Hello all,
I'm 'undiagnosed' and probably won't get a diagnosis until I try the Remicade/Inflix and we see whether it makes a difference, If it heals me i guess i have crohn's, if it doesn't I guess I'm stuffed!
I've had all the tests done but the results were so inconclusive. I had a blood test for imflammation which came back at 16 - normal levels of inflammation are about 5 but if you're really sick it can be 400 so nothing really helpful there. I had an abdominal CT for my small intestines which was normal, and I had a colonoscopy which looked normal but the biopsies showed minor inflammation - however the inflammation could be attributed to the prep! How useful.
I had a biospy taken from my ulcer which showed lots of granulomas, but my ulcer was infected at the time (it's not now) the only tell tale piece of evidence is that a biopsy was taken from 10cm inside my rectum which had granulomas too (although I'd just used glycerin supposetries which probably caused some irritation.)
I've even been sent to the GUM clinic last week to have a doctor there look at me and take swabs etc.
I suppose if it is mild crohn's then all those teeny bits of imflammation could be attributed to it, but if it's not then all those bits of inflammation could be down to soemthing else.
No one can think of any other reason why my body won't heal itself - I'm young and healthy with no immune problems. I hope it IS crohn's so that there's a way to treat it.
I really really really hope infliximab works :S
I'm 'undiagnosed' and probably won't get a diagnosis until I try the Remicade/Inflix and we see whether it makes a difference, If it heals me i guess i have crohn's, if it doesn't I guess I'm stuffed!
I've had all the tests done but the results were so inconclusive. I had a blood test for imflammation which came back at 16 - normal levels of inflammation are about 5 but if you're really sick it can be 400 so nothing really helpful there. I had an abdominal CT for my small intestines which was normal, and I had a colonoscopy which looked normal but the biopsies showed minor inflammation - however the inflammation could be attributed to the prep! How useful.
I had a biospy taken from my ulcer which showed lots of granulomas, but my ulcer was infected at the time (it's not now) the only tell tale piece of evidence is that a biopsy was taken from 10cm inside my rectum which had granulomas too (although I'd just used glycerin supposetries which probably caused some irritation.)
I've even been sent to the GUM clinic last week to have a doctor there look at me and take swabs etc.
I suppose if it is mild crohn's then all those teeny bits of imflammation could be attributed to it, but if it's not then all those bits of inflammation could be down to soemthing else.
No one can think of any other reason why my body won't heal itself - I'm young and healthy with no immune problems. I hope it IS crohn's so that there's a way to treat it.
I really really really hope infliximab works :S