Crohn's Disease Forum » Your Story » Back cramps

06-03-2011, 01:06 AM   #1
New Member
Join Date: Jun 2011
Back cramps

Hello all,

Just join the forum to see how crohns effects others. Particularly with their sleeping patterns.

I had my op this time last year and so far everything has been good. They took out the terminal illieum (apologies for the spelling). No more rumbling or cramps that sounded like a monster in my stomach. I'm currently taking pentasa, 6mg a day. As far as I can tell my symtoms haven't come back.

My question to the group is, doesn't anyone suffer from cramping when they sleep. Specifically on their back? I wake up every night and basically crippled to the point I have to pull myself up. Once standing, I can walk it off. Its driving me mad cos I can't get more than 5-6hrs sleep per night. Its only started happening over the last few months, is this the kind of thing that happens when your b12 levels get low?

Chris L
06-03-2011, 05:39 AM   #2
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Hiya Chris
and welcome fellow Brit

Sorry I don't have this problem, I take 25mg of Amitriptyline at bedtime and would sleep thro a tornado!
This drug is an anti depressant in high doses but works as an anti spasmodic too.
Have you discussed this with your gastro? You shouldn't have to be in pain and suffer like this.
someone else might come along with the answer soon.
lotsa luv
Joan xxx


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

06-03-2011, 08:32 AM   #3
Tanachild's Avatar
Join Date: May 2011
I, too, take Amitriptyline, but I still have back pain. My back doesn't really hurt when I am leaning against something, like when laying down. If I'msitting with nothing supporting my back, then it really hurts. I agree with Joan that you should talk to your doctor or you could even try a chiropractor. I haven't been able to go to mine because I'm currently in a flare so I can't go to the chiro so my back hurts worse than ever.
I hope this helped and you start feeling better soon!

The medicines I'm on:
Gabapentin- 400 MG
6MP- 75 MG
B12- 100 MCG
Calcium- 1200 MG
Lansoprazole- 30 MG
Prenatal Vitamins- for hair--not pregnant
One a day for teens vitamin
Hyoscyamine- .125 MG (when necessary)
Promethazine- 25MG(When Necessary)

06-03-2011, 02:01 PM   #4
Karissa's Avatar
Join Date: Jun 2011
I am glad to hear about your successful surgery! I had an illectomy a year and a half ago, and have been feeling great as well.
The only time that I have experienced back pain was before, during, and after flare-ups. Maybe consider going to a chiropractor? It really helped me. Or massages? My mom is a massage therapist and they really help. Everything is connected, so it makes sense that your back, parallel to your abdomen, would experience symptoms as well. Is it on a particular side or location? If your ilium was where the disease took hold, maybe your right side of your back is reacting to the trauma that occurred before and during surgery? Hope you figure it out!

06-04-2011, 02:21 AM   #5
Tanachild's Avatar
Join Date: May 2011
My back as bothering me really bad today. My mom has back problems as well so we have a heating pad. It has done wonders for me. While it still hurts, it is defiantly 90 times better than what it was.
06-06-2011, 01:21 AM   #6
Senior Member
mayhavecrohn's's Avatar
Join Date: May 2011
Location: lexington ky, Kentucky

My Support Groups:
i also get cramping in my back to and in my stomach and i also get this lound rumbling or cramps that sounded like a monster in my stomach and the cramping will get so bad that i can't move or anything so your not alone with that i also take 25mg of Amitriptyline and i also take my pain meds 3 times a day they dont work like they should i suffer with chronic pain i take lortabs and i am on sertraline 100 mg but i still have hard sleeping hang in there i am here if you need to talk i am here to listen here is a hug for you and ev 1 here good night ev 1 take care

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