Ok so some of the fellow nerds will get that reference 
Hello my name is Brian. I am 26 years old and have had crohn's for a while. When I was younger every few months I would get really terrible stomach aches and be in the bathroom for a while. I just thought that was normal and didn't think much about it. Several years ago I began having trouble going to the bathroom. I went through all of the fun tests and found out I have crohn's disease in my intestine and dormantly in my colon.
I was prescribed Endocort but that only worsened my constipation. I then was put on Asacol (three pills, twice a day) which helped me get regular. I still have flareups that get really bad (I say I'm crohnzin which is why thats my login name).
I also have bladder issues. I believe as does my doctor that they are directly related. I know that if my crohn's is acting up and/or I dont have a good bowel movement, my bladder is going to act up.
It took a few years and a few bad doctors to finally find a good doctor who ran the right tests and found I have overactive bladder with cystitis and incontinence. I have enough scar tissue in my bladder that it nearly has spit my bladder in two. This is a problem that flares up more often and I'm having a harder time getting a hold of. It is a lot better though after being put on Elmiron (three times a day). I used to have to pee every 15-20 minutes at best and every 2-3 minutes at worst (that would only last an hour or so thankfully.) Now I am at every hour or so and at best as long as 2 hours or more. It makes a big difference but I still suffer from incontinence after I pee which is not fun.
I have recently started a few supplements to try and help with Crohn's (I feel like getting the Crohn's in optimal shape will also have significant impact on my bladder.)
I take 8 billion Florasmart probiotics, once a day. I've noticed a difference. My stomach feels much more at peace. I've been having horrible pain throughout my body, particularly in my neck that has improved significantly since I started the probiotics.
I take Completegest a digestive enzyme. I've noticed a difference although it makes my stomach hurt a bit, so I might try another brand.
I take omega fish oils called coromega. I haven't noticed a real difference.
I want to take multivitamins but that is a challenge. I have read that B6 and other vitamins help crohn's and the malabsorbtion that comes along with crohn's. However I have been told by some that vitamin c can irritate the bladder so I'm kind of unsure what to do. I've just been weighing my options and figuring out a multivitamin to try and see if it affects my bladder negatively or not. I know I am nutriently deficient.
I forgot to mention I have also had heart palpatations for years. Sometimes my heart flutters but the worst problem is where my heart beats very hard. Not fast per say, but like someone is punching the inside of my chest. It happens at night generally (like last night) and can keep me up for a while. I talk to a guy who says its perhaps from eletrolyte imbalance and/or a nutrient deficiency.
One problem I have had for years that may or may not be related is a body heat problem. I am feel very warm often. My feet get so hot that I cannot wear sneakers. Other parts of my body get just as warm as well. Even in the winter I may feel the cold of the wind but still feel hot as well (if that makes sense.) If you just touch my ear it turns bright red within seconds and burns for hours subsequenly.
As a result of liquids basically going right through me into my overactive bladder I do not drink a whole lot. It also takes a whole lot for me to sweat. I went to the beach the other day in 85 degree weather and only sweat in my armpits. I used to work out with weights and running the treadmill and barely if at all sweat. The body heat thing has been a hard thing to live with. I don't know if all these things are related or not, but thats my story.
Hello my name is Brian. I am 26 years old and have had crohn's for a while. When I was younger every few months I would get really terrible stomach aches and be in the bathroom for a while. I just thought that was normal and didn't think much about it. Several years ago I began having trouble going to the bathroom. I went through all of the fun tests and found out I have crohn's disease in my intestine and dormantly in my colon.I was prescribed Endocort but that only worsened my constipation. I then was put on Asacol (three pills, twice a day) which helped me get regular. I still have flareups that get really bad (I say I'm crohnzin which is why thats my login name).
I also have bladder issues. I believe as does my doctor that they are directly related. I know that if my crohn's is acting up and/or I dont have a good bowel movement, my bladder is going to act up.
It took a few years and a few bad doctors to finally find a good doctor who ran the right tests and found I have overactive bladder with cystitis and incontinence. I have enough scar tissue in my bladder that it nearly has spit my bladder in two. This is a problem that flares up more often and I'm having a harder time getting a hold of. It is a lot better though after being put on Elmiron (three times a day). I used to have to pee every 15-20 minutes at best and every 2-3 minutes at worst (that would only last an hour or so thankfully.) Now I am at every hour or so and at best as long as 2 hours or more. It makes a big difference but I still suffer from incontinence after I pee which is not fun.
I have recently started a few supplements to try and help with Crohn's (I feel like getting the Crohn's in optimal shape will also have significant impact on my bladder.)
I take 8 billion Florasmart probiotics, once a day. I've noticed a difference. My stomach feels much more at peace. I've been having horrible pain throughout my body, particularly in my neck that has improved significantly since I started the probiotics.
I take Completegest a digestive enzyme. I've noticed a difference although it makes my stomach hurt a bit, so I might try another brand.
I take omega fish oils called coromega. I haven't noticed a real difference.
I want to take multivitamins but that is a challenge. I have read that B6 and other vitamins help crohn's and the malabsorbtion that comes along with crohn's. However I have been told by some that vitamin c can irritate the bladder so I'm kind of unsure what to do. I've just been weighing my options and figuring out a multivitamin to try and see if it affects my bladder negatively or not. I know I am nutriently deficient.
I forgot to mention I have also had heart palpatations for years. Sometimes my heart flutters but the worst problem is where my heart beats very hard. Not fast per say, but like someone is punching the inside of my chest. It happens at night generally (like last night) and can keep me up for a while. I talk to a guy who says its perhaps from eletrolyte imbalance and/or a nutrient deficiency.
One problem I have had for years that may or may not be related is a body heat problem. I am feel very warm often. My feet get so hot that I cannot wear sneakers. Other parts of my body get just as warm as well. Even in the winter I may feel the cold of the wind but still feel hot as well (if that makes sense.) If you just touch my ear it turns bright red within seconds and burns for hours subsequenly.
As a result of liquids basically going right through me into my overactive bladder I do not drink a whole lot. It also takes a whole lot for me to sweat. I went to the beach the other day in 85 degree weather and only sweat in my armpits. I used to work out with weights and running the treadmill and barely if at all sweat. The body heat thing has been a hard thing to live with. I don't know if all these things are related or not, but thats my story.
Last edited:
