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update
hi..
i haven't been on in a bit-so much going on.
anyway-just wanted to update:
i had the pillcam done.
it went well--but the battery in camera ofcourse had to die before it reached the area (terminal ileum) where the inflammation is/was.
good: the rest of my small bowel is ok.
also good:
he thinks due to my symptoms improving-it is time to taper off the entocort (been on it over 3 months -3 pills day)
so for the past week i have been taking 2 pills (entocort)
fair.
good: no diarrhea
bad: lower ab cramping seems worse since off the 1 pill--but maybe it is just me worrying..need to give it time i guess.
also-been very tired since stopping just 1 pill.
is that crazy?
can tapering do that?
i was worried i was getting depressed-so called my psychiatrist to see if i can up my prozac during this tapering time. so-waiting to hear back on that.
it is hard to tell if it is depression or just feeling very tired. i never used to get tired like this. so-it is ..i know i am "off"
still on the ativan-and some other med: chlordiazepoxide 3x day-for the cramps (was having some lower cramping before tapering too--but-not as bad as now)--he thinks i have ibs as well as crohn's. so-i'm on this med for that (it seems similar to the ativan)
i tapered from 5 to 3 ativan-so-i hope to keep on it rather than switch to some drug like elavil. i know it is additive (arivan--but i somehow doubt i'll get addicted-if anything-i am lowering my dose. it totally 100% takes away the heartburn. so-i feel strongly about wanting to stick with it-the hb was a nightmare. i did get it a few times since on ativan--but it is not usual--maybe 3 x since.
anyway-so-that's it.
the pillcam was easy-not a big pill at all. the same size as the pentasa --it was cool-i took a picture of it-yellow with a clear top and little flashing lights inside. i wish i could have gotten a copy of the images--but to read them i'd need software that costs like $30000-so-ofcourse that is WAY out of my range!
so..i hope i an taper to 0 pills (entocort)-he says 2 wks for 2 then 2 weeks for 1 then 2 weeks to 0. i may ask if i can do 3 weeks between instead--just a gut feeling. i hope that is ok.
i hope it means i really am in remission.
if so: just pentasa-and the ativan and other thing--
he said ofcourse it will flare again-and i'd need to redo steroids-and at somepoint may need the stronger stuff-but-
man..i just hope i am in remission. i hope these cramps don't mean i need the steroids longer..
anyway-sorry to ramble
hope everyone is ok here
need to catch up later
hugs to all
~andrea
hi..
i haven't been on in a bit-so much going on.
anyway-just wanted to update:
i had the pillcam done.
it went well--but the battery in camera ofcourse had to die before it reached the area (terminal ileum) where the inflammation is/was.
good: the rest of my small bowel is ok.
also good:
he thinks due to my symptoms improving-it is time to taper off the entocort (been on it over 3 months -3 pills day)
so for the past week i have been taking 2 pills (entocort)
fair.
good: no diarrhea
bad: lower ab cramping seems worse since off the 1 pill--but maybe it is just me worrying..need to give it time i guess.
also-been very tired since stopping just 1 pill.
is that crazy?
can tapering do that?
i was worried i was getting depressed-so called my psychiatrist to see if i can up my prozac during this tapering time. so-waiting to hear back on that.
it is hard to tell if it is depression or just feeling very tired. i never used to get tired like this. so-it is ..i know i am "off"
still on the ativan-and some other med: chlordiazepoxide 3x day-for the cramps (was having some lower cramping before tapering too--but-not as bad as now)--he thinks i have ibs as well as crohn's. so-i'm on this med for that (it seems similar to the ativan)
i tapered from 5 to 3 ativan-so-i hope to keep on it rather than switch to some drug like elavil. i know it is additive (arivan--but i somehow doubt i'll get addicted-if anything-i am lowering my dose. it totally 100% takes away the heartburn. so-i feel strongly about wanting to stick with it-the hb was a nightmare. i did get it a few times since on ativan--but it is not usual--maybe 3 x since.
anyway-so-that's it.
the pillcam was easy-not a big pill at all. the same size as the pentasa --it was cool-i took a picture of it-yellow with a clear top and little flashing lights inside. i wish i could have gotten a copy of the images--but to read them i'd need software that costs like $30000-so-ofcourse that is WAY out of my range!
so..i hope i an taper to 0 pills (entocort)-he says 2 wks for 2 then 2 weeks for 1 then 2 weeks to 0. i may ask if i can do 3 weeks between instead--just a gut feeling. i hope that is ok.
i hope it means i really am in remission.
if so: just pentasa-and the ativan and other thing--
he said ofcourse it will flare again-and i'd need to redo steroids-and at somepoint may need the stronger stuff-but-
man..i just hope i am in remission. i hope these cramps don't mean i need the steroids longer..
anyway-sorry to ramble
hope everyone is ok here
need to catch up later
hugs to all
~andrea