Crohn's Disease Forum » Surgery » Re: Surgery

06-17-2010, 05:22 PM   #1
Join Date: May 2010
Re: Surgery

I have a query. I have read in many posts that people are having surgery's. I don't know y. Fistulas closes with Remicade. Then y people have many surgery's with chron's. Please let me know. I didn't had any surgery till date. I had Fistulas, Abscess though.
06-17-2010, 05:38 PM   #2
Senior Member
Crohns08's Avatar
Join Date: Sep 2008
Location: Florida
Some people develop so much scar tissue in their intestines that they have blockages and it can't heal so they have resections. I'm sure there are other reasons, but that is one of the main ones.
Toni, Diagnosed in September '08
Specific Carbohydrate diet
Currently on:
Vitamin D
SCD Multivitamin
09/2011 - Draining an Abcess the size of a lemon!
10/2011 - Same abcess, different approach this time, open incision!

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06-17-2010, 09:44 PM   #3
Nyx's Avatar
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
I burst my sigmoid colon and distended my bowel.

Woke up in hospital with a bag.

They removed 1/3 of my colon.

No meds were helping my situation, and I wound up having a major blockage which resulted in the above. Fortunately for me, it turns out that it was the best thing to ever happen to me.

That's my surgery story Well, the short and sweet

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

06-17-2010, 10:14 PM   #4
Senior Member
semicolon306's Avatar
Join Date: Mar 2010
Location: Norwich, Connecticut
8 surgeries from colon removal, blockages, to J pouch, most recent was J pouch removal with a fistula going towards the spine. Originally thought I has colitis, but found out I had Crohn's. Hoping this is the last one, LOL. Talking about putting me on medication, but the 15 doctors all do not agree, so time tells all.
LMPO - "Laugh my pouch off"

E-mail - [email protected]

Age 8 - ABD pain, weight loss, no appetite
Age15 - Admitted with rectal bleeding and pain - treated as Colitis
Age 19 - Colon removal with a ileostomy
Age 20 - J Pouch with a Pull through procedure
Age 32 - Complete blockage (due to scar tissue)
Age 34 - Partial blockage and found to have Crohn's
Age 35 - J pouch has a fistula & both connected to spine
Age 36 - Ileostomy and rectum closed
06-18-2010, 12:12 PM   #5
Silvermoon's Avatar
Join Date: May 2010
Location: Alberta
As said many times over on the site, everyone is

I was on Remicade for 5 years, and at first it helped with the fistulas and abcesses, but unfortunately it no longer works. So in my case, the doctor feels that doing a temporary colostomy to stop the stool from passing to the part of the colon were the fistulas are located will help to heal them.

And yes, I have had surgeries in the past where the bowel just gets so "rotten" that meds will not heal it. Surgery is usually a last-case senario for one of the symptoms, as the surgeries themselves come with many complications... scarring, strictures, etc.

There are many on here who haven't had surgery yet, so you are not alone!
My Story
06-18-2010, 04:23 PM   #6
Senior Member
Keona's Avatar
Join Date: Mar 2010
Location: Hamilton, Ontario
I could be wrong so someone please correct me if I am. It's my understanding there are several reasons for strictures. THe 2 that apply to Crohn's is inflammation and adhesions (even if you havent had past surgery). I think your intestines swell and then go normal over and over that it develop's adhesions which collapse or pull on the intestine causing stricture. Med's can help the swelling/inflammation but not adhesions. Adhesions need to be removed by surgical measures.

I also plan never to have surgery (cant make this smile big enough! haha)
Dx GERD 2008
Dx Gastritis & hiatal hernia Feb 2010
Dx non-definitive Crohn's June 2010
Dx Endometriosis April 2011

"if nothing changes - nothing changes

06-18-2010, 04:31 PM   #7
Join Date: May 2010
Thanks for the replies. Thanks a lot !!
06-23-2010, 01:52 AM   #8
Senior Member
Zalanicht's Avatar
Join Date: Mar 2010
Location: Penticton, British Columbia
For me my ileum healed so small with scar tissue nothing could get through which made food back up as well as add fissures and fistulas they had to operate. Gas and liquid going into my abdominal cavity aswell I could not live like that.
28cm sm and L bowel removed, 200 mg Aza, monthly b12 injection,
calcium + vit d. Enjoying my surgery induced remission!

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