S
Stacey84
Guest
Hi everyone
My name is Stacey, I'm 26. I have had CD since I was 7 although not diagnosed until I was 10 because they couldnt find CD the first time round. Symptoms were severe weight loss, (from a healthy kid to weighing only 2 stone), D, fever. My dad had CD but my parents never thought I had it because my symptoms were different from his. Because I have had it since a young age, my height and weight have been affected. For many years I was giving TPN through a hickman line. When I was 16 I was giving growth hormone, it worked, I grew 5 inches. I have had surgery to remove 9 inches of bowel. Also for a blockage and a fistula. I am currently taking mercaptopurine which I am not sure is working. I had 1 infusion of Infliximab last year which did work, my appetite was so good, but it only lasted about 2 months. I think my crohns has started to flare up again, no appetite, grumpy and so tired. Looks like I will be back on the roids soon enough. Ahh the joys.
Stacey
My name is Stacey, I'm 26. I have had CD since I was 7 although not diagnosed until I was 10 because they couldnt find CD the first time round. Symptoms were severe weight loss, (from a healthy kid to weighing only 2 stone), D, fever. My dad had CD but my parents never thought I had it because my symptoms were different from his. Because I have had it since a young age, my height and weight have been affected. For many years I was giving TPN through a hickman line. When I was 16 I was giving growth hormone, it worked, I grew 5 inches. I have had surgery to remove 9 inches of bowel. Also for a blockage and a fistula. I am currently taking mercaptopurine which I am not sure is working. I had 1 infusion of Infliximab last year which did work, my appetite was so good, but it only lasted about 2 months. I think my crohns has started to flare up again, no appetite, grumpy and so tired. Looks like I will be back on the roids soon enough. Ahh the joys.
Stacey