Crohn's Disease Forum » Support Forum » I can't eat food! Only liquid nutrition help!!! Support Group


 
07-08-2017, 02:25 AM   #31
Deliwi
 
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Hi Juulez, You poor sole. I know how you feel, but just wanted to tell you that I saw a Medical Herbalist and he put me on a product called Life Greens (even tho I cannot eat any green vegetable) and it helped a lot.
It is actually a powder made up of Slippery Elm and several other helpful vitamins and minerals and also has probiotics in it. I found it really helpful and easy to take (tasted nicer when mixed with a little Aloe juice). Good luck
10-14-2017, 03:57 PM   #32
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putting it into my coffee
Interesting that you can drink coffee.

Any sort of caffeine (coffee, tea, cola, energy drinks), makes me flare up.
10-14-2017, 04:09 PM   #33
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ensure plus

I have never heard of Ensure Plus.

But the original Ensure has loads of crap in it.

My doctor tried to put me on it - thanks but no thanks was my reply.

I really find it amazing, that they prescribe it to people with IBD.

Some of the ingredients like canola oil, sugar, artificial sweeteners, soy, milk, carrageenan, artificial flavours, have all been indicated in flares and worsening of IBD. Not to mention other health issues.

I am completely mystified
10-14-2017, 04:25 PM   #34
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I am completely mystified
For example:

The product Ensure contains five added stabilizers, one of which is Carrageenan.

In a study, certain emulsifiers (stabilizers) caused chronic colitis in mice


https://articles.mercola.com/sites/a...e-colitis.aspx

Or this more scientific report:

Carrageenan is a very common food additive in Western diets, but predictably causes inflammation in thousands of cell-based and animal experiments. Carrageenan intake contributed to earlier relapse in patients with ulcerative colitis in remission. Restriction of dietary carrageenan may benefit patients with ulcerative colitis.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5389019/

Therefore, if carrageenan has been scientifically proven to cause colitis or make colitis worse.........why on earth are doctors prescribing Ensure to people with IBD?

I am truly mystified about this one
10-14-2017, 04:34 PM   #35
MaryCherub
 
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Dr said tea and coffee ok no creamer or milk though
My doctor gave me the most useless advice too.

In fact, one of the foods he suggested I eat a lot of, actually turned out to be the very worst things imaginable for me. Unbelievable. After that, I sought nutritional guidance from a naturopath instead.

https://www.ibdrelief.com/diet/role-...ffeine-and-ibd
10-15-2017, 09:08 AM   #36
Spooky1
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Definitely caffeine and milk are rubbish for me. Shame, I love tea. Have to stay off it though.

Last edited by Spooky1; 10-15-2017 at 09:11 AM. Reason: spelling.
10-15-2017, 04:29 PM   #37
Lady Organic
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I have never heard of Ensure Plus.

But the original Ensure has loads of crap in it.

My doctor tried to put me on it - thanks but no thanks was my reply.

I really find it amazing, that they prescribe it to people with IBD.

Some of the ingredients like canola oil, sugar, artificial sweeteners, soy, milk, carrageenan, artificial flavours, have all been indicated in flares and worsening of IBD. Not to mention other health issues.

I am completely mystified
I know its weird, but other very specific enteral diets such as Modulen IBD for instance have questionnable ingredients and it does put CD in remission for a lot of patients. Main ingredient is corn syrup and the powder is loaded with sugar! I already tried it and it tasted very sugary. This product is commonly used in the pediatric population instead of cortico-steroids in CD and it works for many patients. I had called Nestlé to encourage them to have better ingredients. Back then it was GMO corn syrup, but I think they may have simply removed it on the ingredient label. In Canada, there is no law forcing to mention GMO's in the ingredient list.
https://www.nestlehealthscience.ca/e...en/modulen-ibd
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''UC-like Crohn's'' (2001)
wrists + ankles arthropathies (2013)
on: 50mg 6-MP (Purinethol)+ B12 shots


Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA (pill, rectal), cortifoam, Imuran, Purinethol, methotrexate.
10-16-2017, 01:09 AM   #38
Spooky1
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Lady, that is so shocking. I never really trusted them, and I certainly don't now. I have E028Extra.
10-16-2017, 02:27 AM   #39
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Yes I know it seems to help some people Lady. But then you have the paradox of it containing ingredients that have been proven to induce colitis.
01-08-2018, 11:40 PM   #40
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Hi All! I've been only mostly liquid diet for about 3 years due to strictures & massive adhesions. 2 small bowel resections (jejunum). Better, but they can't remove an affected portion - too risky. Had to stop last double balloon as blood pressure and pulse dropped when trying to negotiate a section. With absorption issues and strictures, belly was massively pissed off. I have lots of food intolerances... nuts, coconut, corn, mushrooms, etc. And of course fiber is a no no. I have trouble digesting proteins, but seem to do ok with starches and some fat. I am now doing pretty well, keeping up with zumba, hiking, canoeing, travel, etc. My go to food remains smoothies. For first year 2-3 times a day: 1/2 banana, 1 tbsp. peanut butter, protein powder (bone broth, egg white, pea, pumpkin, etc. protein only, not meal replacements), 1 cup rice milk (now I use hemp milk then flaxmilk every 4th day), spinach, tsp. of sugar and 4-5 ice cubes, blended to perfection! It is still on my schedule once a day. I make other smoothies, and lots of soups - pureed. I eat crustless quiche (sliced sweet potato for crust), with a few veggies sauteed to make them soft. A little melon and blueberries work for me. I take A LOT of supplements to help digest what I eat and to get all the necessary nutrients and to regulate BMs. I usually have smoothies for breakfast and lunch, then some real food for dinner. It works! I travel with my blenders and all my foods that I can eat.
Currently on Humira. Helping some I think. Totally worth staying liquid to avoid hospital stays and NG tubes!!! Hang in there!
01-09-2018, 04:31 AM   #41
Spooky1
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Yep, i'm very much liquid feed. I too have way too many intolerances. I'm pleased it's working for you, but I sincerely don't have the energy to all that you do. It might be age related though, and perhaps the arthritis.
01-09-2018, 03:54 PM   #42
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I know the lack of energy thing is a bummer. At my low point I couldn't walk more than a few feet. My husband had to hold me up (literally), help me in the bathroom to keep from falling off the toilet. I finally begged my gastro to run a blood test. My resting pulse was 126, shortness of breath, etc. etc. He finally agreed to a blood test. One point away from needing a blood transfusion due to low ferritin. Luckily I got two iron infusions instead and 30 days later started to feel better. I mention this only to help anyone who feels something is very wrong (other than the usual) to speak up.
On another note, I am terrified for my next double balloon in Feb. I have really bad reactions to anesthesia. I hope they can get through this time and I survive the procedure!!! Until then I will zumba my little heart out!
02-16-2018, 11:28 PM   #43
Lynda Lynda
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Hi. My name is Lynda. I am going to read through this tomorrow on my computer. I think a liquid diet would be the thing for me. I used to drink a healthy smoothie once a say as a meal replacement and I felt better. Solid food makes me miserable. ( I have suffered with UC for 20 years. ) Thanks for listening. ♡
02-17-2018, 11:53 AM   #44
ronroush7
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Hi. My name is Lynda. I am going to read through this tomorrow on my computer. I think a liquid diet would be the thing for me. I used to drink a healthy smoothie once a say as a meal replacement and I felt better. Solid food makes me miserable. ( I have suffered with UC for 20 years. ) Thanks for listening. ♡
Wishing you the best.
02-17-2018, 03:34 PM   #45
Lynda Lynda
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Ron, thank you for the nice comment.
I am going to start a liquid food / soft food diet today.
I am sick of eating solid food, getting sick and then being miserable here sitting at home.
I am going to see my Gastroenterologist soon, but I really need to see a Nutritionist to make sure I eating the proper foods and not missing out on the vitamins and nutrients I need. I would never give up my coffee. And dairy products do not bother me at all.
Later.
02-17-2018, 09:51 PM   #46
cmack
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I hope the diet helps Lynda.
02-19-2018, 06:55 PM   #47
Lynda Lynda
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I hate making a food diary. I already know what I cannot eat......which seems like almost everything. I'm sick of eating food and getting sick. My#1 UC symptom is diarrhea. I am putting myself on a liquid / soft food diet right now. Maybe call it a modified "BRATT" diet. As soon as I buy a new NutriBullet I will be making a meal replacement smoothie once a day.
02-19-2018, 07:38 PM   #48
cmack
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Smoothies have been a very good choice for me, personally. I am eating so healthy, it seems like I'm trying out for the track team. Lot's of trial and error with ingredients at first, but I feel healthy and THAT is what I like. Good luck!
02-19-2018, 08:00 PM   #49
ronroush7
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Smoothies have been a very good choice for me, personally. I am eating so healthy, it seems like I'm trying out for the track team. Lot's of trial and error with ingredients at first, but I feel healthy and THAT is what I like. Good luck!
Thumbs up.

03-14-2018, 05:16 PM   #50
Lynda Lynda
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Ok. Now I cannot eat solid foods at all. Now I am drinking juice, broth, Jello, coffee, soda pop, Ensure and water. My Gastroenterologist office is worthless, they say I cannot get in to their office for a "consultation" with a Nurse Practitioner until April 3rd. My calprotectin level just came back as 694. So, my doctors office just wants me to stay locked in my apartment just drinking liquids and having liquid poop for three weeks while I also suffer from colon pain, nausea, and extreme fatigue ? Say What ? I am starting to get mad. ( The only medication I take for my UC right now is Cholestyramine Powder. Why am I not taking any other kind of medication like something as a maintenance drug to keep my inflammation in check ?)
03-14-2018, 07:20 PM   #51
cmack
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Is there any possibility of checking for cancellations? Maybe if you call a couple or three times a day and check you will get bumped up. I'm not trying to lecture, but the soda pop is really no good for you, try more water. I'm hoping you can get in to be seen sooner. Best wishes to you Lynda, you deserve a break.
04-03-2018, 03:48 AM   #52
Lynda Lynda
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Chris, thanks for your support.

Ronroush : You are always here with a kind word for everyone.

Why is there a voodoo emoji ?
04-03-2018, 08:42 AM   #53
ronroush7
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Is there any possibility of checking for cancellations? Maybe if you call a couple or three times a day and check you will get bumped up. I'm not trying to lecture, but the soda pop is really no good for you, try more water. I'm hoping you can get in to be seen sooner. Best wishes to you Lynda, you deserve a break.
Agree. Caffeine was really awful for my Crohn's disease .
04-04-2018, 07:52 AM   #54
Spooky1
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Yep, i have that craving for caffeine regularly when someone else has one, but it's useless for me.
04-10-2018, 06:09 PM   #55
Lynda Lynda
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I had to quit drinking coffee recently and I really used to love coffee, but on the other hand coffee makes me really sick and so I don't want to drink it anymore.

I've been on a liquid diet since March 13th. My doctor did not tell me to go on a liquid diet I just did it myself because I felt so crummy.

Anyhow, I am sick of drinking those Ensure drinks and I started to add solid food back into my diet last Friday, just a tiny, tiny amount of solid food each day.

I have been having diarrhea for the last couple of months, but on Sunday I ate some white rice and on Monday I only had one bowel movement and it was not diarrhea and it looked like the kind of bowel movement that would be "normal" for me.

I don't remember the last time I only had one bowel movement a day and I think my digestive system is really confused.

But now I am suffering from terrible heartburn and acid reflux.......so for me this appears to have taken the place of all that diarrhea I was having. I cant win.

Take care and have a good day.
04-10-2018, 06:25 PM   #56
cmack
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I hope it settles down soon, Lynda. Hugs.
05-24-2018, 09:43 PM   #57
Lynda Lynda
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Oh, about soda. I only drink one can of A&W Rootbeer a week. Sometimes A&W Cream Soda. Never diet soda, hate the taste.
05-24-2018, 09:44 PM   #58
Lynda Lynda
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Bloated every afternoon /evening. 🙁
05-26-2018, 01:56 PM   #59
Spooky1
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My Questran has sweeteners in it these days. Doesn't do me any good, but does stop the diarrhoea from being so bad that i darn't use the loo. I am bloated every afternoon/evening. Think it's bad gut flora. However, the liquid feed also bloats me and apparently causes bad gut flora
05-26-2018, 05:57 PM   #60
Lynda Lynda
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I ate fast food today.
Am I suffering from it ?
Diarrhea. Yep.
Bloating. Yep.
Heartburn. Yep.
Well, Ensure Drinks for me forever it seems.
Hate jello.
Hate juice.
Hate broth.
Ensure Drinks are just sugar and water and added vitamins. It will surely rot my teeth.
I drink enough of them to maintain my weight.
I will probably gain weight.
Take Care.
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