Hi all,
I am 49 year old mother of two young children, trying to cope with Crohns disease (25 years), interstitial cystitis and underactive thyroid, and to top it all a bottom which feels like I'm sitting on a couple of golf balls!! (I kid you not!!)
I have been taking amitriptyline 50mg per night - its kept my crohns and bladder in check for a while. Have been on it for several years now, and although it has grotty side effects it was the best of the two evils. For the last couple of years I have kept getting a reoccuring sore, burning, itchy bum, especially bad after a b.m. not really bad, but uncomfortable for me to start doing the usual creams, warm baths etc doesn't seem to help it.
Anyway, seen the doc, and crohns doc, had a sigo and nothing to show anything up but extremly painful during the proceedure. Had a mri last year, in October, and nothing seen (although by then the pain had gone).
In June I was put on levothyroxine for thyroid, and this helped with the tiredness, that I have always put down to crohns. My sore bum stopped as suddenly as it had started - happy days! However my bladder started playing up, pain frequency it was as if something was fixed so something else broke! Anyway upped the amit, and still no change.
Back and forth to the doctors, no help really. Then in October they increased my levethyroxine, and my bladder continued to play up, and I generally felt unwell. Kept uping the amitrip and was getting nowhere. Crohns remains not bad, had a few bad days, and then my bum started again.
Decided to see an acupuncturist about my bladder in January with a view to try and get off the amit to see what was happening. By March I was off it completely, but my bum has got even worse.
I am back and forth to the doctor, and she has put me on dizapan at night. It is like I am sitting on something, sometimes both sides, sometimes just on the left. The pain and burning wakes me up at 4am like clockwork, and its hot baths or hot flannels, and neurofen. My stomach also looks like it goes into spasms, not pain, just moves about a lot, like theres a rave going in there. Crohns doc is convinced this is nerve related and the fact that am off amit its all reared its ugly head, and maybe go back on the tablet. As day goes on I get more and more bloated. Had bloods last week, and stool test this week just to double check no inflamation.
Seen physio who says my levante ani pelvic muscle is in spasm and doesnt know why? this can effect the bowel. Help? Any ideas, I must sound like a nutter!! but this is driving me so mad, can;t sit, walk very far, and going to the loo is painful after. Crohns doc says scan Oct last year - nothing could reappear that quick. Any ideas help greatly appreciated... Thankyou.
I am 49 year old mother of two young children, trying to cope with Crohns disease (25 years), interstitial cystitis and underactive thyroid, and to top it all a bottom which feels like I'm sitting on a couple of golf balls!! (I kid you not!!)
I have been taking amitriptyline 50mg per night - its kept my crohns and bladder in check for a while. Have been on it for several years now, and although it has grotty side effects it was the best of the two evils. For the last couple of years I have kept getting a reoccuring sore, burning, itchy bum, especially bad after a b.m. not really bad, but uncomfortable for me to start doing the usual creams, warm baths etc doesn't seem to help it.
Anyway, seen the doc, and crohns doc, had a sigo and nothing to show anything up but extremly painful during the proceedure. Had a mri last year, in October, and nothing seen (although by then the pain had gone).
In June I was put on levothyroxine for thyroid, and this helped with the tiredness, that I have always put down to crohns. My sore bum stopped as suddenly as it had started - happy days! However my bladder started playing up, pain frequency it was as if something was fixed so something else broke! Anyway upped the amit, and still no change.
Back and forth to the doctors, no help really. Then in October they increased my levethyroxine, and my bladder continued to play up, and I generally felt unwell. Kept uping the amitrip and was getting nowhere. Crohns remains not bad, had a few bad days, and then my bum started again.
Decided to see an acupuncturist about my bladder in January with a view to try and get off the amit to see what was happening. By March I was off it completely, but my bum has got even worse.
I am back and forth to the doctor, and she has put me on dizapan at night. It is like I am sitting on something, sometimes both sides, sometimes just on the left. The pain and burning wakes me up at 4am like clockwork, and its hot baths or hot flannels, and neurofen. My stomach also looks like it goes into spasms, not pain, just moves about a lot, like theres a rave going in there. Crohns doc is convinced this is nerve related and the fact that am off amit its all reared its ugly head, and maybe go back on the tablet. As day goes on I get more and more bloated. Had bloods last week, and stool test this week just to double check no inflamation.
Seen physio who says my levante ani pelvic muscle is in spasm and doesnt know why? this can effect the bowel. Help? Any ideas, I must sound like a nutter!! but this is driving me so mad, can;t sit, walk very far, and going to the loo is painful after. Crohns doc says scan Oct last year - nothing could reappear that quick. Any ideas help greatly appreciated... Thankyou.
