Hey all...my first time on this forum. I've been dealing with Crohn's (terminal ileitis) for the past 20+ years. No surgeries yet but the last 3 years have been kicking my butt. I'm also blessed with IBD related Ankylosing Spondylitis, so I don't run out of stuff to complain about.
I managed well for several years by taking high doses of betacarotene, but I keep the prednizone handy. I had to sell my businesses; started another, but just ran out of gas and had to close it down. I'm having to get used to not doing a heck of a lot (I've only got a few functional hours in any given day) and it's driving me nuts!
Tried the whole gamut from immuno-modulators (bad reaction) to biologics (no effect), so I'm a month into mesalamine waiting to see if it does anything.
I still hold out hope that a more natural therapy exists, but I've tried a lot of them and haven't had any luck - a couple of 'em damn near killed me.
I'm interested in hearing from anyone who has tried any non-pharmaceutical therapies with some success. (I know a few who maintain well on marijuana, but I have no interest in staying slow and stupid for the rest of my life, hehehe)
Enough sniveling...hope you all have something great come into your lives today.
I managed well for several years by taking high doses of betacarotene, but I keep the prednizone handy. I had to sell my businesses; started another, but just ran out of gas and had to close it down. I'm having to get used to not doing a heck of a lot (I've only got a few functional hours in any given day) and it's driving me nuts!
Tried the whole gamut from immuno-modulators (bad reaction) to biologics (no effect), so I'm a month into mesalamine waiting to see if it does anything.
I still hold out hope that a more natural therapy exists, but I've tried a lot of them and haven't had any luck - a couple of 'em damn near killed me.
I'm interested in hearing from anyone who has tried any non-pharmaceutical therapies with some success. (I know a few who maintain well on marijuana, but I have no interest in staying slow and stupid for the rest of my life, hehehe)
Enough sniveling...hope you all have something great come into your lives today.
Last edited: