Crohn's Disease Forum » Your Story » Undiagnosed for years


06-19-2018, 09:52 AM   #1
jameslufc
 
Join Date: Jun 2018
Undiagnosed for years

For as long as I can remember i have always have times where i feel sick for no apparent reason. It is only in the last few months where it has got work, had a stool sample and doctor said fecal calprotectin came back high and i definietly have inflammation of the gut, is it normal to be diagnosed for say 3/4 years then for it to get worse to then be diagnosed with Crohn's for example?
06-19-2018, 10:52 AM   #2
Sophabulous
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Join Date: Jun 2016
Location: Cheshire, United Kingdom

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Unfortunately it can take quite some time depending on your symptoms etc. My bloods showed inflammation 4 years before we narrowed it down to my gut specifically as I wasnít having very obvious symptoms until 2016. My Crohnís is all hiding in my small bowel though so the symptoms were not typical of what most people experience and Iím sure that slowed things down considerably.

Hope this helps!


__________________
Diagnosed severe Crohn's of the Duodenum, Terminal Ilium and Cecum.

Currently taking Azathioprine 100mg, Esomeprazole 40mg, B12 Injections and various supplements. Azathioprine failing so awaiting next steps
06-21-2018, 11:22 AM   #3
cmack
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Location: British Columbia

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I would keep trying to get more answers from your doctor and maybe even seek another opinion. The sooner you have a proper diagnosis, the sooner you can focus on feeling well again. Once you get on the right treatment things will improve, things will get better. Good luck, you have my support.
06-22-2018, 11:41 PM   #4
Lynda Lynda
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Join Date: Feb 2018
Location: Arizona
For as long as I can remember i have always have times where i feel sick for no apparent reason. It is only in the last few months where it has got work, had a stool sample and doctor said fecal calprotectin came back high and i definietly have inflammation of the gut, is it normal to be diagnosed for say 3/4 years then for it to get worse to then be diagnosed with Crohn's for example?
Yes.

My docs thought IBS.
Then it was UC.
Now it's Crohn's.
This all happened during a 20 year time span.
06-29-2018, 09:57 PM   #5
Lynda Lynda
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Join Date: Feb 2018
Location: Arizona
For as long as I can remember i have always have times where i feel sick for no apparent reason. It is only in the last few months where it has got work, had a stool sample and doctor said fecal calprotectin came back high and i definietly have inflammation of the gut, is it normal to be diagnosed for say 3/4 years then for it to get worse to then be diagnosed with Crohn's for example?
Just checking up on you. 🙂
Have you had any more tests ?
Do you feel any better ?
Lynda 🐥
07-03-2018, 05:42 AM   #6
adamlevine
 
Join Date: Jul 2018
Location: California
Time to keep track of your extra health
08-17-2018, 09:47 AM   #7
jameslufc
 
Join Date: Jun 2018
Just checking up on you. 🙂
Have you had any more tests ?
Do you feel any better ?
Lynda 🐥

I had an ultra sound nothing came back so still waiting to get an appointment for a colonoscopy!!
08-17-2018, 08:17 PM   #8
cmack
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I've had a few of those, it's not as bad as it sounds. Best of luck!
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