I have put our story because my husband Pete has Crohn's but I must say it does effect other people in the home. He has had bowel problems for about 3 years but last year started with more toilet runs, pain, more blood etc. After the usual tests then a spell in hospital it was diagnosed as Crohn's disease. After lots o f steroids last February seen another stay in hospital. He had a blood infusion when in there. My mother had a heart attack at the same time so it was a case of running from one side of the hospital to the other.:shifty-t: He lost 3 1/2 stone.
Pete is my carer as I have epilepsy and diabetes but rolls have now reversed and there are times when two cards resting against each other and hoping one doesn't fall pushing the other over!!
In Feb he was started on Azathiaprine but his white cell went all to pot and he was taken off it. Three weeks ago he started 6-MP. He has been very tired and nauseaus so I rang the GP to see if they was a tablet that would take the sickly feeling away. Whilst he was talking he said he noticed that Petes red cell count was getting low - it was 5 when started last week was 3.9 and yesterday was 3.1. No wonder he was feeling sluggish and out of breath. A call from the hospital came this morning to say stop the treatment and come in on Monday. So we start again I am keeping away from brickwalls incase I bang my head against it. Roll on the time when I can get a little back of my old husband and walk the dog over the moors, dig the garden and generally go places without forward planning allsorts . So sorry to have rambled on but this is the site were people know what we are talking about. Debs
Pete is my carer as I have epilepsy and diabetes but rolls have now reversed and there are times when two cards resting against each other and hoping one doesn't fall pushing the other over!!
In Feb he was started on Azathiaprine but his white cell went all to pot and he was taken off it. Three weeks ago he started 6-MP. He has been very tired and nauseaus so I rang the GP to see if they was a tablet that would take the sickly feeling away. Whilst he was talking he said he noticed that Petes red cell count was getting low - it was 5 when started last week was 3.9 and yesterday was 3.1. No wonder he was feeling sluggish and out of breath. A call from the hospital came this morning to say stop the treatment and come in on Monday. So we start again I am keeping away from brickwalls incase I bang my head against it. Roll on the time when I can get a little back of my old husband and walk the dog over the moors, dig the garden and generally go places without forward planning allsorts . So sorry to have rambled on but this is the site were people know what we are talking about. Debs