Crohn's Disease Forum » Your Story » Success Stories » In Remission and Finally Living!

06-22-2011, 08:36 AM   #1
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Join Date: Jun 2011
In Remission and Finally Living!

Hey everyone,

Most of you have seen me around, though I just recently joined this forum. I am so excited about this new section for success stories! If I traveled back to when I was first diagnosed, it would have been amazing to read about people that had figured out a way to beat this disease!

I was diagnosed when I was eleven and dealt with the typical severe Crohn's scenario for years- meds, hospital stays, bathroom visits, missing school, etc. I had surgery on November 6th 2009. Since then, I have been in a blissful remission, and I'm loving it.

My whole life was filled with Crohn's. I don't really remember what my life was like before getting sick. Before surgery, I missed classes all of the time. I'm used to copying notes and studying on the couch, but it is amazing to be able to say that I did not miss a single class last semester. I took a fitness class right before my surgery, and ten reps on one machine would throw me into a flare-up. Now, I work out twice a day as often as I can. I run, elliptical, and do zumba. I worked at a grocery store before surgery, and barely ever got scheduled because I was always calling out. Now, I work thirty-five hours a week during the summer at the Elms library. I work here and tutor during the school year. I'm the Looks on Campus editor on the fashion website for college students, College Fashion. I'm teaching a writing workshop for high school kids at the library this summer. It is amazing what you can do when half of your time isn't spent being sick or worrying about being sick.

I'm not cured, nor do I claim to be. Just last night, there were hidden seeds on the bottom of my hamburger bun at Chili's that I did not discover until halfway through eating it, and stomach pains attacked for four hours afterward. I have to watch what I eat, constantly. I work out as much as I can because I want to be as healthy as I possibly can be, just in case I come out of remission or need another surgery. Anyways, I hope all of you that are undiagnosed, in the middle of a flare, or a parent of a kid with Crohn's, see that it can, and it will get better. I wouldn't have believed you if you told me this years ago. But it does. It gets better! Ten years with this disease, and honestly, I can't imagine my life without it. It's a part of me.

I've been writing a story/poem about Crohn's this summer (I'm actually not sure what it really is yet), but I thought I would leave you guys with part of it...

"After brushing my teeth twice and finding my glasses on the bathroom tile, I slink back to my couch and inspect Mom’s Flare Care Package perched on the TV tray next to me. She’s assembled a giant glass of water, a glass of apple juice (never, ever drink orange juice- too much acid), my pill box, a sleeve of saltines, my copy of Harry Potter six, all three TV remotes, my cell phone charger, and her disappointment that Crohn’s has striked again.

It’s strange when sickness becomes a routine. You get to the point where you can’t recall when the switch happened- from a normal life to one filled with medications. Being sick is all you can remember.

I know the drill. I can recite the steps of a flare-up in my sleep. During the attack, I hover between hell and dreamland- a heavy-eyed place where I can hear the splintering needles inside me. And then I wake up in post-flare, hazy and bruised. I can predict how long it will take for me to eat real food, what meds will make the recovery day easier. Yet I can’t foretell when or why Crohn’s will visit next.

I need to invest in a “Visitors not welcome” sign."

Thanks for listening!

Diagnosed with Crohn's in June 2001, age 11
Severe Ileocecal disease

Surgery on November 6, 2009, age 19
Open ileocecectomy
Currently in remission

Meds tried: Pentasa, Prednisone, Cimzia, Flagyl, Asacol, countless natural remedies

Meds currently taking: 6MP

My reading blog, Addicted to Reading

Walking in Take Steps for Crohn's and Colitis in September, with my team Karissa and Laura's Fabulous Friends. Make a donation here, thank you!
06-22-2011, 10:35 AM   #2
Crohn's Mom
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Join Date: Mar 2011
Location: Florida

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You have a great spirit and a kind heart !
Thank you for sharing your story
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
06-22-2011, 02:11 PM   #3
Senior Member
Join Date: Jan 2011
Location: Houston, Texas
Remission, hooray!

Thanks for posting.
Father of Isaac, dx UC in 10/2010 at 29 months old
Read details here:
06-22-2011, 04:54 PM   #4
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Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Thanks Karissa!

Just what I needed before sleepy time! a lovely success story from a lovely girl!
Stay well


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

06-25-2011, 12:25 AM   #5
Senior Member
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Join Date: May 2011
these success stories are doing me wonders today, hope to be following in your footsteps soon!!
06-25-2011, 01:13 AM   #6
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Join Date: Jun 2011

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Thank you for sharing. I hope everything stays well and that you enjoy remission for many many years. These stories are truly helpful and I loved the bit about your poem/story. I have looked everywhere for stuff on chrons and there is not much out there in terms of media and such. Your a very strong and inspiring young lady : )
06-25-2011, 02:33 AM   #7
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Join Date: Jan 2010
Location: California

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It is strange when sickness becomes a routine, I agree. Its weird to think back and see yourself sitting in a hospital bed and all you can think about is how bored you are and thoughts of "what the heck is wrong with me, am I dying?" seldom cross your mind anymore. Maybe that's acceptance.

I'm glad you're doing well. Thanks for sharing your story and writing.
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.
06-25-2011, 02:34 AM   #8
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Join Date: Jan 2011
Location: Alaska

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Very sweet story. Thank you for sharing your success story.
Diagnosed with Crohn's Disease in 2005

Pentasa 2x500mg (4 times a day)
Zofran (as needed for nausea)
Ginger Capsules (for Nausea)
Zoloft 150 mg
Ranitidine 150 mg (2 times a day)
Entocort 3 mg (3 capsules by mouth for 8 weeks, then tapering to 2 capsules for three months)

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