Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Who had IBS prior to developing/being diagnosed with Crohn's?

View Poll Results: Were you diagnosed with IBS prior to your IBD diagnosis
Yes 27 67.50%
No 13 32.50%
Voters: 40. You may not vote on this poll

01-08-2011, 06:54 PM   #1
Grumbly-Guts's Avatar
Join Date: Dec 2010

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Who had IBS prior to developing/being diagnosed with Crohn's?

Were any of you dx with IBS prior to developing or being dx with IBD?
If so, then how long between each dx? And do you think IBS led to IBD? And Why?

My daughter is 11 1/2, she has had chronic constipation since 1week old. She was on EVERYTHING when she was baby/toddler up to adult dosages and 3 softeners and 4 lax's/day! It settled and then she would go from D to const. back and forth, to the point at age 6 she could tell me if she needed senekot or immodium! Finally, she was dx with IBS. We symptomatically treat her as needed, and she even watches her diet a she knows "what sets her guts off". She has been having mild head aches and joint pain treated with tylenol for pain as nsaids make me uneasy.
These symptoms give me flash-backs to my childhood (only mine resulted in slightly more ER trips than hers at her age, and she didn't completely cut out meat.
So I am wondering if you have IBS early in life with chronic const. and a genetic predisposition (i say carefully, as I know this is not totally proven) to CD, will you develop it, or is there a greater risk of developing it?
Also my son is 2 and has had maybe 5 solid bm's since birth 3 of which were due to constipation. He snacks, never eats meals, and has an egg allergy. I have CD and his great uncle has CD. He has NOT been dx with IBS, but, does anyone know if there is anything out there that tells you what puts you at a greater risk of developing immune diseases of any type or specifically IBD? He was also a premie who tried to come at 27 and 28 weeks, labor stopped, then was high risk w/bed rest, he stoped growing at 34 weeks (had weekly biophysicals done to check on him) delivered at 36weeks through induction after 49hrs and 27mins!! I severly flared during that preg. and he suffered for it as neither of us were getting much nutrition and I only gained 16lbs after i lost 11lbs in 1st trimester! He was also a fertility baby as CD killed my fertility. Just for additional info, he has been a sickly baby, many bouts of anitbiotics for infections and even hosp admissions for 3weeks of steady fevers and still never found the cause, was placed on iv antibio. broad spectrum for a few days. And I have NOT given him his MMR vaccines, originaly b/c he is currently in the process of being tested for autism, so due to the hype of MMR/Autism it scared me so I opted not to "for now", then read recently something about it being linked to CD as well. It solidified my reasoning to not vaccinate him!
Any insights, experiences and answers would be really interesting to read.
Thank you!!
Dx.May 26/06 symptomatic 15yrs.
June 10/06 surgery + complications
June 13/06 surgery + complications + iliostomy
Aug17/06 surgery + ostomy rev.
July 15/09 surgery + complications
July 26/09 obstruction
Sept'09 Drains for abcess
Start Humira
Oct'09 6L of fluid (abcess) + complications + surgery + drains.
Stop Humira
Flares, C Diff 2x, partial obs.'s, etc.
-Tx Resistant
-Steroid Psychosis
-Heparin Induced Thrombocytopenia
-Allergy to Methotrexate
01-08-2011, 07:19 PM   #2
Senior Member
roundtuit's Avatar
Join Date: Aug 2010
I was diagnosed with IBS about 7 years before the Crohn's diagnosis.
Joni O
Crohns diagnosed officially 06/2010 symptoms since 1990
C Diff. diagnosed 09/2010, UTI 10/2010, Vitamin B12 and D deficient 11/2010.

Current Medicines & Supplements:
Lialda 4.8g x1, B12 Shots, D and Calcium Gummie Vitamins, and Liquid Multivitamin.
3 Perirectal Abcess, gall bladder, hysterectomy.
01-08-2011, 07:23 PM   #3
Senior Member
Nytefyre's Avatar
Join Date: Jul 2009
Location: Georgia
I tell my wife that the docs just haven't found the crohn's yet. She has IBS. Her birth mother has crohn's. So we shall see.
When bankers get together they talk about art. When artists get together, they talk about money.
~Oscar Wilde

Who, being loved, is poor?
~Oscar Wilde
01-08-2011, 08:33 PM   #4
Grumbly-Guts's Avatar
Join Date: Dec 2010

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I'm thinking I may ask her gastro to preform a small bowel follow through and maybe a colonoscopy? WHat's the situation with children and colonoscopies and upper gi's etc? Anyone know?

01-09-2011, 05:17 PM   #5
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Josephine's Avatar
Join Date: Jan 2011
Location: Middlesbrough

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7yrs Ibs 4th yrs Crohns got feel Ibs was Crohns.
Acid Reflux for 15 years med

Sacroiliitis and add to grew list auto immune diseases.

Now on Lansprazole 15 mg And Gavin son 5mg-10mg 3a day.

Crohns from Oct 2007
Domperidone 10 mg -20 mg, Mebeverine 135 mg,
3 a day.
Balsalazide 750 mg 3 X3 a day on going.
Bone protection.

Azathioprine is not working, still waiting to find out what next. Still on low dosage Prednisolone

Mesalamine Enema

No Wheat

English my native language and have characterizes of dyslexia.
03-28-2011, 10:20 PM   #6
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
I've added a proper poll to this thread.

My GI thought I had IBS and diagnosed me as such. But I demanded a colonoscopy during which my IBD was discovered. I kinda wonder how many of the IBS people out there actually have IBD and crappy doctors.
04-04-2011, 08:15 AM   #7
New Member
Join Date: Apr 2011
They told me I had IBS right utnil they told me I had Crohns.
Is it possible to have both?or are the symtoms almost the same?
I changed my diet,however now Iv been told I can eat what I want,I can eat most things but white bread(alot anyway) and most diary products.
On predinsolone 10mg down from 30mg,waiting to see provate specialist about biopsy taken and continuing pain.
Working in a high stressful call centre for a worldwide holiday company.
04-04-2011, 12:23 PM   #8
Senior Member
ThingsHaveChanged's Avatar
Join Date: Apr 2011
Location: Canterbury/ Thanet, United Kingdom
went from in my head to ibs reluctantly, then crohns.
04-20-2011, 08:56 PM   #9
New Member
Join Date: Apr 2011
I was diagnosed with IBS and then about 8 yrs later I was diagnosed with Crohn's. I went through a very stressful period in my life and I think that helped bring on the initial flare of Crohn's.

Have been on Asacol, Canasa Suppositories, Rowasa enemas, Mesalamine, Pentasa

Currently on:
Pentasa 8x500mg
Rowasa 1xnightly
Canasa 1xdaily
04-23-2011, 10:39 PM   #10
BigRed's Avatar
Join Date: Mar 2011

My Support Groups:
I was given a dx of IBS in the beginning because they couldn't find anything wrong. IBS is really just a diagnosis of exclusion, based on symptoms. Or it was at the time anyway. A year and a half later, Crohn's was discovered in emergency surgery.
Diagnosed: 1993 - 3 resections since
Canasa Suppository (oh, joy.)
eff You, crohn's!
04-24-2011, 01:40 AM   #11
Chief Dandelion Picker
Entchen's Avatar
Join Date: Mar 2010
No, unless you count a GP who said she thought it was probably IBS. She blew a lot of things off, though, including my skyrocketing blood pressure (even after the hospital sent me to her to get bp meds), so I don't really count her IBS comment as any kind of rational diagnostic-y comment.

Edit: I've just read the original post. Very respectfully, the paper in the medical literature most often cited as suggesting possible links of MMR with autism has been retracted and shown to be based on false information. Several major studies have failed to find any links to autism and no studies have found support for such a link. (*Disclaimer: I am a health psychologist but I do not work in a clinical setting and I do not work in autism research.)
Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon

Last edited by Entchen; 04-24-2011 at 01:56 AM.

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