10-09-2011, 12:21 PM   #1
jonnyb's Avatar
Join Date: Oct 2011
Location: North London, United Kingdom
Keeping positive :hug:

It's an impossible task to keep positive all the time.

However, one thing that has got me through all the worst times is remembering that "there is always tomorrow". No matter how dreadful the day is, there is always hope that the next day won't be so bad. Even if it doesn't turn out to be so good, learning to focus ahead always has changed my outlook on life.

I was diagnosed with schizophrenia when I was 20 and tried to commit suicide soon after. I've been in and out of depression since I was 16 and now I'm suffering with anxiety. A real turning point for me came when I had cognitive therapy which helped to break my negative cycle of thinking that I'd gotten so used to.

I'm on Prednisone at present for my Crohn's and whilst I can't say it's doing wonders for my anxiety or mental health, I'm trying to think of the goals I want to achieve when I get through it. Goal-setting has been really important to me when I've been ill and I'd encourage anyone who's feeling low or anxious to try it. It will give you something to focus on and work toward for sure.

Make sure you have an outlet for everything going on in your mind. Even if you can't vent it to family or friends, share it on this forum and try keeping a diary. Keeping a diary every day is really useful-it helps to be able to go to bed with a clearer head instead of everything swimming around and preventing you from falling asleep. I'd also recommend drawing, painting, writing songs/poetry-anything to get those thoughts and feelings out.

I thought I could manage my mental illness all by myself but ultimately I ended up having a break down. I wish I wouldn't have kept everything locked in my mind but I was too ashamed and afraid of what people would think of me.

However, the brain is an organ just like any other in the body, and there's no shame in it being unwell. People have a tendency to say "pull yourself together" when it comes to mental health because they can't see it and therefore don't understand it. Never let anyone undermine what you're going through in your head..."those who matter don't mind and those who mind don't matter."

Ok, that's all really, just wanted to spread a little positivity keep strong. The quote I live by is written below. It's a Japanese proverb..."Fall down seven times, stand up eight". When you feel like your in despair and there's no light at all, trust that you'll find that something inside yourself to rise again. You don't even have to do anything, just look in the mirror and tell yourself "I'll get through this, I'm stronger than I know" and when you begin to have faith in that, you will break out of the darkness and into the light again! We humans have great strength in the face of adversity. Every single one of us, whether we believe it or not.
Recently diagnosed with Crohn's disease. Currently taking Asacol and Prednisone.

"Fall down seven times, stand up eight"
10-09-2011, 01:19 PM   #2
Terriernut's Avatar
Join Date: Dec 2010
Location: United Kingdom

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May you keep your strength, may you remain positive, may you continue to keep trying to stay well!!!

And when you get to my age....may you say...Fall down 20million times, get up 21milllion times!!!

Hugs back!
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
10-09-2011, 01:37 PM   #3
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Thank you gorgeous man!
Keep smiling luv

I've been around mental illnesses all my life, (various family members) so know where you're at


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery


No-one should make you feel inferior without your consent!

10-09-2011, 01:40 PM   #4
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Grant's Avatar
Join Date: May 2011
Location: United Kingdom

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jonnyb, you must be a battler. Having to contend with all that & Crohns which can drag you down into despair. All I can say is well done you for coming on here & telling us about it. Hope things improve for you.
Best Wishes
1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Pentasa 4gm daily
Daily Multi Vitamins
3mthly B12 Jabs
10-09-2011, 01:55 PM   #5
Senior Member
Join Date: Jul 2011
Location: portsmouth, United Kingdom
Hi Jonnyb,

Sounds like you've been through a lot!

I also think drawing and painting and general arty stuff helps a lot to get stuff out :-)

Rachel x
10-11-2011, 11:40 AM   #6
jonnyb's Avatar
Join Date: Oct 2011
Location: North London, United Kingdom
Thanks guys i'm up and down on the prednisone at the moment but this must have been an 'up moment' and I just wanted to share some love, as cheesy as it sounds! Finding this forum has been such a blessing and i'm so thankful to be a part of it. Thanks so much
10-13-2011, 05:23 PM   #7
Forum Monitor
Join Date: Sep 2011
Location: South Northants, United Kingdom

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Hi, Jonny,

i think you have an incredibly good sense of balance and i think with all that you have to contend with its probably a bit of a godsend. crohns and steroids are bad enough, depression and schizophrenia are not what you deserve. but you are right, we get our livers and bloods checked for chemical imbalance, but few care to look at the brain. yes, many live with a mental health issue, but few understand the reality of it.

great you found the forum. i'm delighted with it too.

best wishes
10-13-2011, 05:41 PM   #8
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Emily's Avatar
Join Date: Aug 2010
Location: New York

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Yay what a great post. It just made me generally happy to hear your positive thoughts. It's great that after all you've been through and what you're dealing with now, you are still staying strong. Crohn's is such a crappy illness and I'm lucky that it's the only one I've got. When I see people on here who deal with other illnesses too, I have such admiration for their strength and optimism.
Age 24
  • Diagnosed with Crohn's at age 7
  • Partial colectomy at age 18
  • Total colectomy with ileostomy at age 23
infliximab & azathioprine
10-13-2011, 05:49 PM   #9
Senior Member
Kit's Avatar
Thanks soo much for sharing your insight! Stay strong!

Enjoy the moment, just be
11-03-2011, 10:27 PM   #10
Forum Monitor
kimmidwife's Avatar
Thanks so much for posting that Japanese proverb. My daughter who has Crohn's disease is very down in the dumps right now and she loves all things Japanese. Reading it cheered her up a little!

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
11-03-2011, 10:51 PM   #11
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autumn_rose's Avatar
Join Date: Aug 2009
Location: Bloomington, Indiana
Hi Johnny, B.

You're amazing for your incredibly positive message. It cheered me up a little. Times are tough for me now, but you're right. Every time we fall, we have to get back up. Sometimes it's hard. But there are people out there that you can lean on, that try to help you back up. And with all that you have to weigh you down, you're still trying to help others. -hugs-
Dx'd with Crohn's on September 30th 2008
Resection on 10/5/2012, loop ileostomy
Loop reversal in April of 2013
Second loop ostomy September of 2013, reversed in September of 2014

In remission, no medications!
Now a personal trainer, studying physical training and nutrition, as well as self publishing books on health and wellness & hosting a Youtube channel.

Twitter: @Autumn_RoseB


11-10-2011, 02:07 PM   #12
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Jessica's Avatar
Join Date: Oct 2010
Location: North Port, Florida
I've said it a million times... My boyfriend always tells me "Live your life, not your disease". If he only knew how many times I've had to remember that... and used it to keep going.
Dx w/ Crohn's Disease May '08
Dx w/ Graves' Disease June '11
Dx w/ Lymphocytic Colitis October '12

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