My birth name is Lynne - those who love me and like to tease me call me "Lynneeee Pooh". The username Lynne was taken - feel free to refer to me by either name.
I was surfing the net attempting to find out if Pentasa or Endocort cause toxic reactions when combined with dairy products as I seemed to be dying of difficulty breathing and severe lethargy, when I came across this forum. I am grateful to find fellow travellers on this bloated and often-times frustrating path of ours.
I was diagnosed with Chrons in 2006 while hospitalized for severe pain, dehydration, malnutrition, abdominal swelling and a blockage which I didn't know I had. I can recall having symptoms back to 1999 especially after eating high protein foods such as steak and for some reason chocolate.
The CT scan came back with somewhat of a trace of Chrons. I researched everything I could find and attempted to heal myself homeopathically - I even bet my PCP that I wouldn't have another hospital visit. He just shook his head. I still owe him $5.00. The Chrons has progressed to over fourteen inches, has impaired my vision to the point that I am close to legally blind and has caused me to feel depression, hopelessness and frustration for the first time in my life.
I was diagnosed by a very good GI doctor - but I refused to come in for medication. So here I am now at home, unemployed, living in poverty - and grateful for my medical insurance and food stamps. Prior to this - I went through my 401k because I picked up every single disease that my consumers had while doing clinical social work and I was paying for my own medical insurance and prescriptions.
I often wonder now if being sensitive to medications is also a symptom of Chrons. For the past three months, I could hardly move - this was devastating to me as I am very energetic, am a hiker, kayaker and novice photographer. I had no idea how much vision I had lost until my husband pointed out cars that were stopping while I crossed the street. I will be receiving a cane that is both for weight and for assiting me in my peripheal vision next week. I will also be going to a doctor who works at a teaching university - who will hopefully know about Chron's, vision and glaucoma.
So - that's my story. I still don't know how or why dairy turned on me. I cut it out completely and began to feel better the next week. Unfortunately, my husband caught a bronchial infection - so now I have that. don't cha just love this auto immune disorder attacking us????
Thanx for reading - I know this is long - I am sick of sitting and feeling alone. When I am feeling better, I was invited to join our League for the Blind group in town. They seem to be a great group.
With affection, Lynne
Diagnosed in 2006
Began medications daily in June of 2011
Pentasa 500mg 2 @ 4x/day - (I can only manage 3x/day)
Endocort (there is a new generic out now) 3mg - 3 @ 1x/day - then 2 @ 1x/day then 1 @ 1x/day
Zoloft 25mg - Anxiety due to vision loss and startled reflex and panic attacks (which are new for me)
Vyvanse ADHD medication 20mg 1x/day
Vicodin 500mg as needed for abdomenal pain and eyes
I was surfing the net attempting to find out if Pentasa or Endocort cause toxic reactions when combined with dairy products as I seemed to be dying of difficulty breathing and severe lethargy, when I came across this forum. I am grateful to find fellow travellers on this bloated and often-times frustrating path of ours.
I was diagnosed with Chrons in 2006 while hospitalized for severe pain, dehydration, malnutrition, abdominal swelling and a blockage which I didn't know I had. I can recall having symptoms back to 1999 especially after eating high protein foods such as steak and for some reason chocolate.
The CT scan came back with somewhat of a trace of Chrons. I researched everything I could find and attempted to heal myself homeopathically - I even bet my PCP that I wouldn't have another hospital visit. He just shook his head. I still owe him $5.00. The Chrons has progressed to over fourteen inches, has impaired my vision to the point that I am close to legally blind and has caused me to feel depression, hopelessness and frustration for the first time in my life.
I was diagnosed by a very good GI doctor - but I refused to come in for medication. So here I am now at home, unemployed, living in poverty - and grateful for my medical insurance and food stamps. Prior to this - I went through my 401k because I picked up every single disease that my consumers had while doing clinical social work and I was paying for my own medical insurance and prescriptions.
I often wonder now if being sensitive to medications is also a symptom of Chrons. For the past three months, I could hardly move - this was devastating to me as I am very energetic, am a hiker, kayaker and novice photographer. I had no idea how much vision I had lost until my husband pointed out cars that were stopping while I crossed the street. I will be receiving a cane that is both for weight and for assiting me in my peripheal vision next week. I will also be going to a doctor who works at a teaching university - who will hopefully know about Chron's, vision and glaucoma.
So - that's my story. I still don't know how or why dairy turned on me. I cut it out completely and began to feel better the next week. Unfortunately, my husband caught a bronchial infection - so now I have that. don't cha just love this auto immune disorder attacking us????
Thanx for reading - I know this is long - I am sick of sitting and feeling alone. When I am feeling better, I was invited to join our League for the Blind group in town. They seem to be a great group.
With affection, Lynne
Diagnosed in 2006
Began medications daily in June of 2011
Pentasa 500mg 2 @ 4x/day - (I can only manage 3x/day)
Endocort (there is a new generic out now) 3mg - 3 @ 1x/day - then 2 @ 1x/day then 1 @ 1x/day
Zoloft 25mg - Anxiety due to vision loss and startled reflex and panic attacks (which are new for me)
Vyvanse ADHD medication 20mg 1x/day
Vicodin 500mg as needed for abdomenal pain and eyes