01-20-2011, 07:44 PM   #1
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Sailorluna's Avatar
Join Date: Oct 2010
Location: Coon Rapids, Minnesota

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mouth sores

Hi all,
I have had tons of mouth sores over the last couple weeks. Very painful. They seem to last for several days then dissapear and new ones show up in differant locations.

I just noticed on my azathiprine it says that you should contact your doctor for mouth sores. Aren't they normal for crohns? How do you know if you need to see the doc for them? Any thoughts?

Symptoms since 98
Resection and diagnosis June 2010
3 fistulas
abscess drained 6 times (so far...)
currently 2 seton in place 1 since 9/11 the other 4/14
1 strange small air pocket with an 8 cm sinus track leading into the great unknown
methotrexate weekly
folic acid
2 lomotil
2 Welchol
B12 injections (monthly)

Goodbye Humira
Goodbye Cimzia
Goodbye Azathiprine
01-21-2011, 02:02 AM   #2
Senior Member
Join Date: Mar 2010
Location: Palo Alto, California
For me frequent mouth sores have been a indicator of a flare or the beginnings of a flare. I would definitely contact your doctor and follow up.

01-22-2011, 10:14 AM   #3
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Sailorluna's Avatar
Join Date: Oct 2010
Location: Coon Rapids, Minnesota

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Thanks Lilly,
I saw the Chrons nurse and she seems to think that it is not a big deal. She wants me to "experiment" with immodium for my other issues - and if that does not do it she wants to talk about going to remicade.I don't get it.
01-22-2011, 11:10 AM   #4
ameslouise's Avatar
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Mouth ulcers can be an indicator of a flare. They are also a listed side effect on many meds.

I have read a lot about Immodium being bad for Crohnies. I would double check that one with your doc.

Hope you kick the mouth ulcers soon. They can be really painful and annoying!

02-23-2012, 03:04 AM   #5
Join Date: Nov 2010
Location: Abbotsford, British Columbia
When I was undiagnosed, I got the worst cold sores whenever my immune system dipped. It was a way for my body to tell me. Not that I'm diagnosed, I don't get them as badly. I think maybe because of the medication.
02-24-2012, 05:25 AM   #6
Cupcake's Avatar
Join Date: Feb 2012
Location: Philadelphia / Louisville, KY, Pennsylvania
I've gotten relief in being prescribed viscous lidocaine, and Triamcinolone Acetonide Dental Paste. While neither is especially pleasant, the lidocaine does stop the pain for a time so eating is easier, and the dental paste is a topical sticky goo which I've seen in being effective for resolving the sores.

Every time I bring up a mouth sore, someone always HAS to be the person to suggest swishing with salt water. If I had a dollar for every time that one was suggested to me...

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