I was diagnosed with Ulcerative Colitis affecting the entire colon in about 1972. It was managed with Salazopyrin and prednisone and regular colonoscopies. After one such examination in 2008 I was advised that there was cancer present and just starting and that I should have an operation within 6 months. I was told that a re-section was not an option and that I would need a total colectomy as the remaining colon was not in good enough condition to re-section. I had the operation within a month and was told that the cancer was particularly aggressive and that we had only just got it in time, so glad I took the first available appointment and didn't take my time to mull it over! I had a temporary ileostomy and then a reversal. Since then I have been having constant trouble with infections and am not happy about being on anti-biotics all the time, I am currently on Ciproflaxin for a two week course and the surgeon suggested pro-biotics so am also taking VSL#3 and have been doing so for some months although it does not seem to prevent the infection recurring. I have just recently also been diagnosed with rosacea and the GP tells me this is the UC symptoms presenting in a different way, so I was disappointed to find that after getting rid of my colon I did not get rid of the colitis. I went looking it up and came across this support group.
Thanks for the support and shared knowledge and experience.
Heb (in Australia)
Thanks for the support and shared knowledge and experience.
Heb (in Australia)
