vickyoddsocks
wears odd socks
I'm sorry if this all sounds like a moan but there's only you guys who will understand.
One of my biggest problems with having crohns is the lack of understanding from my friends. Im 21 and got diagnosed at 16, and it just seems as iv got older the more annoyed i get with people who dont have crohns.
Im at Lincoln Uni at the moment, (currently at home in Leeds due to recent flare's and hospital stays) and when i got there i didnt really tell my friends about the crohns, but then as i moved into a house with them i decided to tell them. They all seemed great with it, but now iv had more and more problems they just seem to be sick fo hearing me go on about it!
Iv had a REALLY tough time with the Crohns (11 ops) (and its a miracle im even at uni in the first place) and they just dont seem to care. When people meet me they find it hard to believe that im 'apparently' so ill, because i look well, and i go out with them.
A few months ago i had to go on the elemental diet for 6 weeks and they would say "God that must be really hard............dont you get hungry..........dont you want to eat food!?" And i feel like saying "Of course i do!! Do you think id choose to do this?!" What made it worse was when i was on the 'drinks', they had at least 3 BBQ's! And would keep 'forgetting' that i couldnt eat. It annoys me SO much, because thay wouldnt be able to not eat food for 24 hours, let alone 6 weeks!!
They also said that they would DEFINATELY come to visit me if i had to go into hospital again, (because i had told them about my 'closest' high school friends never comoing to see me). I was in hospital recently for a 8 days, then out for 2 weeks then back in for a week (had another operation) and have now been out for a week, and guess what? Did they come? No, nothing, most of them didnt even text me.
Last term my best friend at uni got an gut infection (suspected apendicitis) and had to go to hospital, i took her, stayed with her, reassured about everything, brought her Boyfriend to go and see her (becasue im the only one who can drive) and picked her up the next day, and both times iv been in recently she NEVER came to see me or even sent me a card! They just assume because im ill alot of the time and in hospital alot of the time that im 'used' to it! It annoys me SO much! Everyone else made such a big deal that she'd been in hospital, and flocked around her! And she made a massive deal about being 'nill by mouth' for 4 hours, and i had been on the elemental diet for 5 weeks!
Iv always been very brave and cope very well with everthing this b*****d crohns throws at me, but this is the thing that gets to me most of all. Sometimes it seems like, if i made a fuss and let it get to me, they would realise just how bad it is. I just wish they had even the slightest idea of what my day to day life is compared to theirs. I ALWAYS think 'I wish i could give it to them for at least 5 minutes' - And i really really do.
Anyway, im on the elemental diet again and going back to uni tomorrow so will see them, and im dreading them being so insensitive around me when it comes to food, but what can i do, at the end of the day its my problem, not theres, so why should they care?
Im sorry about this very long winded moan, it just pisses me off, and theres noone else to talk to. (also this is keeping my mind off food!)
One of my biggest problems with having crohns is the lack of understanding from my friends. Im 21 and got diagnosed at 16, and it just seems as iv got older the more annoyed i get with people who dont have crohns.
Im at Lincoln Uni at the moment, (currently at home in Leeds due to recent flare's and hospital stays) and when i got there i didnt really tell my friends about the crohns, but then as i moved into a house with them i decided to tell them. They all seemed great with it, but now iv had more and more problems they just seem to be sick fo hearing me go on about it!
Iv had a REALLY tough time with the Crohns (11 ops) (and its a miracle im even at uni in the first place) and they just dont seem to care. When people meet me they find it hard to believe that im 'apparently' so ill, because i look well, and i go out with them.
A few months ago i had to go on the elemental diet for 6 weeks and they would say "God that must be really hard............dont you get hungry..........dont you want to eat food!?" And i feel like saying "Of course i do!! Do you think id choose to do this?!" What made it worse was when i was on the 'drinks', they had at least 3 BBQ's! And would keep 'forgetting' that i couldnt eat. It annoys me SO much, because thay wouldnt be able to not eat food for 24 hours, let alone 6 weeks!!
They also said that they would DEFINATELY come to visit me if i had to go into hospital again, (because i had told them about my 'closest' high school friends never comoing to see me). I was in hospital recently for a 8 days, then out for 2 weeks then back in for a week (had another operation) and have now been out for a week, and guess what? Did they come? No, nothing, most of them didnt even text me.
Last term my best friend at uni got an gut infection (suspected apendicitis) and had to go to hospital, i took her, stayed with her, reassured about everything, brought her Boyfriend to go and see her (becasue im the only one who can drive) and picked her up the next day, and both times iv been in recently she NEVER came to see me or even sent me a card! They just assume because im ill alot of the time and in hospital alot of the time that im 'used' to it! It annoys me SO much! Everyone else made such a big deal that she'd been in hospital, and flocked around her! And she made a massive deal about being 'nill by mouth' for 4 hours, and i had been on the elemental diet for 5 weeks!
Iv always been very brave and cope very well with everthing this b*****d crohns throws at me, but this is the thing that gets to me most of all. Sometimes it seems like, if i made a fuss and let it get to me, they would realise just how bad it is. I just wish they had even the slightest idea of what my day to day life is compared to theirs. I ALWAYS think 'I wish i could give it to them for at least 5 minutes' - And i really really do.
Anyway, im on the elemental diet again and going back to uni tomorrow so will see them, and im dreading them being so insensitive around me when it comes to food, but what can i do, at the end of the day its my problem, not theres, so why should they care?
Im sorry about this very long winded moan, it just pisses me off, and theres noone else to talk to. (also this is keeping my mind off food!)