Cara Fusinato
Sarcastic Forum Comedian
Greetings. We have so many new people, and I have been a lurker for a couple weeks due to a new job, so I thought I would tell my story.
Let me 'splain . . . no, there's too much, let me sum up . . . Last April I had, oh, let's call it an obstruction, had no idea what Crohn's was, let alone that I had it. They thought appendix, took it out, and my surgeon discovered Crohn's. Yippee! My first doc wanted me on Pentasa (did nothing), Entocort (made me want to kill people), and one of those d**ned immune suppressants (I just couldn't accept that) + wanted to remove 18" of small intestine (I just couldn't accept it either!). A second GI doc was a little more cautious, much better doc. More open to time, watching, meds and alternative meds.
And then, I discovered mangosteen juice (specifically the brand called XanGo which is MUCH more potent and concentrated than the stuff at CostCo or Whole Foods). I gave it a shot, grasping at ANYTHING I could. Has been proven to be anti-inflammatory, anti-bacterial / fungal, and an immune modulator -- so hey! So after less than a month, I felt so well that I got off all meds., didn't have surgery, and for $100 a month in juice (well, my husband drinks it too . . . so really about $60 in juice) I am actually SAVING money over co-pays on rX's and am doing great. Very few symptoms, no pain, and I am able to work, eat and then be in public, and even eat (oooh) pizza! However, I did give up milk to reduce the MAP getting back into my system.
My point in typing . . . for everyone who is really struggling, and I did for the first 8 weeks after diagnosis during a horrible flare . . . hang in there, find the right GI doc to work with you, explore your options, and talk to with everyone here in the forum.
PS -- as for mangosteen juice, it worked for me and it might be worth giving a try, but I recommend XanGo brand because of it's special formulation that others don't duplicate. Read about it online, if you desire, and find a local person who can hook you up with it if you so choose, PM me with any questions, if you desire. I have personally met 3 people who survived end-stage cancer after adding this juice to their diet, probably not a coincidence.
Let me 'splain . . . no, there's too much, let me sum up . . . Last April I had, oh, let's call it an obstruction, had no idea what Crohn's was, let alone that I had it. They thought appendix, took it out, and my surgeon discovered Crohn's. Yippee! My first doc wanted me on Pentasa (did nothing), Entocort (made me want to kill people), and one of those d**ned immune suppressants (I just couldn't accept that) + wanted to remove 18" of small intestine (I just couldn't accept it either!). A second GI doc was a little more cautious, much better doc. More open to time, watching, meds and alternative meds.
And then, I discovered mangosteen juice (specifically the brand called XanGo which is MUCH more potent and concentrated than the stuff at CostCo or Whole Foods). I gave it a shot, grasping at ANYTHING I could. Has been proven to be anti-inflammatory, anti-bacterial / fungal, and an immune modulator -- so hey! So after less than a month, I felt so well that I got off all meds., didn't have surgery, and for $100 a month in juice (well, my husband drinks it too . . . so really about $60 in juice) I am actually SAVING money over co-pays on rX's and am doing great. Very few symptoms, no pain, and I am able to work, eat and then be in public, and even eat (oooh) pizza! However, I did give up milk to reduce the MAP getting back into my system.
My point in typing . . . for everyone who is really struggling, and I did for the first 8 weeks after diagnosis during a horrible flare . . . hang in there, find the right GI doc to work with you, explore your options, and talk to with everyone here in the forum.
PS -- as for mangosteen juice, it worked for me and it might be worth giving a try, but I recommend XanGo brand because of it's special formulation that others don't duplicate. Read about it online, if you desire, and find a local person who can hook you up with it if you so choose, PM me with any questions, if you desire. I have personally met 3 people who survived end-stage cancer after adding this juice to their diet, probably not a coincidence.