Hey everyone, nice 2 meet u all, im victoria, im 25 and have been officially disgnosed with crohns since late 2008, took nearly 3 years 2 disgnose, which was very unfortunate for me. My symptoms began with chronic diarrohea and stomach pain or cramps, took me ages to pluck up the courage 2 go 2 the doctors. I had a small bowel series and a colonoscopy done which didnt show anything and it was a white cell scan which diagnosed it. Started pentasa and was fine until january 2010
From january till may I had 2 flare ups which went relatively untreated cause my gp wasnt sure what 2 do. July 2010 I had a bad flare up and was treated with steroids, iv antibiotics, increased pentasa etc. Still felt really bad and was starting to lose weight.
Seen my gastro consultant 2 weeks after being let out of hospital (not the one i was usually treated in) and he was not happy at all, i wasnt allowed home from clinic, i spent 9 weeks in hospital after that, a nitemare which i thought i wasnt gonna come through. Heres what happened:
August 26th: laparoscopic ileocaecal resection, showed perforated retroperitoneal absess. treated iv antibiotics.
Proceeded 2 have great pain in abdomen, abdomial distension, bloods showed signs of bad infection, insertion of drain, which began draining faecal contents, ended up with peritonitis that could have killed me
September: Needed emergency laparotomy, bowel washout and ileostomy, i had no preparation for this and i was devastated. Ended up in ICU cause of problems with infection.
Extreme infection, was on just about all antibiotics they could give me. I felt very bad, i thought i was dying.
Removed my staples and my laparotomy wound fell apart, opened all the way along, required VAC dressings and i endured some of the worst pain id felt, this wound then took 4 months 2 heal. I had lost 11kilos by this stage and i was fed NG for 8 weeks, was not pleasant at all.
March 2011: consultant thought i was ready for reversal of my ileostomy so i went ahead and had it reversed, he said that everything looked good.
6 and a half weeks after this surgery and i still have diarrohea and stomach cramps, waiting on consultant 2 decide what 2 do next, im back on pentasa for now and hes talking of azathioprine next. I sort of just wish my nitemare would end.
N e way i probably wrote 2 much but thats my story
From january till may I had 2 flare ups which went relatively untreated cause my gp wasnt sure what 2 do. July 2010 I had a bad flare up and was treated with steroids, iv antibiotics, increased pentasa etc. Still felt really bad and was starting to lose weight.
Seen my gastro consultant 2 weeks after being let out of hospital (not the one i was usually treated in) and he was not happy at all, i wasnt allowed home from clinic, i spent 9 weeks in hospital after that, a nitemare which i thought i wasnt gonna come through. Heres what happened:
August 26th: laparoscopic ileocaecal resection, showed perforated retroperitoneal absess. treated iv antibiotics.
Proceeded 2 have great pain in abdomen, abdomial distension, bloods showed signs of bad infection, insertion of drain, which began draining faecal contents, ended up with peritonitis that could have killed me
September: Needed emergency laparotomy, bowel washout and ileostomy, i had no preparation for this and i was devastated. Ended up in ICU cause of problems with infection.
Extreme infection, was on just about all antibiotics they could give me. I felt very bad, i thought i was dying.
Removed my staples and my laparotomy wound fell apart, opened all the way along, required VAC dressings and i endured some of the worst pain id felt, this wound then took 4 months 2 heal. I had lost 11kilos by this stage and i was fed NG for 8 weeks, was not pleasant at all.
March 2011: consultant thought i was ready for reversal of my ileostomy so i went ahead and had it reversed, he said that everything looked good.
6 and a half weeks after this surgery and i still have diarrohea and stomach cramps, waiting on consultant 2 decide what 2 do next, im back on pentasa for now and hes talking of azathioprine next. I sort of just wish my nitemare would end.
N e way i probably wrote 2 much but thats my story
