Crohn's Disease Forum » Treatment » Tacrolimus (Prograf)


04-18-2018, 06:37 PM   #1
lgpcarter
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Tacrolimus (Prograf)

Found some old threads in the search, but I thought I would try again and see if anyone has been on in the last couple of years.

Fistulas and perianal disease are pretty terrible at the moment. Enytvio is not helping. Looking at a few options right now, with Tacrolimus being one of them.

Looking for info on side effects, did it work for you and how fast? Particularly if you have fistulizing Crohn's.
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Diagnosed in with Crohn's in large and small bowel in 2000. Fistulas followed soon after.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014. 3 more setons June 2018.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Humira 2 shots weekly, Entyvio every 4 weeks, Vitamin D 2000 IU

Previously: Remicade, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone, Imuran, Cipro and Flagyl
04-18-2018, 06:54 PM   #2
ronroush7
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I don't have information but I am sure others will. Wish you all the best.
04-19-2018, 05:19 PM   #3
Maya142
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There is a mom whose daughter did very well of Tacro for a couple years. Her daughter was going to have surgery and Tacromilus prevented that I think. She's not on much, if you search on the parents' forum, her kiddo's thread will come up.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
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