Hi all. New to this site but not to Crohns or an ileostomy. I was diagnosed with Crohns in November of 1987 when I was 8 years old. Went through tons, Central lines, NG tubes, TPN, Prednisone, liquid diets, coloscopies, endoscopies, barrium, enemas, hospital stays. Finally when I turned 15 they tried what they wanted to call a temporary ileostomy. My mother and I came to find out this was all a trick because they sewed up my rectum and removed my colon. Anyway, it has been over 16 years now that I have had my ileostomy. In the last few years things with it have been getting worse. I have a lot of polyps growing on the stoma and they bleed constantly. Also the stoma is producing so much mucus that I can't get my bag to stay on more than a couple of hours. I'm trying to get in to see the GI doctor my mother sees. She was recently diagnosed with Crohns. She has a younger brother who also has Crohns. So it runs in my family. My primary care doctor is giving me a hard time because the doctor isn't affiliated with the same hospital as her but that isn't an issue with my insurance. I am very frustrated. I can't sleep, can't go far from my house, and I can't be very active because I'm at the mercy of this stupid bag and this mucus that makes it leak. I believe I am having a flare up because my stomach has been hurting and the mucus is getting worse. The GI doctor that I saw that was affiliated with my primary care doctor tried to tell me I was fine. I saw her twice with the same result. This was last year. Since then it has just gotten worse. I'm at my wits end. And I am wondering if anyone else has had issues with mucus. Two weeks ago my ex husband who I still live with just had a temporary ileostomy done for diverticulitis. I think the stress has started a flare up because with in the last two weeks the mucus has been going over time and like I said earlier I haven't been able to keep my bag on for more than a couple of hours. HELP!!!!!!!!!!!