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What kind of pills do you take in a day?

R

ryanelensky

Guest
what kind of pills do you take in a day?

just trying to get to know what kind of pills everyone else takes for their crohn's disease.

i take:

5 pills of pentasa 3 times a day at 250mg. =3,750mg a day (doctor prescribed)

2 pills of calcium 500 + D a day. (doctor prescribed)

1 pill each morning of one a day weight smart advanced. i picked that pill out because of the iron it gives me and it actually helped me out a lot. though i think it tends to make me a bit dizzy sometime.

prednisone 10mg and i'm on a tappering dosage that started at 4 pills for a week then 3.5 pills next week and so on. (doctor prescribed)

prilosec otc 20mg, just take one each morning and it helps the heartburn big time.

fish oil omega 3 1000mg and i take one of those each morning.

thanks
 
DanSJVDavis

DanSJVDavis

Generally I take the minimal dosage of Pentasa right now as we don't have enough money typically for me to up the dosage. It doesn't seem to bother me too much, but there are times when I feel like I should be taking a higher dose. I'm really only taking 1000mg unless I'm starting to feel a little off, then I up it to 2000mg. I take an antacid. Ideally, I'd love to take Nexium, but the old insurance wouldn't allow you to get it until you tried three or four others first (none of which did anything for me when I took samples of them). I take over the counter Prilosec, one or two per day. Other than that I take a vitamin supplement, some Ginko Biloba and Ginseng.

Oh, lately I've been taking Tramadol (50-100mg) for my back and chest pain, but I can't take them for too long because they constipate me.

I WISH we could get some friggin generics of the Crohn's meds. Our new insurance has a higher copay for non generics, which sucks even worse, but a lot of the Crohn's meds and antacids do not have generics. :(
 
kskitt

kskitt

im on 25mg prednisone per day(was on 40mg but im on the process of lowering it down to 20 mg tomorrow)

2 adcal d3 per day

im seeing my consultant on thursday to discuss what will happen when i come off the prednisone so im sure my medication will change in about a week
 
D

deanhp

Guest
kskitt said:
im on 25mg prednisone per day(was on 40mg but im on the process of lowering it down to 20 mg tomorrow)

2 adcal d3 per day

im seeing my consultant on thursday to discuss what will happen when i come off the prednisone so im sure my medication will change in about a week
Click to expand...
I used to take predisone. suposedly you have to ween it off, so you will be taking less mg every couple weeks. This is what you use when you are first diagnosed with chrohns. Did your face start getting all puffy. It makes your face look fat. and you start gaining weight fairly quickly. as it makes you extremly hungry.One thing I didnt like about it was the fact it causes heart palpations.
 
B

bk1579

Guest
I take 9 asacol and I'm also on 40 mg of prednisone. Getting ready to taper off that starting Friday. Hopefully I dont flare up again when I get to 20 mg. If so, I have to go back to 40mg and probably start Imuran. Yea, I definately have the puffy face look. I actually feel fat all over. I eat LOTS too!!!
 
soupdragon69

soupdragon69

ele mental leprechaun
I am on: 1000mg Pentasa twice a day, 200mg azathioprine a day, calcichew-D3 once a day, multivit once a day as per GP, remicade iv - just finished 3rd dose and due review to see whether it continues every 6-8 wks, also on mebevrine for gut spasm with IBS (newly diagnosed on top of crohn's). Still on 30mg pred - tapering from 40mg, was on iv steroids in hospital last week. Still needing codeine and paracetamol for pain but have managed to reduce from 4 to 2 times a day now so getting there.

Am jumping up and down anyone hear me rattle yet?? :ylol2:

OOH yeah and eat?? WHERE'S THE FRIDGE???
 
O

old hat

Guest
ack, the list. Let me see here

Multi-vitamin 1/day
Potassium Gluconate 550 mg 1/day
Folic Acid 1,200 mcg 1/day
CLA 1,000 mg 1/day
Pentasa 1,000 mg 3/day
6-mp 50 mg 2.day
Wellbutrin 300mg 1/day
Omeprazole 20mg 1/day
Gabapentin 300mg 1/day
Dicyclomin 20mg 2/day (as needed)
Vitamin B12 injections 1/month
Remicade infusion 1/8weeks

It's always a bit depressing listing all that stuff.
 
D Bergy

D Bergy

I take four 95% standardized Turmeric extract capsules and four Ginger root capsules spread out through the day. Really do not know if it helps since I can do without it as far as pain is concerned. Studies indicate both reduce inflammation so that is what I am using it for, along with a long list of other benefits.

I also take Primal Defense but I can tell little difference between taking it and not.

I am not taking anything currently since I am experimenting with H Pylori elimination as a cure or treatment for Crohn's.

D Bergy
 
C

Cog

I take

Bactrin 1 double strength
Xifaxin x 1
Garden of Life Multi x 4
Omega-3
Glucosamine with MSM
Bentonite
Calcium
Vitamin C

Temporarily Pamine Forte 5mg x 2

Careful diet

C
 
O

old hat

Guest
DanSJVDavis said:
I take an antacid. Ideally, I'd love to take Nexium, but the old insurance wouldn't allow you to get it until you tried three or four others first (none of which did anything for me when I took samples of them). I take over the counter Prilosec, one or two per day.
Click to expand...
For most people, generic Omeprazole (prilosec) is just as effective as the newer Nexium (Esomeprazole). Omeprazole is metabolized into Esomeprazole in the body so, essentially, they are the same thing and have the same effect. The only difference is that the Nexium costs more.

A minority of people do not metabolize the Omeprazole effectively and benefit significantly from the newer product. The rate varies by ethnic group and is roughly 10% in the caucasian population.
 
H

healthboy

Guest
I usually take these pills in a day

vitamin e
vitamin c
fish liver oil capsule
multivatamins
 
K

katiesue1506

1 each of iron and vitamin C and then a Humira shot every other week


however used to be 6 preds, 3 imurans, 2 irons, 2 calciums, 2 vitamin c's, 3 psyllium, and two of something else that i forget what it is.

needless to say im happy with what I've got now.
 
D

Dekar

no medication, i take 1 bio-k a day and drink a crapload of water and exercise, sleep early etc


my gi didnt recommend it but now hes kind of confused/dumbfounded with my progress
 
D Bergy

D Bergy

Kind of fun to beat them at their own game hey, Dekar

I did the hey, in honor of Canada. Or the UP In Michigan.

D Bergy
 
C

ccarp001

Guest
12 Asacol pills
2 Immuran
1 Prevacid

Humira every other wk

VitD, Calcium and Mulivitamin

Phenergen/Tramadol/Belladonna as needed
 
amor151

amor151

15mg preds
3000mg pentasa 2 x 500mg 3 times a day
omneprazole
50mg azathioprine
omega 3 fish oil 2000mg
multivitamins
some other supplement cant remember what for though :)
 
C

chris

3000mg pentasa
50mg imuran, reduced from 125mg due to sickness

starting to wonder if these drugs are needed or there is a more natural way.
 
drew_wymore

drew_wymore

Just came off Prednisone and Pentasa

Codeine/Tramadol as needed
25mg DHEA
Flintstone multi vitamin
Phenegren when I feel like riding vomit comet
Lithium
Lamictil

Soon to be going on Imuran and Prednisone again ..

Adding Pred @ 40mg for the next 3 months and 50mg of imuran ramping up depending on how it goes. Had a really bad bought of the D for the past couple days ended up at the clinic seeing my GI and got an IV drip from being severely dehydrated
 
Last edited:
TammySue62

TammySue62

DanSJVDavis said:
Generally I take the minimal dosage of Pentasa right now as we don't have enough money typically for me to up the dosage. It doesn't seem to bother me too much, but there are times when I feel like I should be taking a higher dose. I'm really only taking 1000mg unless I'm starting to feel a little off, then I up it to 2000mg. I take an antacid. Ideally, I'd love to take Nexium, but the old insurance wouldn't allow you to get it until you tried three or four others first (none of which did anything for me when I took samples of them). I take over the counter Prilosec, one or two per day. Other than that I take a vitamin supplement, some Ginko Biloba and Ginseng.

Oh, lately I've been taking Tramadol (50-100mg) for my back and chest pain, but I can't take them for too long because they constipate me.

I WISH we could get some friggin generics of the Crohn's meds. Our new insurance has a higher copay for non generics, which sucks even worse, but a lot of the Crohn's meds and antacids do not have generics. :(
Click to expand...
Hey
Have you ever asked ur Dr. or GI for help with ur meds,because mine gives me pentasa,nexium sometimes VSL#3 when he has it. Dosent hurt to ask.
Also I used to take toroadol for pain too until my pain Dr. said it is not a good drug and they are gonna take it off the shelves.
Try demerol(thats fairly cheap) or dilaudid,oxycodone or oxycotin
 
F

Farley

Guest
Currently on:

2 Asacol a day (think that's 800mg? not sure)
125mg Azathioprine a day
20mg Prednisolone (reducing from 40)
2 Iron tablets a day

Could be worse :)
 
RHOV

RHOV

75 mg azothioprine
30 mg prednisone
50 mg ciprofloxacin 2x per day
iron
vitamin c
multivitamin
some type of painkiller, i forget which generic brand, but the drug is acetaminophen

and i start remicade sometime in the near future

wow, it seems like a lot more than i thought it was now that i write it all out!
 
M

MarkyB

Guest
2000mg Pentasa,
150mg Azathioprine,
10mg Prednisolone,
Infliximab infusions,
2000mg Omega 3 Fish Oil Capsules,
B12 injections,
Cartons of 'energy' drink (essential elements etc)
Painkillers

- Do they work??? NO!
 
D Bergy

D Bergy

I hope you are having your liver tested for toxic reactions. Acetaminophen by itself stresses the liver and is the leading cause of liver failure. Combined with your other meds, some of which also stress the liver could lead to a big problem.

Please be careful.

Dan Bergman
 
S

snazzy

Guest
Im on -

150mg Imuran (Azathioprine)
2x tabs Entocort (Budesonide)
1000mg in morning Pyralin-EN (Sulfasalazine) and again at night

Has changed so many times - these seem to be working really well for me - very happy, touch wood it says this way !!!!!
 
KCMike

KCMike

14 months post resection:

DanActive probiotic dairy drink
Multi-vitamin
Calcium chew
occasional iron supplement
yogurt
orange juice with honey

I've only had one cold during that time(it was a bad one though) Not really sure if any of this is helping. I have nothing to compare it to. But I do feel healthy. We'll see how long it lasts.
 
KCMike

KCMike

Hey, butt-eze,

My wife takes Zoloft and if she skips a day I can really notice a big difference. She gets real subdued and has a low energy level. She calls them her "happy pills". If you don't mind me asking I'm curious how it affects you when you skip a dosage? Thanks
 
butt-eze

butt-eze

Superstar
Wow! That's weird to hear about your wife. I have tried getting off them before and I notice immediately. I was on 100mg a couple of weeks ago and have worked my way down to 50mg. I already notice that I'm more grumpy. They definitely take the edge off. I guess I should consider staying on them unless someone can tell me what the negative to it would be.
 
M

minnie winnie

Guest
hi,

i'm taking 5mg pred, tapering down from 7.5mg.. This is my second attempt trying to get off the steroid, got down as far as 2.5 mg, but got a kick back from it, aches & pains, cold sweats, hot flushes you name it i had it...also get B12 every month.seeing GI in 6 weeks.
 
G

Gemma

Guest
My specialist dosnt genrally put me on pills as once im on them they find it hard to get me off them.

What he tends to do is fit me with a nasal gastric tube and liquid feed me for 6 weeks to give my bowel a rest.
 
C

cindypat

Guest
I am currently taking
2 capsule 4 times a day (500mg Pentasa)
Benefiber
Some acid reducer Gastro prescribed
Bentayl for stomach spasms
Levinson
 
aarond

aarond

Well I take:

1 Prednisolone Enteric coated on alternate days (tapering at the mo)
3 Budesonide (Entocort) Capsules (9mg) daily
2 Sachets of Pentasa Granules daily
1 Fluoxetine Capsule (60mg) daily
2 Calcium supplemets daily
2-6 Codeine Phosphate tablets (30mg)

and yes i do rattle when i walk LOL
 
S

sarahinyoface

Guest
100mg azathioprine
1g mezalazine 3 times a day.
20mg omeprazole
1 sachet of VSL#3 mixed in water


-------
i use to be on prednisolone and a higher does of azathioprine.
 
S

sarahinyoface

Guest
Gemma said:
My specialist dosnt genrally put me on pills as once im on them they find it hard to get me off them.

What he tends to do is fit me with a nasal gastric tube and liquid feed me for 6 weeks to give my bowel a rest.
Click to expand...
ive had that before too. did they give you elemental?

i now have a p.e.g tube in my stomach. and get fed overnight to sort of 'top me up' coz i dont eat enough to keep a fly alive.
 
B

blackbat

Guest
Pills
Asacol tab 400 mg 4 pills 4 times a day
Famotidine 40 mg 1 tab twice a day
Loratadine 10mg 1 tab twice a day
Multivitamin 1 tab 3 times a day
Omega fish oil 1000 mg 3 tabs twice a day
cranberry concentrate 500 mg 1 tab twice a day

Injections
Novalog 2 units three times a day
Novalin 6 units twice a day

Every 6 weeks IV infusion Remicade
 
N

nc bri

Colozal 9 pills per day
Rowasa supp.'s at night
VSL#3 pills
Remicade infusions every 6 weeks ( I haven't been able to make it to 8 yet.)
Multivitamins when I remember
A good dark beer occasionally
 
D

Digits

Guest
last month:

100Mgs of 6mp (2 pills)
75mgs of Effexor (MY HAPPY PILLSSS) (1 pill)
100 Nexium (2 pills)
2 shots of Humira every other week
1500Mgs of Flagyl (6 pills)
calcium
Vit D
Folic Acid

Today:
125Mgs 6mp (2.5 pills)
75 effexor (1 pill)
100 nexium (2 pills)
remicade once a month
calcium
Vit D
Folic Acid


and a steady diet of yummy soft Taco Bell. :) if im gonna lose weight no matter what, im gonna eat it all!!!!!!!!!!!

(PS: has anyone ever had to do 2 shots of humira at once, and is remicade usually 8 weeks or what?)
 
TammySue62

TammySue62

Digits said:
last month:

100Mgs of 6mp (2 pills)
75mgs of Effexor (MY HAPPY PILLSSS) (1 pill)
100 Nexium (2 pills)
2 shots of Humira every other week
1500Mgs of Flagyl (6 pills)
calcium
Vit D
Folic Acid

Today:
125Mgs 6mp (2.5 pills)
75 effexor (1 pill)
100 nexium (2 pills)
remicade once a month
calcium
Vit D
Folic Acid


and a steady diet of yummy soft Taco Bell. :) if im gonna lose weight no matter what, im gonna eat it all!!!!!!!!!!!

(PS: has anyone ever had to do 2 shots of humira at once, and is remicade usually 8 weeks or what?)
Click to expand...
Yes the first time taking humira is 4 injections
Then in 2 wks 2 more injections
Then on a steady 2wk program 1 injection
 
D

Digits

Guest
hmm. i was on Humira for 7 months and never went down from 2 shots at once. id do the first one fine, then be nervous on the second one, lol.
 
H

HmZ2298

Guest
deanhp said:
I used to take predisone. suposedly you have to ween it off, so you will be taking less mg every couple weeks. This is what you use when you are first diagnosed with chrohns. Did your face start getting all puffy. It makes your face look fat. and you start gaining weight fairly quickly. as it makes you extremly hungry.One thing I didnt like about it was the fact it causes heart palpations.
Click to expand...
Yeah. I take Mercaptopurine now. 2-3 tablets a day. But Prednisone was the worst. Sure, it made me feel pretty good, but I got sooo puffy. And I became riddled with acne all over my body. And the stretch marks weren't pleasant either.
 
J

jobengals

Guest
HmZ2298 said:
...But Prednisone was the worst. Sure, it made me feel pretty good, but I got sooo puffy. And I became riddled with acne all over my body.
Click to expand...
Yeah whenever I flared up the worst, prednisone was always the best fast acting medicine, with the absolute WORST side effects. I discontinued prednisone over a month and a half ago, and I still have stupid$#%^ backne :(

my daily meds are in the sig. I'm also slowly weening off azathioprine, (trying) 25mg a month.
 
G

Guts Ache

Guest
I thought I was in agony at the moment and I'm only taking 3000mg (3 sachets) of Pentasa a day. A lot of you guys have it bad reading your medication lists. I do add 1000mg paracetemol 2 - 3 times a day to my Pentasa when its really bad and that seems to help a little. :eek2:
 
D

Digits

Guest
Guts Ache said:
I thought I was in agony at the moment and I'm only taking 3000mg (3 sachets) of Pentasa a day. A lot of you guys have it bad reading your medication lists. I do add 1000mg paracetemol 2 - 3 times a day to my Pentasa when its really bad and that seems to help a little. :eek2:
Click to expand...

i loved pentasa when i was on it, because it was the second type i had to take, the first was Sulfasalzine, not very fun. or tasty.
 
G

gr8deadfan

Guest
12 Pentasa a day (3 x 4 250 mg pills)
2 Uña de Gato
1 Multivitamin

~Alan
 
E

elp888

Guest
125 mg azathioprine (started 3 weeks ago)
30 mg prenisolon (down from 40, should be 15 in 3 weeks)
 
BWS1982

BWS1982

Oh boy what's the character limit on these forums....

Too many to name dosages (plus I'm tapering 2 of my meds anyways), but I do know the dosage of each one...

prednisone
Imuran
Canasa suppositories
Remicade infusion
metoprolol
Nystatin fluid
Synthroid
bentyl
loperamide
multivitamin
double strength fish oil
vitamin D Rx only
seroquel
sertraline

gasX or tylenol as needed

I think that's all, at least my liver hopes it is...
 
G

Guts Ache

Guest
Well I've just spent 3 hours in hospital being poked, prodded and jabbed (blood test). End result is by medication has been changed.

I am now on:

  1. 50mg of Azathioprine (1 tablet a day for 1 week rising to 4 tablets after that - 200mg!!)
  2. 10mg of Prenisone (had tapered down from 40mg so the doc decided to continue it a little longer)
  3. 3000mg of pentasa. 3 sachets a day.

Still nowhere near as much as some of you guys but considering all I'd ever had to take in my life before picking this wonderful illness up is a couple of paracetemol a day its tricky to remember what and when to take!!! :(
 
D

dad_01

Dekar said:
no medication, i take 1 bio-k a day and drink a crapload of water and exercise, sleep early etc


my gi didnt recommend it but now hes kind of confused/dumbfounded with my progress
Click to expand...
What's a bio-k?
 
S

Shakedown

Guest
10mg prednisone tapering to nothing.
4g pentasa
9 tablets aloe
Several different pain meds when needed or stressed.
every vitamin known to man
most every ginseng
MSM
CLA
20+ grams glutamine
a lot of supplements...... creatine, N02, protein/meal replacement shakes. But that is all gym related. I live there.
1-2 gallons of water a day.
 
BWS1982

BWS1982

have you been symptomatic enough to notice any negative effects from things like NO2 or Creatine Shakedown? I've been wondering if when I improve I'll be able to ease them back in to my regimen.
 
S

Shakedown

Guest
BWS1982 said:
have you been symptomatic enough to notice any negative effects from things like NO2 or Creatine Shakedown? I've been wondering if when I improve I'll be able to ease them back in to my regimen.
Click to expand...

This last flare was pretty bad and I'm still slowly working through it. The NOXplode didn't bother me. Stand alone creatine supplements in the afternoon would cause mild noticeable problems, so I am off those for now. Protein/meal replacement powders are kinda trial and error.

I use a lot of glutamine, which helps the digestive system along with everything else it is good for. And maybe it's all in my mind, but I think it helps matters.
 
A

andilynn09

Guest
8 pentasa/day (4000mg)
2 azathioprine/day (100mg)
1 multi-vit/day
2 calcium/day
nulev (muscle relaxer)/as needed

fun, fun!!
 
M

md87

Guest
Hi,

I started off with 5mg x 8 of Prednisolone in the morning and then reduced by one tablet every week.

I am now on

Prednisolone - 7.5mg x 2 daily for 2 weeks and then reducing them every 2 weeks.

Calichew - 500g x 2 daily

Pentasa 2g (4 tabs) x 2 daily

I was also prescribed Ferrous Sulphate 200mg x 3 daily, but I found these made my stomach pains much worse so my GI told me I can come off them for a while and seems to have worked a bit.

I also have Epilepsy and have to take 500g daily - 250g in the morning and 250g in the evening.

My Neurologist also gave me something called Clobazam, which is mainly for my Epilepsy, but I can only take that if I've had a lot of sickness from the Crohn's as it's only a short term medication.

For pain relief I was told just to take Paracetamol, they work okay but wouldn't mind something a bit more powerful somedays.
 
vickyoddsocks

vickyoddsocks

wears odd socks
I'm on the lowest ive ever been

150mg Azathioprine daily (Imuran) (3 tablets)
3 x Iron

AND THATS ALL!!! :)

(And i have infliximab every 8 weeks)
 
K

Kev

Senior Member
Location
Halifax, NS, Canada
Hey.. Imuran N Infliximab.. That's the new top down approach written up in a different thread here someplace. CONGRATS! That has a very high success rate.
 
BWS1982

BWS1982

I am scheduled to go off Imuran if my Infliximab at 10mg/kg can beat the flare, as it should have done something by now, it's not pulling its weight against any sides/risks it seems for my case.
 
F

firepixie

Guest
Centrum liquid vitamin
2 pills of 1.2GM Liada once a day-it took a little over a month to fully work
hydrocodine as needed
 
Oxycontin

Oxycontin

I take:
Oxycontin- 20mg x3 per day
Endone 5mg- as needed for breakthrough pain
Prozac -20mg for anxiety
Salafalk - 500mg x 6 per day for inflammation
Prozine- 5mg for Nausea
Prochlorperazine-5mg 3x per day for nausea
Zofran wafers- 4mg when needed for strong nausea
Iron tablet- 1x per day
Vitamin C- 3x per day
Slippery elm 3x per day
Magnesium 300mg 1x per day
Vitamin B- 1x per day
Vitamin be and folic acid supplement 30ml-1x per day
Chloroform - x6 per day
Now that's a lot of pils :)?!
Every day??? Haha
 
D

Daisy123

Lots!

Pentsa 4grams
Aziathropine 150 am
Multivitamin and mineral supplement
Selenium
Buscopan, 2 tab 4 x daily
Codeine phosphate, 60 mg when needed for diarrhoea
Tramadol when needed
Oramorph 10 mg when needed (usually once or twice a day)
Metoclopramide 10mg when needed
Folic Acid
B12 every 3 months
Lansoprazole 30 mg
Panadol extra 2 tabs 4 x daily
Diazepam 5mg when needed (10 tabs 2 monthly).
Amitryptline 75mg

Rattle and roll
 
aideen33

aideen33

2 doses of 2 800mg Asacol HD, one morning one nighttime, 40 mg prednisone split into 4 10mg doses, Levsin sublingual 3x a day, and nexium 40mg at night
 
Cosmojo

Cosmojo

Location
San Antonio, TX
Morning:
B-12
Wellbutrin 100mg- I struggle with anxiety from you know...Crohn's.
levothyroxin 50mics- for my Hashimoto's
nitrofurantoin mono- kidney infection
Night:
Deplin 15 mg - instead of folic acid
Propranolol ER - for migraines
Prenatal vitamin
Calcium w/ D
birth control
As needed:
Promethazine for nausea
Xanax for stomach pain or anxiety
inhaler for chronic bronchitis
naratriptan
Once a week:
20mg Methotrexate subq
 
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