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21 PILLS A DAY GRRRRRRRRRRRR
need to just write
depressed.
this dumb being sick.
the burning-my dr tells me-is most likely not even acid reflux or anything related--it is probably nerve-related--which is why the ativan helps with the horrible strong chronic heartburn(usually from 11 am-11 pm-food/whatever does not play a role--it is just always there)-unless i take 1 ativan at 7 am (i can drive after taking only 1) /2 ativans at 11/ and 2 at 3 and ambien at 7 (never get to sleep til like 4 hours after i take the ambien anyway) also.. still take aciphex 20 2x day -even tho the heartburn may not be related to acid. but..til i see dr when i hopefully get this pillcam done..i can move forward.
on the heartburn he mentioned that i need to talk w my psychiatrist..see about meds like elavil or something like that. but dont want to go on any new major meds til i get the pillcam results. why start something and have it not work well with the other stuff if needed.."IF" limbo---that is what is aggravating here.....
in the meantime i am still waiting for my dumb insurance to approve a test i need (pillcam)-to see if the inflammation in the terminal ileum is in remission--not inflamed-and/or if there are any other areas of inflammation in the small bowel that couldnt be seen / gotten to via the colonoscopy.
once i get this test done-my dr will know if the pentasa is working well enough -and that i dont need other meds like 6mp or remicade. also-whether or not i can get off the entocort (crohn's specific steroid)i have been on it 8 weeks already and just started into week 9.
also: lower ab cramps.
some fatigue.
even my vision has been a bit "off" (doubling at times) --which is an offshoot of crohn's for some people.
as for cramps: my dr said i probably have ibs as well as ibd (crohn's)
and that this is not uncommon.
fine...but it sucks.
another "thing"
he called in some med for the "ibs-stuff"-forget the name-something like liprox--for cramps etc.
then-there are my usual meds --prozac concerta (for add/depression) and birth control pills.
i still don't eat much at all. had 3 scramble eggs yesterday. that's it--except for the 2 or 3 bottle of ensure.
i miss food.
i feel yucky most days-..sometimes mornings are ok--but..man..when will this -all these things-go into some sort of remission>??
it is so frustrating and it plays on my depression.
or..maybe it isn't "depression"--but i do feel discouraged at times.
yeah-i've been a little active. got to studio a few times. work here at apt. been to visit my parents.
but havent seen friends
i cancel usually because i feel "off"
or have to go to dr.
such a *&^*^*& mess.
i know..i know..it is all a matter of finding the meds that work
i did JUST get dx'ed 2 months ago..
i know i need to be patient-
i am still able to work here-
but-i am losing it
i usually can ignore it if i dont feel well and just go about my day--but this is different..
it isn't so easy.
i am not one to give in to this crap.
but..
sometimes fighting makes me upset-and want it all better now
not later
i need to let myself know the next bit of time...
what?
i dont know
i miss friends
maybe it's time to see people even if i feel yucky..
i have been bad at this.
at accepting it
at dealing with it
i need to accept it--
i mean REALLY accept it
accept that it may take time til i get meds that work-and that there will be times when the crohn's can get worse and/or go into flare-and i;'ll need to find new meds all over. and accept it is not just the crohn's but also this and this and that and...oh..just--a true drag
'but--i need to learn to know how much i can/cant do RIGHT NOW
and..i need to try to eat.
i love food
but this thing has me so so messed up.\\
i miss full time work the most--and just being wild and living. i am not good at this resting stuff. ( but--feel too crappy to do too much..if i push it-it seems to come back at me..like 2 days ago: studio0running around --good day--yesterday..cramps burning loose stools and low grade fever. yeah..not in the hospital-so-it could be much worse--i know this..but--just
i hope no one here think all i do is complain..i hate being like this..
anyway..just needed to vent..
just..
get things out
need to just write
depressed.
this dumb being sick.
the burning-my dr tells me-is most likely not even acid reflux or anything related--it is probably nerve-related--which is why the ativan helps with the horrible strong chronic heartburn(usually from 11 am-11 pm-food/whatever does not play a role--it is just always there)-unless i take 1 ativan at 7 am (i can drive after taking only 1) /2 ativans at 11/ and 2 at 3 and ambien at 7 (never get to sleep til like 4 hours after i take the ambien anyway) also.. still take aciphex 20 2x day -even tho the heartburn may not be related to acid. but..til i see dr when i hopefully get this pillcam done..i can move forward.
on the heartburn he mentioned that i need to talk w my psychiatrist..see about meds like elavil or something like that. but dont want to go on any new major meds til i get the pillcam results. why start something and have it not work well with the other stuff if needed.."IF" limbo---that is what is aggravating here.....
in the meantime i am still waiting for my dumb insurance to approve a test i need (pillcam)-to see if the inflammation in the terminal ileum is in remission--not inflamed-and/or if there are any other areas of inflammation in the small bowel that couldnt be seen / gotten to via the colonoscopy.
once i get this test done-my dr will know if the pentasa is working well enough -and that i dont need other meds like 6mp or remicade. also-whether or not i can get off the entocort (crohn's specific steroid)i have been on it 8 weeks already and just started into week 9.
also: lower ab cramps.
some fatigue.
even my vision has been a bit "off" (doubling at times) --which is an offshoot of crohn's for some people.
as for cramps: my dr said i probably have ibs as well as ibd (crohn's)
and that this is not uncommon.
fine...but it sucks.
another "thing"
he called in some med for the "ibs-stuff"-forget the name-something like liprox--for cramps etc.
then-there are my usual meds --prozac concerta (for add/depression) and birth control pills.
i still don't eat much at all. had 3 scramble eggs yesterday. that's it--except for the 2 or 3 bottle of ensure.
i miss food.
i feel yucky most days-..sometimes mornings are ok--but..man..when will this -all these things-go into some sort of remission>??
it is so frustrating and it plays on my depression.
or..maybe it isn't "depression"--but i do feel discouraged at times.
yeah-i've been a little active. got to studio a few times. work here at apt. been to visit my parents.
but havent seen friends
i cancel usually because i feel "off"
or have to go to dr.
such a *&^*^*& mess.
i know..i know..it is all a matter of finding the meds that work
i did JUST get dx'ed 2 months ago..
i know i need to be patient-
i am still able to work here-
but-i am losing it
i usually can ignore it if i dont feel well and just go about my day--but this is different..
it isn't so easy.
i am not one to give in to this crap.
but..
sometimes fighting makes me upset-and want it all better now
not later
i need to let myself know the next bit of time...
what?
i dont know
i miss friends
maybe it's time to see people even if i feel yucky..
i have been bad at this.
at accepting it
at dealing with it
i need to accept it--
i mean REALLY accept it
accept that it may take time til i get meds that work-and that there will be times when the crohn's can get worse and/or go into flare-and i;'ll need to find new meds all over. and accept it is not just the crohn's but also this and this and that and...oh..just--a true drag
'but--i need to learn to know how much i can/cant do RIGHT NOW
and..i need to try to eat.
i love food
but this thing has me so so messed up.\\
i miss full time work the most--and just being wild and living. i am not good at this resting stuff. ( but--feel too crappy to do too much..if i push it-it seems to come back at me..like 2 days ago: studio0running around --good day--yesterday..cramps burning loose stools and low grade fever. yeah..not in the hospital-so-it could be much worse--i know this..but--just
i hope no one here think all i do is complain..i hate being like this..
anyway..just needed to vent..
just..
get things out
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