Crohn's Disease Forum » Support Forum » Vent Away » Sick and tired!!!!

10-14-2010, 04:41 PM   #1
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xoxava's Avatar
Join Date: Jul 2010
Location: North Carolina
sick and tired!!!!

okay so i think its time for a good vent. i am SO SICK AND TIRED OF THIS. i am seriously going to my wits end!! i have been in and out of the hospital and ER. my new GI took me off ALL medication.. which i think was a horrible idea and now i feel even worse. the d is back, i cant sleep, my legs hurt when i walk, my face is broken out, im chubby, and when i eat i just want to throw up!!! how can anyone expect someone to have a decent life with this crap? just listen to me already!! i feel like this GI is doing absolutely NOTHING. i actually was scheduled for a apt with him this friday and i cancelled. why waste my time and money when he is sitting there telling me he has no idea.. wow ok well thank you doc. my primary do found the crohns and seems to know a hell of a lot more then this guy who is suppose to specialize in this area!!! i dont want to work. i dont want to go to school. i am annoying my entire family im sure. i was "ok" for about 2 weeks, and now everything is back. my stomach still hurts but i wonder if its still as bad, or if im just used to the pain now because ive had to put up with it since may of this year. its getting really old. i feel like an eating disorder is coming along cause everytime i eat i poop or throw up.. im chubby from this stupid CRAP PREDNISONE that i will never take again. and i feel like everyone is judging me and all i ever hear is "wow to be so sick you look great... or your so sick but yet you still look good" NO I DONT. ive never looked like this in my life and they have no idea the pain im going through with the "stomach aches" UGH. ok. im done. thank you. i really needed that. I HOPE EVERYONE IS DOING MUCH BETTER THAN I
10-14-2010, 05:54 PM   #2
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Join Date: Sep 2010
Location: highland, Michigan

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I wish I could tell you it will get better, but I can't. Maybe it's time to ask you GP for a referral to a new GI? There has to be the right answers out there somewhere. I'm sorry you are having such a rough time. It does feel good to just let it out though, doesn't it. It doesn't really change things, but a good scream can do wonders for the stress level. Come often, vent all you want/need. Believe me, we all know how you feel. Day in and day out of CD can wear a person thin...or chubby if your on Pred.
10-14-2010, 08:35 PM   #3
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Join Date: Jun 2010
Location: Texas

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I agree find a new GI. If you have crohn's how can you be without some type of meds. I hope you start feeling better soon good luck
DX: Crohn's in the terminal ileum 1997/2010 in colon
Meds: Humira 40 mg injection weekly
This is my wish for you: Comfort on difficult days, smiles when sadness intrudes, rainbows to follow the clouds, laughter to kiss your lips, sunsets to warm your heart, hugs when spirits sag, beauty for your eyes to see, friendships to brighten your being, faith so that you can believe, confidence for when you doubt, courage to know yourself, patience to accept the truth, Love to complete your life.
10-14-2010, 10:17 PM   #4
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Join Date: May 2010
Location: Alberta
Boy, I am right there with you right now honey!!!! Man the feeling of....., see, crap I can't even think of the word. Other than @#$% off and leave me alone for a while would you Crohn's. I hope thing settle down and you can dig yourself out of the pit it is trying to put you in.
10-15-2010, 01:38 AM   #5
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Entchen's Avatar
Join Date: Mar 2010
If it was time for you to have a good vent, then it's also time to send along a big hug:


Hang in there!
Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
10-15-2010, 02:37 AM   #6
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Join Date: Aug 2010
Location: Fresno, California
Okay, I laughed when I read this post because it's exactly what runs through my head daily. This post can only be amusing to another crohnie because anyone who is healthy would be horrified. Me, I just say Amen, I am right there with you. I am so sick of my life revolving around my rectum. Sorry to be so crass but it's just fact.
Crohn's Disease official diagnosis 2000, problems prior to diagnosis began in my teens

Currently on Humira

Past treatments:

And lots and lots of the devil drug PREDNISONE

"Don't let a disease define who you are"
10-19-2010, 12:20 PM   #7
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Location: Houston, TX, Texas

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I laughed when I read this because I am feeling just that way right this moment! I know it is horrible, but it is so great to have someone else know exactly how I am feeling. I do feel for you. I took myself off all the meds (with docs okay) because they were doing nothing for me. I mean nothing. Hope you feel better soon. Please find a new doctor. I think even if this doc is a good doc, you may have a personality conflict. It has happend to me.
10-23-2010, 07:12 PM   #8
New Member
Join Date: Oct 2010
I can relate! Prednisone sucks. Let's collect all our bottles and have a gigantic bonfire. I'm tapering down from pred right now. Things I will miss....night sweats, chub factor, mood swings...btw your doc is an ass. Time for a change! I hope you have a better day tomorrow

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