My story of intestinal issues actually begins five years ago, but my diagnosis of Crohn's was recent. Until September 9, 2010 I was under the impression that the cause of my diarrhea and abdominal pain was related to food intolerances. This is because the colonoscopy in 2006 showed no signs of inflammatory bowel disease, and I was told I had Irritable Bowel Syndrome and to eat more fruits and vegetables (thanks a lot).
On September 8th, 2010 I had the most excrutiating pain of my life. I was vomiting and experiencig the most severe abdominal pain which kept getting progressively worse. I ended up going to the hospital (and waiting four hours in agony in the waiting room) then getting my appendix removed, as the physicians were under the impression that it was inflammed. Apparently they were wrong, my appendix was fine but according to the surgeon my bowels were lined with puss -an indication that I had Crohn's. After the surgery I was hospitalized for a week due to complications - perhaps an infection? In my follow up appointments the surgeon is unclear as to why I was so ill after the surgery.
About a week ago I had another colonoscopy, the result: the crohns was not in my large intestine but was affecting my small bowel. After asking the physician how bad it was numerous times and getting no definitive answer, I finally realized that he may not know, since the colonoscopy only scopes the colon. Since then I have started a medication which apparently has many side effects and will need to be monitored monthly through blood work.
After all this, I feel angry and I hate everything. I am having a hard time coping and being positive, especially when I experience abdominal pain. I can't help but think my ultimate outcome is an ostomy and it is just a matter of time. Sometimes my pain now is as bad as when I went to the hospital almost two months ago, and I dont know what to do about it. I am upset with life (or more the diagnosis), the medication (with all its side effects) and the monthly blood tests. I feel as if it is unfair, and I keep thinking that I did something to deserve this (though I know I am just being irrational, but I cant help but to blame this on someone, even if it is me). I am now also scared to travel, have children in case they get Crohn's, and I am emberrased to tell people whom I might be interested in that I have this disease. Anyways I pretty much just want to have a temper tantrum.
I joined the forum to meet others with Crohn's and to find support.
Thanks for reading
Michelleoo:
On September 8th, 2010 I had the most excrutiating pain of my life. I was vomiting and experiencig the most severe abdominal pain which kept getting progressively worse. I ended up going to the hospital (and waiting four hours in agony in the waiting room) then getting my appendix removed, as the physicians were under the impression that it was inflammed. Apparently they were wrong, my appendix was fine but according to the surgeon my bowels were lined with puss -an indication that I had Crohn's. After the surgery I was hospitalized for a week due to complications - perhaps an infection? In my follow up appointments the surgeon is unclear as to why I was so ill after the surgery.
About a week ago I had another colonoscopy, the result: the crohns was not in my large intestine but was affecting my small bowel. After asking the physician how bad it was numerous times and getting no definitive answer, I finally realized that he may not know, since the colonoscopy only scopes the colon. Since then I have started a medication which apparently has many side effects and will need to be monitored monthly through blood work.
After all this, I feel angry and I hate everything. I am having a hard time coping and being positive, especially when I experience abdominal pain. I can't help but think my ultimate outcome is an ostomy and it is just a matter of time. Sometimes my pain now is as bad as when I went to the hospital almost two months ago, and I dont know what to do about it. I am upset with life (or more the diagnosis), the medication (with all its side effects) and the monthly blood tests. I feel as if it is unfair, and I keep thinking that I did something to deserve this (though I know I am just being irrational, but I cant help but to blame this on someone, even if it is me). I am now also scared to travel, have children in case they get Crohn's, and I am emberrased to tell people whom I might be interested in that I have this disease. Anyways I pretty much just want to have a temper tantrum.
I joined the forum to meet others with Crohn's and to find support.
Thanks for reading
Michelleoo: