- Location
- Lake Jackson, TX
have questions and looking for your opinion
My 9 year old daughter Savannah has been having stomach issues for years but this last December is when it really started getting bad since then, she has had countless test and still no diagnoses.
Blood test were normal most of the time...
Stool samples- blood, calprotectin, and alpha-1-antitrypsin found
Sitz-Marks motility test- dr said results "ok not great but ok"
Egd and Colonoscopy- was not able to complete colonoscopy because of spasms was not able to continue into the Ascending colon. They did take 50 biopsies and all but 5 showed some type of imflammatory markers.
Upper Gi with Small Bowel Follow Thru and barium- The radiologist basically came out and told me he thought she had crohn's but when the GI called me back he said the x-rays were normal.
Savannah started taken Pentasa Sept 8, 2011 she takes 2
I think she is doing better in regards to eating and has actually gained a pound. She still is experiencing stomach pain and joint pains both of which come and go. I still occasionally hear "I feel weak and shaky" but not nearly as often as before the Pentasa.
She has missed alot of school because of unexplained low grade fever 100-101 with not really any other symptoms except the occasional my tummy or butt hurts.
One of my best friends for the past 40 years has Crohn's and she keeps telling me to stay away from steriods of any kind she said she thinks they did more damage to her than the actual disease.
Anyways, without a diagnoses I know my child is sick, but is giving her medicines without actually having a cause a good idea? and what medicines should I stay away from?
We go back to the Gi Doc Friday and input would be greatly appreciated.
My 9 year old daughter Savannah has been having stomach issues for years but this last December is when it really started getting bad since then, she has had countless test and still no diagnoses.
Blood test were normal most of the time...
Stool samples- blood, calprotectin, and alpha-1-antitrypsin found
Sitz-Marks motility test- dr said results "ok not great but ok"
Egd and Colonoscopy- was not able to complete colonoscopy because of spasms was not able to continue into the Ascending colon. They did take 50 biopsies and all but 5 showed some type of imflammatory markers.
Upper Gi with Small Bowel Follow Thru and barium- The radiologist basically came out and told me he thought she had crohn's but when the GI called me back he said the x-rays were normal.
Savannah started taken Pentasa Sept 8, 2011 she takes 2
I think she is doing better in regards to eating and has actually gained a pound. She still is experiencing stomach pain and joint pains both of which come and go. I still occasionally hear "I feel weak and shaky" but not nearly as often as before the Pentasa.
She has missed alot of school because of unexplained low grade fever 100-101 with not really any other symptoms except the occasional my tummy or butt hurts.
One of my best friends for the past 40 years has Crohn's and she keeps telling me to stay away from steriods of any kind she said she thinks they did more damage to her than the actual disease.
Anyways, without a diagnoses I know my child is sick, but is giving her medicines without actually having a cause a good idea? and what medicines should I stay away from?
We go back to the Gi Doc Friday and input would be greatly appreciated.