Crohn's Disease Forum » Treatment » Pain medication and addiction in Crohn's Disease


 
09-01-2008, 07:56 AM   #61
albertjames
 
Addiction is a psychological phenomenon where a patient takes more medicine than they actually need. And then they become obsessed with taking more medicine, and obtaining more medicine, even when they're having serious side effects and maybe making them ill. We know from treating chronic pain in adults and in children that addiction is rare in adults, and it's extremely rare in children.
09-29-2008, 09:08 PM   #62
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GNC Crohn's Man said:
Remember their are two types of addiciton... First is the mental addiction... You crave the medcine because it makes you feel good and better... Then their is the physcial addiction that your body craves the susbstance in order to help keep your body better sedated and in a healthier state...

Remember if you are having intestinal pain then thier is only so much you can do...
You can not take NSAID's they will cause your crohn's to flare...

http://www.nlm.nih.gov/medlineplus/d...di/202743.html
If you have active inflamation in your bowels then you CAN NOT have narcotic based pain meds...

Anything that is narctoic based will cause intestinal slowing and blockage and will only make the problem worse... You may feel pain free, or at a lower amount of pain for a few hours, but be in even worse pain 4 hours later... Thus you take another pain pill to killl the pain that the pervious pain pill caused you as it passed through your body... Very fast way to get addicited, hospitilized, or even dead if you do this... Yes your intestines can rupture.... If you have lots of pressure (if you feel super bloated all throughout your intestines and stomach) then do not take a narcotic based pain med. Very much so if you are then going to take a phengran and try to eat (you may be starving due to a high prednsione dsages). If you do this then your intestines can rupture... If your instestines rupture then well you will either die or be live with a very very very not pretty pitcure of what is left of your intestines..
Good info...when I was diagnosed, and still flaring, I was put on a narcotic and the results were not good.
10-05-2008, 10:36 PM   #63
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GNC Crohn's Man said:
...Also remember if you ever feel your in pain, or alone or something else then call a friend and get them over there to take care of you... You should never have to fight this battle alone.... If you do then you will have nothing to look forward to but pain... Life is about looking to improve and enrich your life and the lives of the others around you... It is not about you suffering every day simpley so the next day you go and suffer more...

So talk to your friends, set goals, make plans, even if you know you can't do them. Life is about living it. Always look for that silver lining no matter how dark things get... You will get better eventually and you will be stable... Otherwise you will continue to degrad and your body will fall apart. Then you will die and be at peace... Either option is what I hope for...
Wow i really needed to hear that....believe a "thank you, Crohn's Man!" is in order....i have been suffering every day...need to add that to my list of fixes!

12-11-2008, 01:53 AM   #64
JGBeatCrohnsDisease
 
Some people that i've worked with have had problems getting attached to vidodin or hydrocodone...it seemed that this is what really did the trick for those bad stomach pains and they would just take them to the point where it was every day...the tempation to use ANY pain medication is high but there are always others solutions...i've had a lot of success going people with meditations and exercise and a healing diet...

it helps some people enormously...

Josh Golder
12-23-2008, 09:45 AM   #65
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Unfortunately I know all too well about taking painkillers. I'm struggling to find relief from my symptoms and painkillers are the only thing can help control what I'm feeling. I'd rather not take them but at the moment I feel I have no other choice. I've never at any point felt addicted though, I don't feel like I need them to function. If I'm lying in bed all day it's not necessary but in order for me to get on with my day I'd like to be as pain free as possible. When I'm not having a bad week I don't take anything at all. I feel it's important to only dose up as necessary.

I started off on co-codamol when my symptoms started and surprisingly it helped calm my pain for quite a while. It was pretty effective. When my problems increased I went onto dihydrocodeine. Again very effective but only for a short periods of time and I found after a couple of hours the pain would be back full force.

I've tried tramadol too more recently, which I believe targets the pain in a different way. It was possibly the best out of all of them, but again it wasn't particularly long lasting for me. I could take maximum 400mg a day extended release but come 6pm I'd be in agony and not able to have another dose. Which led to terrible sleep.

I'm now on fentanyl patches, they are an absolute miracle. Since I started wearing them I've felt the best I possibly ever have. They give continuous 24 hour pain release and I'm just so happy to feel more normal. Although this isn't a painkiller I also take diazepam in low doses as a muscle relaxant, helps the stomach muscles and I can finally sleep. I woke up this morning and I think I possibly felt the happiest I have all year.
01-14-2009, 10:01 AM   #66
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01-15-2009, 09:30 PM   #67
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My CD has flared up about a month and a half ago. The pain was pretty bad and i knew early on that my crohns was back, even before i did any tests.

I dont know if this is common or not, but i have NEVER been offered any powerful pain medicine for my CD. I have had crohns my whole life, got diagnosed when i was 13-14. My doctor has never offered me any effective pain managment. Chronic pain is a terrible way of life and im happy to see that other people get pills for it!

This time around i am medicating with Buprenorphine (Subutex 8mg) http://en.wikipedia.org/wiki/Buprenorphine.
Buprenorphine is a thebaine derivative with powerful long-lasting analgesia approximately twenty-five to forty times as potent as morphine
This has worked like a miracle for me. Subutex is custom designed for crohns disease in my opinion. Its very effective against pain for me, it's long-lasting, potent, and is very hard to become addicted to. And it does not cause respretory depression, so it is nearly impossible to overdose on it.

Subutex is a unique opiate in the way that it doesn't make you sedated and stoned like for example vicodin or this type of strong narcotic. When you take it you get energetic, get an increase in apetite (for me personally), and the effects last up to 12-14 hours. This has been good for me because my crohns makes me very fatigued constantly. Subutex helps me get out of bed and take care of myself, and get out of the house and just be all around more active. Now i live a more normal life -- during my last flare i could do nothing except lay on the couch and watch tv. Not even read on a forum like now because my brain had no energy at all to even think.

This may be an alternative for you people who get constipation problems from opiates. While buprenorphine DOES slow down your intestines, it's very potent and long lasting. I can get through a whole days pain by dosing only once at around lunchtime. I dose again at night if the pain comes back (though it makes it difficult to get to sleep). And when i dose, 0.5-1 mg is enough to give me the full effects. I see it as truly a next-generation pain killer thats custom made for us with chronic diseases.

I have used buprenorphine non stop for a month and a half (sometimes i stop using it for 24-36 hours to manage tolorance). I have adjusted my diet a little bit and i eat more foods wich help me get to the bathroom, like prunes or soup every day.

With all the positive opiate-relief and energy boost this gives me every day i have never had any major constipation problems yet! So anybody who has problems with their opiate based pills or whatever you take, look into Subutex. It might give you good help in difficult times like it does for me.

Good luck everybody!

Last edited by ChronsSUCKS; 01-15-2009 at 10:39 PM.
02-14-2009, 06:54 PM   #68
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Hi!
Walking is treatment?
"One study found that participants who started walking three times a week experienced an improvement in their symptoms, and a general improvement in quality of life, compared to a control group of people with Crohn’s disease who did not change their usual routine."
http://crohn.blog.hu/2009/02/14/treatment#more943681
03-14-2009, 02:41 AM   #69
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New to this group but I finally made it to the thread I have been scared to read. Pain is my main symptom but untill now I didn't relize how many Crohnies are on pain meds, this is scary for me. I have been trying to tell myself that they will get me on the right med and I will go into remission, now instead of remission or a switch of meds, they hand me pain pills... Im not a Dr but common sense tells a person that if they are in bad pain then something is not right with the main med and so on... Drs learn by reading books, but i seriously think the ... well Crohnie in this case is smarter just by plain experience!
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04-15-2009, 02:19 PM   #70
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My doctors have never been afraid to drug the living hell out of me. Most of the time I suck up the pain but if I need it I always have vicodin or oxycotin on hand. The reason being is that I know the difference between just normal pain and go to the emergency room pain, even if I am on pain medication. The best thing to do is either go to a pain doctor (they exist) or tell your doctor that you can manage your crohn's and you won't mask your symptoms, that you will simply make life liveable again
04-23-2009, 03:37 PM   #71
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I have been seeing a pain management specialist for two years and it was actually my referral to her that got me started in the right direction toward getting a diagnosis for crohn's. My GP had written off all of my symptoms as IBS and told me to take Immodium. Thank goodness I found the pain rehab specialist.

I have taken small doses of Lortab 10/500 for several years now and even though I don't really want to take pain meds forever, I've been reassured by my doc that doing so in monitored situations is fine. I take a fairly low dose--between 2 and 3 tablets a day depending on the pain level, and it has made a world of difference in my functioning and ability to keep up with the goings on in my life. Of course, I'm taking it in combination with several other meds for the crohn's but the Lortab is a critical piece of the medicine puzzle for me.

Initially, the pain medicine was really intended to treat chronic neck/back pain--residual from multiple disk problems and surgery several years ago. However, I found that it also helped treat multiple other problems at the same time and I could cut down on other meds--the acetominiphen in Lortab helps keep the fever under control, the narcotic in it keeps my restless leg syndrome under control (severe problem), the narcotic helps with the joint pain, the medicine is constipating so it slows down the diahrrea, and the narcotic treats my stomach pain in addition to the neck/back pain (which actually is under control now, so I'm primarily taking this med for crohn's and RLS).

I can function on the Lortab whereas Percocet or other meds we've tried knock me out.

My doctor is a pain rehab medicine doctor called a "physiatrist" which I initially thought was a combination between a doctor and a psychiatrist (also an MD, I know--this seemed to be a pretty good combo to me) Come to find out, physiatry is a sub-specialty of medicine and she deals specifically with chronic pain patients and rehabilitation. It's a carefully controlled situation with the pain meds. If I get a prescription and it doesn't work out, I take the remainder in and they count it and flush it. If you aren't taking pain meds for actual pain, they will know it and release you from being a patient there. I like that it is very controlled, that we have frank discussions about the pain medicine, that I check in once a month and they take a "pain inventory," etc. I think that doctors are wise to be hesitant to give out pain meds--unless a person really needs it and then some of them can just be ridiculous. That's why I think a specialist is a good idea.

I can't imagine where I would be right now if she hadn't A. been willing to treat the pain with the correct medicine and B. noticed the probablility of auto-immune disease in me and sent me on the right path to the gastro doc.

I can't imagine having a crohn's diagnosis and not having a pain/rehab specialist on my treatment team. I think it has made a world of difference for me.

I think it's wise to look for a physiatrist if you have these kinds of symptoms. You don't necessarily have to go on pain meds, but he or she will be able to at least monitor the pain situation. I wish you the best with it!

Last edited by hleeann; 04-23-2009 at 03:47 PM.
05-22-2009, 12:12 PM   #72
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so ive had problems sleeping and my friend gave me some of her ambion(sp?) to help me sleep and i take one every night...can you get addicted to that? other then that i dont take pain meds unless i REALLY need them because i dun like how they make me feel...so i dun thiink i needa worry about that but i really hate it when none of my drs will give me pain meds when im really hurting and cant afford to go into the hospital because they are narcotics and i will get addicted you would think they would no by now that i only want MAYBE 10 for a month if im in a lot of pain...idk theyre stupid! im sorry for the rant lol but it made me think of it and it really annoys me!
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05-23-2009, 12:08 AM   #73
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spoon--i was on ambien for a bit cause i have sleep probs too (clearly, as its 1 am lol) and it was kind of scary stuff, so just be careful with it ok?
i had some amnesiac (sp?) things happen--would wake up in the bathroom and not know how i got there, would post things here and not remember doing so, etc. it also made me wayyyy uncoordinated and the event that made me stop taking it was randomly falling in the middle of the night into the stand up shower!
lol its funny now, but people hit their heads and get seriously hurt in bathroom accidents!
more severe can occur too, like sleep driving.

not trying to scare you, just be careful! if it makes you weird, then stop taking it and find something else

i was always anti pain med too. never took them in 10 years with this, no matter how bad it was.
until this past year when it got so bad that i literally could not stand up or get out of bed without them and would throw up every meal.
im afraid of addiction now too. been on them since mid march. not for the same reason though now its pain due to surgery complications

Last edited by kello82; 05-23-2009 at 12:12 AM.
05-23-2009, 12:57 PM   #74
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yea thats happend to me once i had taken an ambion at like 7 and me and my mom decided to watch a movie around 8ish and i dun even remember saying to watch it and i cannt remember it at all! its terrible lol but my mom says i say random stuff too like one time i said i had to go to bed for the pancakes lmao!! i wish i could go to bed and get pancakes^.^
05-24-2009, 12:20 AM   #75
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lol thats funny! yes it does make you pretty loopy and confused.

i think confusing bed with pancakes is ok lmao, but any worse symptoms be careful ok!

on the pain med front--ive just switched today from 10 mg percocet to 4 mg dilauded. the past few days i havent had any relief from the percs....no change in pain at ALL. they used to make me feel great---pain gone and would make me relaxed and able to eat cause i was more comfortable.
for me, any type of pain= no appetite. i think ive even stopped gaining weight cause of it
now its just nothing.
so instaed of upping the dose, the doc switched me.

anyone whos used pain meds long term before:
am i heading down a dangerous path here?

i mean, i dont really see another choice, without pain releif i wouldnt make it through the day atm.
but.....im still worried.

Last edited by kello82; 05-24-2009 at 12:28 AM.
05-24-2009, 06:37 PM   #76
SpoonNinja
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i have a lot of pain sometimes but i cant get relief at all because none of my drs will give me any type of pain meds so i dont eat or do anything till my mom forces me to the er because my drs wont do anything. and believe me i hate taking pain meds i dont like how they make me feel. but sometimes i need them and noone will do anything for me. so when this is happening how should i go about geting my drs to give me a little bit of pain meds they wont give narcotics which would be ok if what they gave me helped but it doesnt. what should i tell or ask them?
05-25-2009, 01:07 AM   #77
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i honestly dont know how to ask. i feel like any time i do theyre just sitting there thinking "ok shes 19, shes gonna get high and sell them to her friends...."
since surg though my doc has kind of just been getting them for me without too much grief, we will have a discussiona bout my pain level, and he knows what i need,

maybe when it gets bad just call and tell him how bad it is? they can do things like give you just a few day supply. it helps a lot if you can put a number on your pain level. i HATE that question, cause its so subjective and one minute you can be in pain and then the next be ok, normal crohns pains were waves of it for me. but a number gives them something to judge besides "its really bad". and my dr knows be by now, that i never never ever say its a 10, so the couple times i have, he can compare it to all the other times.

um, does that make sense or even help at all? i just woke up, so im pretty fuzzy, im sorry.
just talk to him is my main advice i guess. but im not too qualified to give this advice as i havent had this experience at all until now, im still learning too.
05-26-2009, 06:20 AM   #78
SpoonNinja
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yea i get what your saying but my dr now refuses to give any type of pain meds and wrote a letter to my primary that he didnt want me to have pain meds because of my crohns so i think ima get into a diff one when i get my new insurance thing. i hate the number thing too because mine comes in waves to and it can be horrible one min and tolerable the next. its frustrating because if its not hurting bad the moment they ask my # and i say what it is when it does hurt they give me a look like im just trying to getpain meds so idk i do no that there is 4 days of school left so im doing all my exams right now plus i have my lovely monthly friend soooooo as soon as school is out my mom is making me go into the hospital. its annoying...
05-26-2009, 08:33 AM   #79
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well im glad youve only got 4 days left, but sucks that you have to run to the hospy right away.
forgot to mention, for a while my gi didnt want to give me the pain meds casue he said it would "mask the symptoms". its like, duh thats the point, its supposed to. but i guess he wanted to find out what was going on before just taking meds all the time that wouldnt make it easy tot track if i was getting worse or not.
that was before i decided to go for the surgery. once we knew the state of everything and what we were gona do, it made no sense to have me wait out the weeks in pain when we already knew where i was heading.
aw keep us updated on if you go to the hospy and what they decide to do
05-26-2009, 09:45 AM   #80
SpoonNinja
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can do ^.^
07-29-2009, 04:40 AM   #81
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kello82 said:
i honestly dont know how to ask. i feel like any time i do theyre just sitting there thinking "ok shes 19, shes gonna get high and sell them to her friends...."

maybe when it gets bad just call and tell him how bad it is? they can do things like give you just a few day supply. it helps a lot if you can put a number on your pain level. i HATE that question, cause its so subjective and one minute you can be in pain and then the next be ok, normal crohns pains were waves of it for me. but a number gives them something to judge besides "its really bad". and my dr knows be by now, that i never never ever say its a 10, so the couple times i have, he can compare it to all the other times.
I know exactly how you feel...

I have had constant pain of varying degrees and in various abdominal locations since last February... yet have had no pain medication prescribed apart from 800mg Asacol (mesalazine) 3 times a day. I was only given this when I was eventually diagnosed with Crohn's in April and they do not seem to have any effect at all.

When seeing my GP or specialist, I have tried not asking, asking subtly and asking openly, yet still haven't been able to get any effective pain-killers. Now I am at my wits' end and don't know what I can do because, even though I am supposed to be in remission, the pain is always there. It interferes with my work, my leisure time, my mealtimes - everything. I'm actually jealous of the other guys that have been given these meds to help with the pain!
08-01-2009, 06:49 PM   #82
ChronsSUCKS
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I just get what i need illegally. Seeing as its my life controlling my pain is my buisness. Doctors are irrelevant when they dont help. While he decides how much of what i should take, imurel or pentasa and remicade, im here in crippling pain for the last year with no difference to my life.

Its so stressful to tell them you are in pain and they just tell you to "breathe". Like they dont even listen.

I get addicted now to opioids that are much stronger than what i would actually need for pain, because weak medicines like Tramadol arent available outside the hospitals. But at least it's my choice, and i can choose if i want to live in pain or with addiction.

At least addiction pains can go away with a little bit of money, while against your own body you dont stand a chance.
08-02-2009, 02:03 PM   #83
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albertjames said:
Addiction is a psychological phenomenon where a patient takes more medicine than they actually need. And then they become obsessed with taking more medicine, and obtaining more medicine, even when they're having serious side effects and maybe making them ill. We know from treating chronic pain in adults and in children that addiction is rare in adults, and it's extremely rare in children.
You just copied and pasted that from here: http://abcnews.go.com/Health/LivingW...ory?id=4052380

...and I would argue that it's a very, very poor description of addiction!
08-02-2009, 05:40 PM   #84
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ChronsSUCKS said:
I just get what i need illegally. Seeing as its my life controlling my pain is my buisness. Doctors are irrelevant when they dont help. While he decides how much of what i should take, imurel or pentasa and remicade, im here in crippling pain for the last year with no difference to my life.

Its so stressful to tell them you are in pain and they just tell you to "breathe". Like they dont even listen.

I get addicted now to opioids that are much stronger than what i would actually need for pain, because weak medicines like Tramadol arent available outside the hospitals. But at least it's my choice, and i can choose if i want to live in pain or with addiction.

At least addiction pains can go away with a little bit of money, while against your own body you dont stand a chance.

I feel for you and completely understand your situation. I was given some 'left over' tramadol by someone who was caring for a relative who than passed away. It was very effective at easing my pain, but, being opioid-like, you can become physically addicted to it. I now know that you need to taper off after prolonged use. As you say though, addiction can be managed with other drugs, thus minimising any nasty withdrawals...


May I ask what drugs you obtain through illegal channels?

It would also be interesting to hear other peoples' views on using drugs that our governments deem 'bad' for us. Speaking as a libertarian, I believe people should be allowed to do what ever they choose as long as it doesn't directly harm anyone else.
08-02-2009, 08:30 PM   #85
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Im not saying this to recommend it. i would definately NOT recomend taking anything without your doctor knowing. Anyway i just take Buprenorphine basicly. Its used medical when you want to quit Heroin, but in sweden its sold illegally also (people abuse it and get addicted, and the withdrawal is longer and worse than Heroin).

When you use something for pain, you really have to use it for pain. Then you detox from it when you're feeling healthy.

I have had many withdrawals from it, and stopped using many times. Its something psychological, because of my personality im not scared of being addicted. Because i probably would never take it if i wasnt in pain. It feels as if i can always get addicted and then quit when my health is okay.

Thats how i started my current flare up. I just thought to myself that "okey ill make a tradeoff, i'll be pain free but i will have to deal with the addiction later". But being sick lasted longer than i thought so ive had to quit a few times just to give my brain a rest for a couple of weeks.

For me being sick means i will be depressed. You go long times disconnected from your normal life, and get to the point where you feel like you have no control over anything. The poioids help for that aswell, but thats also the problem. Anybody can get addicted and continue for the rest of their life.

Because who IS in control of their life, really? Even if you're the most powerful person in the world you still feel out of control, right?
08-02-2009, 08:30 PM   #86
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Remember the biggest problem with opiates! It replaces your ENDORPHINE, so your brain eventually stops making it. Thats what makes you addicted and feel like you do when you quit. After long recreational use the endorphine is gone forever and you have to use methadone or bupe for life.

When that part of the brain stops working you can never feel happy about anything again. So you have to quit now and then and be in pain for a few weeks. Probably having the disease and at the same time having drug depression is 10x worse situation.
08-12-2009, 02:17 PM   #87
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GNC Crohn's Man said:
Unless your in "real pain" they give you Toradol now... It is a strong NSAID and not addicitive... It is not safe for long term use though....

how much does a person have to suffer b4 they consider it "real pain" ? my 13 y/o daughter is in the hospital 2 weeks now and not getting any better and all shes getting is toradol and yes i read why they cant give narcotics during active flare up but is there ANYTHING else they or I can do to help my girl? shes literally screaming in pain half the day.. it comes and goes. the kid in the next bed has similar symptoms and hasnt even been diagnosed yet and is on oxy and morphine. I dont know how much longer either of us can take it. shes been on steroids for almost 2 weeks and its not helping and usually shes on pentasa, azathioprine, cortifoam and iron for the constant blood loss.
08-12-2009, 04:07 PM   #88
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Hi Lesleymarie,

Am so sorry your daughter is suffering as she is. I know it may seem that the kid in the next bed is receiving better pain relief with similar symptoms and she is suffering so much in comparison.

I have some thoughts on this so bear with me ok?

Firstly from your post I take it your daughter has either crohns or UC? As such she has a definative diagnosis and they need to figure out the cause of her pain as fast as possible.

My thoughts on this are if she has been on steroids for going on 2wks and its not helping despite what she is normally on then you both need to listened to and fast!

I hear your frustrations very much in your post and totally understand that you feel unable to take her pain away and have to continue to watch her.

Have they tried an antispasmodic drug - i.e is the pain being caused by severe spasm?

Is she able to eat and drink? If so and it is severe spasm causing the pain to come and go with such intensity have you tried peppermint tea or getting her to sip warm peppermint oil (it is prescribable and it is not the usual peppermint oil you buy)

Can you be more specific about the area she is having the pain in? From what you are saying that she uses cortifoam I am assuming she has her IBD in her large bowel? Are they doing anything about the ongoing blood loss and is it much?

I am a nurse Lesleymarie so some of my questions may seem odd honey but bear with me as I am just bouncing ideas out here and pondering out loud ok?

Half the problem with pain also is that you tense up and tensing up makes the pain worse. Have they offered her some relaxation sessions? So that when the pain hits she has a way of helping to manage her pain by either working through it with her breathing or you talking her through it so she is less distressed and panicky? I know very well you will be comforting her when she is in pain lesleymarie but talk to her and tell her that things are going to change and for the better - what I am getting at here is that we often say "it will pass soon", "things will get better". Rather than doing that say to her "I am working with the doctors and nurses to ensure the pain is eased and that we get you better" and do this at a time when she has no or minimal pain so she clearly understands. Also tell her you know she will have pain episodes but you will be there to help her cope until things "kick in". Show her in this manner what you are doing. By using more positive language she will feel things will come under control sooner and it will help her to cope believe me. Does that make sense?? When you are so stressed it transmits to your child - you know this lesleymarie you dont need me to tell you eh? If she sees you are more sure of how things are going to work out she will relax more. This isnt meant to sound preachy by any means please understand that! I am trying to give you ideas on how to lay groundwork and a foundation to move forwards on..

Have you tried heat on the area like a hot water bottle so the pain is worked on constantly and not just when it hits so that the muscles are more relaxed?

Are they keeping a note of how long the pain lasts, where it is and scoring its intensity i.e on a scale of 1-10 for instance? So that they can see any trends.

Have they discussed any other treatment options with you?

How long has she been in hospital and how long has she been in this state?

You know your daughter lesleymarie keep on speaking up on her behalf. Keep at them each time about how she has been and your concerns and keep pushing them if you dont think they are doing enough. Dont bring up the kid next door because they wont take on board comparisons and are just interested in looking at her.

Point out to them that there must be better management of her pain, that its unfair for her to continue like this etc etc and ask if there is a pain management team that specialises in children that could perhaps help her to cope in the meantime.


Hope my ramblings help (have just come in from a busy day at work) and that your daughter gets some relief soon and that you also become less distressed as a result.

Am sure that the others here will come up with some thoughts too.

Thinking of you both ((hugs))
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IF YOU DON'T JUMP YOU WONT EVER LEARN TO FLY





Brittle asthma 1996, Hypothyroidism 1998, Severe Crohns ileitis 2006 , Severe IBS 2007, Inflammatory/Rheumatoid Arthritis 2008, Sebhorreic Eczema and Folliculitis 1992, Roseca, steroid induced acne and Hidradenitis Suppurativa 2008, Multiple allergies and food intolerances diagnosed from 2003. Newly diagnosed fibromyalgia Dec 2009. Newly diagnosed calcific tendonitis Jan 2010. Chronic Pain diagnosed Dec 2010.

Last edited by soupdragon69; 08-12-2009 at 04:29 PM.
08-12-2009, 05:03 PM   #89
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lesleymariep said:
how much does a person have to suffer b4 they consider it "real pain" ? my 13 y/o daughter is in the hospital 2 weeks now and not getting any better and all shes getting is toradol and yes i read why they cant give narcotics during active flare up but is there ANYTHING else they or I can do to help my girl?
Sorry to hear all that. it must be very distressing to see your daughter have to endure that... it's bad enough when you're 33 let alone 13

I am astounded they have prescribed Toradol as it's an NSAID... and I am told NEVER to use them by my nurse, specialists and doctors. The best I get use is co-codamol which is codeine and paracetamol (I don't think you can even get any codeine-based pain killers in the US without a prescription)

From wiki: NSAIDs are never to be used in individuals with Inflammatory Bowel Disease (e.g., Crohn's Disease or Ulcerative Colitis) due to their tendency to cause gastric bleeding and form ulceration in the gastric lining. Pain relievers such as paracetamol or drugs containing codeine (which slows down bowel activity) are safer medications for pain relief in IBD.


As I said above, I have found Tramadol very effective for pain relief but the withdrawals, even after a month or two of low daily doses, can be horrible.
08-12-2009, 05:04 PM   #90
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I am very surprised though that there has been no use or even testing (that I can find online) of Ketamine to specifically treat Crohn's pain. Besides being a strong anaesthetic / analgesic, it is non-addictive, easily administered, has a massive dosage range, does not interfere with GI function plus it has the added benefit of having some anti-depressant properties.

The drug is a perfect candidate for managing the pain from Crohn's IMO and something like this would be ideal: http://www.medicalnewstoday.com/articles/118181.php

http://www.javelinpharmaceuticals.com/pmi150.html
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