

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You're on the same schedule as me! I had my first infusion Friday and the next one is 2/3. I started seeing improvements on Sunday. I think it really CAN work that quickly. Amazing, isn't it?
dx 2003
Remission 2004-2010
Moderate/severe flare through entire colon 12/2010-10/2012
Lialda, omeprazole, Remicade, Methotrexate, Folic Acid, Questran
Been on Asacol, prednisone, Apriso, Imuran, Entocort and Cimzia
FB support group
01-23-2012, 02:30 PM   #5
Senior Member
Grumbletum's Avatar
Join Date: Dec 2010
Location: Western Isles, United Kingdom

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I started to see a real difference after the 2nd one. It really is totally amazing. Wishing us all continued success with it :-)
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
01-23-2012, 02:50 PM   #6
Join Date: Dec 2011
Hello all, as I said before, I had my first infussion last Thur. aft. without any problems. I felt good on Fri. and could feel a difference. I was also fine on Sat morning but, on Sat evening I had some flu-like symptoms ( about 10 trips to the biffy and a slight headache) thankfully when I woke on Sun. morning I was fine again and last night I slept right through and woke this morning feeling great! I'm not saying that I've got it under control because I'm still making a few trips to the Bif but, not near as many and I Feel Good! I can tell that the Remicade is starting to work and I'm looking forward to what lies ahead. Thanks for your replys to my posts, Crazylegs

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