:depressed: Today has by far been one of my worst for a long, long time. I am miserable. I've lost count of how many times I've been to the bathroom today, but my bottom tells me far too many. My belly is so distended, it is absolutely painful. Luckily, I am able to pass the gas. They're not just little toots, I'm talking long, drawn out gas expulsions, or explosions if you ask my daughter. :stinks: :depressed:I have been getting bloated after everything I eat lately. In fact, this past Friday, I went to ER because the pain just got to be too much. I hate the idea of going on Prednisone, but I gave up and decided I needed relief, no matter how I was able to get it. They didn't give me Pred., not sure why, but did give me pain meds. Started with Fenanyl, but didn't do much for the pain, then switched to Dilaudid. At first the Dilaudid helped, but because I am allergic to Morphine, and Dilaudid is a deriviative of Morphine, it caused me to get a severe, and I mean severe headache. Plus I started vomiting. It was so bad, I decided to stop pressing button to get the Dilaudid. I would rather deal with the pain of the CD, than the nausea, vomiting, and terrible headache. They finally switched me back to the Fentanyl. It helped a little with the pain, but at least the nausea, vomiting and headache (with help of double dose Compazine & Imitrex) went away. My usual GI was not on-call this weekend, so another doc from his office and my CR sugeon decided after reviewing my CT scan that the best approach at this time would be to start me on Humira. They wanted to do it then in the hospital, but it's a medication that is not kept on-hand in the pharmacy. It has to be special ordered. Now I'm waiting for it to be delivered here to me at home.
Honestly, I'm a bit skeptical, and voiced my concern regarding this as well to my CR surgeon. I have not had success with any of the prior meds. The only ones I haven't tried are the Biologics. I am ready to feel better, but I'm also a realist. I have severe stricturing at my anastomosis. This happens to me all the time, thus the three prior resections. I truly believe that surgery is a better option for me. I just don't forsee this medication doing much for the narrowing. Frankly, I can deal with most of the symptoms that come with CD, but when there is narrowing involved, it adds a whole other dimension to the suffering. The diarrhea, gas, bloating and pain from that is unbearable. Not a day goes by that I don't experience this misery, unless of course, I go on a pure liquid diet. I did feel much better while in hospital after being on clear liquids (and the pain meds), but as I have increased my diet to include even low residue foods, the diarrhea,gas, bloating and pain have come back with a vengeance. I just don't want to have to deal with this for an extended period of time, especially while I wait to see if Humira can help my bowel heal. I do understand the doc's concern about me losing too much of my bowel and the impact that will have on my overall health. They say there is only so many times the bowel can be cut and reconnected without causing problems. I already had a leak at my anastomosis, which we didn't even know about until they surgeon was inside of me.
Maybe I'm just a pessimist, impatient, or both. I just want to feel normal again. I feel like most of my life is spent in bed. I almost never feel well and I am tired of telling my children that mommy doesn't feel well. My health is already having an impact on their lives. My children often ask me how my tummy feels and if my butt hurts today. I feel I'm missing so much. I'm plain tired of being tired. Does anyone else feel the same.
Maybe I just need to gain a different perspective. Humira may very well improve my condition, I just don't want to be on it for a few months only to find it's not working and then have to have surgery anyway. If I do need to have surgery, I just want it done and over with. I want to be healed and feeling good for the upcoming holiday season. I've been in this flare for almost a year now, and I am done with it, both physically and mentally. :voodoo:
Thanks for lending an ear, or eyes I guess.
I hope everyone else's day is going better.
Honestly, I'm a bit skeptical, and voiced my concern regarding this as well to my CR surgeon. I have not had success with any of the prior meds. The only ones I haven't tried are the Biologics. I am ready to feel better, but I'm also a realist. I have severe stricturing at my anastomosis. This happens to me all the time, thus the three prior resections. I truly believe that surgery is a better option for me. I just don't forsee this medication doing much for the narrowing. Frankly, I can deal with most of the symptoms that come with CD, but when there is narrowing involved, it adds a whole other dimension to the suffering. The diarrhea, gas, bloating and pain from that is unbearable. Not a day goes by that I don't experience this misery, unless of course, I go on a pure liquid diet. I did feel much better while in hospital after being on clear liquids (and the pain meds), but as I have increased my diet to include even low residue foods, the diarrhea,gas, bloating and pain have come back with a vengeance. I just don't want to have to deal with this for an extended period of time, especially while I wait to see if Humira can help my bowel heal. I do understand the doc's concern about me losing too much of my bowel and the impact that will have on my overall health. They say there is only so many times the bowel can be cut and reconnected without causing problems. I already had a leak at my anastomosis, which we didn't even know about until they surgeon was inside of me.
Maybe I'm just a pessimist, impatient, or both. I just want to feel normal again. I feel like most of my life is spent in bed. I almost never feel well and I am tired of telling my children that mommy doesn't feel well. My health is already having an impact on their lives. My children often ask me how my tummy feels and if my butt hurts today. I feel I'm missing so much. I'm plain tired of being tired. Does anyone else feel the same.
Maybe I just need to gain a different perspective. Humira may very well improve my condition, I just don't want to be on it for a few months only to find it's not working and then have to have surgery anyway. If I do need to have surgery, I just want it done and over with. I want to be healed and feeling good for the upcoming holiday season. I've been in this flare for almost a year now, and I am done with it, both physically and mentally. :voodoo:
Thanks for lending an ear, or eyes I guess.
I hope everyone else's day is going better.
!!