Crohn's Disease Forum » Treatment » Remicade/Infliximab » I come!

08-08-2010, 05:10 PM   #1
New Member
Join Date: Apr 2010 I come!

Well it looks as though tomorrow morning I will begin my journey with Remicade.

To give you guys a little back story, I've been on Prednisone for the last 4 and a half months slowly tapering (now on 10mg a day) and have actually been feeling great minus a few side effects (mostly joint and leg pain). My BMs are normal, I eat pretty much whatever I want without stomach pains...its really been unbelievable.

However, as we all know...steroids are not a long term option for Crohn's and my doctor has recommended I start Remicade so he can ween me completely of the prednisone. I believe the plan is to keep me on Remicade for about 6-8 months and then move me to 6 Mercaptapurine which will be my long term med to keep me in remission.

I have to admit I am a little nervous about getting my infusion (after reading about many of the short and long term side effects) and also hate that it takes so long to do (they said about 2 1/2 hours) however if this is the next step that will ultimately put me into FT remission then I will do whatever it takes.

It's great having such great support here and it looks as though Remicade has really been a miracle drug for a lot of you - which makes me feel a lot better about it.

I will definitely keep you guys updated on my epic journey to Mt. Remicade ;-)
08-08-2010, 08:34 PM   #2
Lisa's Avatar
Join Date: Apr 2010
Location: New York

My Support Groups:
So your Doc will be only giving you remicade for short term?...just remember, you if it does work great for you and you stop, you may not be able to go on it again if you flare....

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
08-09-2010, 05:15 AM   #3
Super Moderator
DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
Hi Drummer,


Wishing you the very best of luck,
Mum of 2 kids with Crohn's.

Crohn's Disease Forum » Treatment » Remicade/Infliximab » I come!
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