Crohn's Disease Forum » Tests for IBD » How early in your diagnosis journey were you given a colonoscopy?

04-22-2011, 11:24 PM   #1
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Location: Naples, Florida
How early in your diagnosis journey were you given a colonoscopy?

I'm curious how long it took during your road to diagnosis (and for those of you yet undiagnosed) for your doctor to perform a colonoscopy on you. The first time I saw my GI he said I had IBS and sent me on my way with an antispomatic. A lot of good THAT did.

Before long I was back and he wanted to try some antibiotics or do some more wait and see since, "IBS often takes care of itself."

I insisted on a colonoscopy and was getting the procedure 3 weeks later. The biopsy results came back as IBD.

I have a feeling that if I hadn't insisted on a colonoscopy that I'd be sitting here thinking I had one hell of a case of IBS. All told, I'd figure it was 5 months from onset of symptoms until colonoscopy.
04-23-2011, 12:01 AM   #2
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In Sarah's case she has never had a colonoscopy. IBD wasn't even on the radar prior to her emergency surgery. She was one of those *typical* asymptomatic of *classic* CD cases that we see so often here. The weekend she was admitted to hospital I had a phone from my husbands cousin to say she had CD and when I researched it everything fell into place. I did say to Paediatrician and Surgeon that I wasn't leaving until they proved to me it wasn't CD and, well as they say the rest is history!

Matt on the other hand had a Colonoscopy/Endoscopy within 2 weeks of his first symptoms, they were mild to say the least and I wouldn't have suggested the GP do inflammatory markers if Sarah didn't have CD, heck I wouldn't have taken him to the doctor full stop. He was diagnosed during the scope.

Mum of 2 kids with Crohn's.
04-23-2011, 12:08 AM   #3
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it has been over 3 years - still no colonoscopy. My last visit I asked for one and was told the scope wouldn't reach as my CD is in small bowel. I have been told for a lot of years (about 20) that I have IBS - also put on anti-spasmatic. I was also put on a drug that was later recalled as it was making people have heart problems.
Dx GERD 2008
Dx Gastritis & hiatal hernia Feb 2010
Dx non-definitive Crohn's June 2010
Dx Endometriosis April 2011

"if nothing changes - nothing changes

04-23-2011, 01:13 AM   #4
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my first colonoscopy i had when i was 14 so pretty much straight away when the symptons started, i am now 21 an will be having another one soon
Dream as if you'll live forever, live as if you'll die today.
Diagnosed with Crohns disease at 14 now 21 symptons since age 9
Medication: azathioprine, 40mg Prednisilone, antiobiotics, probiotics, multi vitamin

Diet: Low residue ( low fibre )
04-23-2011, 01:32 AM   #5
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I've also been diagnosed without one - and hope I never will be! Another one with some non- classic symptoms so CD was first suspected after ultrasound looking for something else. Confirmed 8 months after symptom onset by bloods and Barium FT.
Dx Crohn's terminal ileum April 2011
Ileocaecal resection & partial cystectomy Sept 2012
3.5 years happy remission, in mild flare since Feb 2016 with related Portal Vein Thrombosis

Previous: Prednisolone, Mesren, Omeprazole, Infliximab, Azathioprine
Current: Pentasa, Librax, Warfarin
Helen x
04-23-2011, 04:32 AM   #6
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EJ was referred to his GI at Vanderbilt after our ped ruled out the benign reasons for his bloody d over the course of about 3 weeks or so. The GI scheduled the scopes on his first visit and they were done I think about 3 weeks after that. So, all in all, probably about 6 weeks in.
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

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04-23-2011, 04:38 AM   #7
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Mine was very soon after referal, my GP referred me to a GI who attempted a Sigmoidoscopy which was incredibly painful so sent me for a proper scope about a week later when i was diagnosed.

Id had severe symptoms start in July 2006 but didnt actually go to a GP until about April 2007, did a stool sample, blood etc and then i was referred on.

Right Hemicolectomy May 2010
Infliximab 8 weekly
50mg Azathioprine w/ 100mg Allopurinol
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04-23-2011, 04:40 AM   #8
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I had a flexi sig within about 6 months of initial symptoms (GP referral took ages).
Then had a colonoscopy 2 months after re-visiting GI after 2 or 3 years.
Still waiting for diagnosis My 5 year anniversary in August of symptoms starting.
2006. Tummy issues (more IBD than IBS).
2009 joint pain/worsening tummy issues.
CRP 20-36 2006-now. C3/C4 inflammation markers huge,
2014 IDA & low B12.

June 2014 admitted to Hospital 3 nights as emergency transfused 2 units of blood. Dangerous case of anaemia.
Caught by pure chance!
Cause currently unknown but suspected CD.

Waiting on blood & stool results from January.

Hoping to stop anaemia treatment soon & lower B12 daily dose!

Last edited by StarGirrrrl; 04-23-2011 at 04:47 AM.
04-23-2011, 04:44 AM   #9
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Great avatar Dave^^^^^
04-23-2011, 04:56 AM   #10
David in Seattle
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I've had symptoms about 29 months, 1st colonoscopy was about 2 months in.
04-23-2011, 05:45 AM   #11
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A year!! Was awful. I started to go to my GP when my mum noticed I wasn't myself. I was 8 at the time. The GP saw me every few weeks and took my height and weight. By the time I had the colonoscopy and was diagnosed, I looked like a walking skellington, could hardly keep anything down and was reduced to sitting on the sofa all day. How they let me get that bad, I'll never know.
04-23-2011, 05:47 AM   #12
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I too am still waiting on a diagnosis, Had my first major symtom in June 10, and had my colonoscopy in March 11. (My original GP thought my blockage was caused by me not eating enough?! Saw a different GP in January, so two months from when I saw him!
04-23-2011, 09:12 AM   #13
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I got one right away - within two weeks of seeing the GI. I was dx with UC immediately....
04-23-2011, 09:52 AM   #14
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I had mine almost immediately and my diagnosis was made then.
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04-23-2011, 11:11 AM   #15
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My onset of acute symptoms was October 2009. I had my colonoscopy in April 2010. Still currently undiagnosed a year after my scope.
04-23-2011, 11:36 AM   #16
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I'm undiagnosed so far. First symptoms in May 2010 but not referred to GI specialist until March 2011. Will have first colonoscopy on May 12th.
04-23-2011, 02:19 PM   #17
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Nearly 20 years! Up to that point only rigid sigmoidoscopies with biopsies and Barium enemas.
Diagnosed late 1980s
Azathioprine & Infliximab not tolerated
Humira since Aug 2010, weekly since Jun 2011
12 EUAs, setons removed & fistulotomy Dec 2012
04-23-2011, 02:51 PM   #18
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My experience is atypical it seems. They didn't suspect Crohn's based on my symptoms. I was having RLQ pain so of course they assumed my appendix (if it wasn't my appendix they were guessing ovarian cyst). Got a CT scan and it showed inflammation. Saw the GI and they basically told me I could choose to get the colonoscopy or not. Without it I would just live with no diagnosis. I decided I wanted to know what was going on (DUH) and had it done. So basically right away.
04-23-2011, 06:09 PM   #19
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Mine was when I was 12, I think it was about a year after I first went to my Doctor!
04-23-2011, 06:10 PM   #20
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Symptoms starting at age 15 (2005), then I didn't get the guts to go to the doctor until 16. Was referred to a GI for possible Crohn's/colon cancer, but then was blown off by the GI and was told IBS without even touching me. Got signifantly worse June 2010 and had my first colonoscopy Dec 2010. Still undiagnosed since my crohn's is most likely raging in my small bowel (though a CT scan in Sept didn't show much).
DXed with Behcets disease December 7th, 2012. Behcets disease is a rare autoimmune disease of the blood vessels that can mimic Crohns.

DXed with Polycystic Ovarian Syndrome (PCOS) November 20th, 2017.

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04-23-2011, 06:26 PM   #21
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10 years.
During the 2 years of abscess/fistulas i only had sigmoidoscopies.
If i had known then what might of been happening i would have gone back to my Dr every week to ask for colonoscopy.
You live......and learn!
04-23-2011, 08:41 PM   #22
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It sounds like I've been lucky compared to many of you.

I'm undiagnosed as of yet. I think I can safely say my real symptoms started sometime between December 2010 and January 2011. I had put off going to the doctor for months, because my biggest symptom was mucus in every BM. Then I started bleeding and my mom told me I had to go see the doctor.

I went to my GP in mid March, I believe. They confirmed my bleeding with a FOBT and I was referred to a GI specialist. I just saw the GI a few weeks ago; he told me that he wouldn't normally request a colonoscopy straight off the bat, but because of the bleeding and the situation I'm in he is needs to do one to see if it's CD or UC So, I haven't had any other tests (unless you count the FOBT) and I'm scheduled for my colonoscopy for May 2.

It's in a little over a week and as much as I am not looking forward to the prep, I am really excited to do it already so that I can get an answer and get some treatment so that I can get some relief!
04-27-2011, 09:48 PM   #23
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I started having symptoms during pregnancy so they couldn't do a colonoscopy then. I had the baby and was symptom-free for 9 glorious months. Thought whatever it was had gone away. HA! Two months after symptoms came back, I had a colonoscopy. That was last week. So, I got a diagnosis and colonoscopy right away, really.
04-27-2011, 10:31 PM   #24
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Sometime in the first couple of days. I can't quite recall, but then again I wass in the hospital hadn't eaten in 2 weeks, was severely dehydrated and completely out of it because of morphine. But all things considered I'm not really a reliable source.
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04-27-2011, 10:40 PM   #25
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Mine was the day after my first visit to the doctor. We were thinking it was just a bad stomach flu at the time, but I was close to the age for a first colonoscopy anyway, so it made sense to do it right away.
Crohn's- diagnosed 2010
meds- Lialda
04-28-2011, 03:57 AM   #26
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Mine was in a couple of weeks of first real symptoms. I put off going to the doctors figuring I had a stomach bug, then when I did go they admitted me to hospital. First they did ultrasound and CT, when that found inflammation they tried to get me in for a colonoscopy. They had an emergency slot that afternoon, unfortunately, I was eating again by then so needed prepping and had to go on the regular waiting list. So they discharged me and I had it done as an outpatient 3 weeks or so later.

I was lucky in a way, Crohn's wasn't even on the radar. They were thinking gallbladder infection but when the treatment for that didn't work they examined all my adbominal organs with the ultrasound, and the inflammation showed up clear as day.
Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
04-28-2011, 05:34 AM   #27
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I was also in the no symptoms group. I was diagnosed over an apendectomy.
The moron surgeon put me under the knife without even giving me an ultrasound, then when he found the inflamation decided it was better to cut it, causing massive bleeding and I needed 10 units of blood inside the OR. I had a colonoscopy 5 weeks after surgery and it was clear The doc told me I would have at least five years flare free . After a year on Immuran (AZA) I had an obstruction and another colonoscopy and I was so inflamed the scope could not pass through. So much for good news.
04-28-2011, 05:49 AM   #28
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I guess I was one of the lucky ones. Had my colonoscopy within 2 weeks of my first gastro consultation and diagnosed instantly- just had to wait for the biopsy results for confirmation. My consultant didn't wait on treatment though and I started that day.

Diagnosed UC 1999, Re Dx'd CD April 2011, Gastritis Dec 2010.
Resection Jan 2011, Total Colectomy 18.03.2011
Hoping to get a break sometime soon......
04-28-2011, 06:44 AM   #29
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Admitted to hosipital on a Wednesday, endoscopy and colonoscopy on saturday, official diagnosis on Tuesday. Before that time, life was peachy keen.
Diagnosed with Crohn's in Ileum October 2010.

Currently on:
Pentasa 2g
Imuran 125mg
Multivitamin and Calcium supplements.
04-28-2011, 06:54 AM   #30
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i went to my gp after i was in the hospital for pain in december and by 2nd week in janurary i had my colonoscopy and was diagnosed
diagnosed: janurary 10 2011

Meds as of now: keep me in remission.
Humira: every 14 days(my best friend)
Imuran- soon


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