• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

New on this forum..

num1habsfan

num1habsfan

Hi everyone. I just joined onto this forum. I am a regular on the Celiac forum and posting about my IBD problems quite a bit lately, so I thought it would make sense to be on both...
Basically my story is that since Jan 28 2006 I got severe stomach pains on my lower right side, that I thought was maybe just Celiac, but then I threw up, and the pains have never faded and during the flareups are bad enough that I can hardly breathe or move. I've made about 20 trips to ER during that time, always without relief. I'm onto my 5th specialist now, the others only keep testing for Celiac so all my biopsies showed nothing. Last summer I bought a book on IBDs and have been following the Crohn's diet (not completely, but most of the time now) for some relief.

I'm hoping being on here can find some useful information and support from others who've gone through the same situation. Be looking for more posts and just look for the red writing :ytongue:

~ Lisa ~
 
amor151

amor151

welcome to the forum lisa. yeah this is a great place to be for info and support. ive learnt more about crohns from these guys than any doctor ive met. fraid i dont know much about celiac so i cant give you any advice there but i can definately relate to the severe stomach cramps!

hope the forum helps best of luck
Henry
 
G

Guest

hi & welcome lisa :)

i think this forum would be a treasure to anyone who is troubled with any kind of gastro problem - i've also learned so much from reading past and present threads on here since i joined a little while ago.

looking forward to seeing you around in here.

dingbat.
 
D Bergy

D Bergy

Crohn's and Celiac are related so maybe you are showing indications for both diseases. You certainly could have both diseases at the same time, but I hope you don't. The Celiac diet is a tough one to follow.

Dan Bergman
 
num1habsfan

num1habsfan

D Bergy said:
Crohn's and Celiac are related so maybe you are showing indications for both diseases. You certainly could have both diseases at the same time, but I hope you don't. The Celiac diet is a tough one to follow.

Dan Bergman
Click to expand...
Thanks everyone :). Yeah chances are very likely I have both. I definitely have different types of pains when I get glutened and different side effects of it. And I was even tested for refractory sprue, and that was negative so its likely not my Celiac turning on itself. I finally have one specialist convinced that in fact I do have both, just to get the diagnosis is the problem....

I feel like a guiney pig, i tell ya. Since all of these problems started I've had: Ultrasound, small-bowel follow through, colonoscopy, endoscopy, endoscopy, colonoscopy, ultrasound, and small-bowel follow through. And since i'm still awaiting results of the last 2, I don't know if anything showed up there....but if they're both negative, he said he wants to do a colonoscopy because he's determined to find the answer.

~ Lisa ~
 
J

jjs16

Guest
Hi Lisa,

Welcome to the forum fellow canuck, I've visited Regina on many occasions.
I hope you can find some good info here I know I have.......BUT........

Habs fan???????

Leafs of course rule!

j
 
num1habsfan

num1habsfan

jjs16 said:
Hi Lisa,

Welcome to the forum fellow canuck, I've visited Regina on many occasions.
I hope you can find some good info here I know I have.......BUT........

Habs fan???????

Leafs of course rule!

j
Click to expand...
Haha well I can see this forum is going to be fun already if I am hearing it from my rivals :ycool:

~ Lisa ~
 
K

Kev

Senior Member
Location
Halifax, NS, Canada
Hey, doesn't he know.. here in Canada the 'leafs' fall every autumn, just in time for hockey. Habs rule... anybody ever count their stanley cup pennants? C'mon!
 
B

Babe123

Guest
hi, welcome =]

this forum has really helped me and has given me the support i need.

x
 
num1habsfan

num1habsfan

Kev said:
Hey, doesn't he know.. here in Canada the 'leafs' fall every autumn, just in time for hockey. Habs rule... anybody ever count their stanley cup pennants? C'mon!
Click to expand...

Actually what you have to say about the Leafs is the old joke....How do you know it's spring?? The Leafs are out! :ycool:

i love this forum already lol
~ Lisa ~
 
C

claire1

Hi Everone,

I am brand new to the forum and quite new to Crohns actually!
My symptoms are quite bad but they dont sound as bad as most peoples on here.
I have bad diorreah most days and stomach pains when I eat certain things.
Litrelly after I eat something I have to run to the toilet. Its really annoying.
I went on Prednisone for around six weeks but really didnt want to be on it so came off. They are wanting to put me on a high does of Azathioprine but I am not keen and you have to have your blood tested every week!!! Can anyone offer advice on this drung? I would far prefer to control it with diet if possibe?

Also after my colonoscopy the doctor said he was 90% certain I had crohns but some of the symptoms I dont have such as no weight loss, I have a great appetite and love my food - I do get terrible pains sometimes and the wind and diorreah is terrible. Also I am always tired and need at least 10 hours a day sleep otherwise I will be really ill. I also catch every bug going so think my immune system is really bad!

Anyway just thought I would drop a line as I am a newbie.

Thanks for all advise, much appreciated!
 
S

Sojourn

Welcome both of you. claire1, it's not unusual to not have weight loss if you're still eating regularly obviously. But if it gets bad enough, you will not want to eat much and will lose weight. A lot of people here take Azathioprine (Imuran) and find relief from it. The weekly blood work might be a hassle, but it would be a small price to pay for keeping your intestines healthy.

There's a lot of info about what diets might help in the Food and Diet section here. But what works for one person might not work for another so you just have to find what works for you. And usually, diet only minimizes the effects of Crohn's and doesn't bring permanent relief.
 
C

cindypat

Guest
New to Thread

Hi, I have recently been diagnosed with Crohn's disease and have a hard time trying to get it under control. I have abdominal pains almost daily, some are bearable and some are not. I have taken 2 rounds of Entocort and it helped some and I went back to my Gastro and they put me on an acid reducer because I have alot of gas and acid rumbling in my stomach all the time, sometimes it is a little embarassing. Now I have just started taking 2 tablets, 4 times a day, 500mg Pentasa. Has anyone had much luck with this medicine getting their Crohn's under control? I hope this works because I am so tired of hurting. I have been reading alot lately about Crohn's and they say they really do not know what causes it, but I believe mine was caused from having my gallbladder removed in May. I had been having alot of pain in the top part of my stomach and they found out my gallbladder was not functioning properly, so they removed it. I did fine for about 2 months and then in August I started hurting in my abdomen and they took out my appendix thinking that was my problem, but it turned out to be crohn's. I then went through all those lovely test and it was confirmed that was definitely what I had. I am glad I found this site because it is nice to be able to read what others are going through and to know you are not alone.
 
2

22wendylou

Guest
Welcome to the forum. Lots of invaluable information here! It seems like everyone has trouble getting diagnosed with crohns right away...Sorry to hear you went through all those hoops before finding out. Hopefully the Pentasa will work out for you....

To all the Canadian hockey fans on this site.....GO WINGS-1st place! :) I can't help it, I'm from Michigan, eh!:hockey:
 
num1habsfan

num1habsfan

22wendylou said:
Welcome to the forum. Lots of invaluable information here! It seems like everyone has trouble getting diagnosed with crohns right away...Sorry to hear you went through all those hoops before finding out. Hopefully the Pentasa will work out for you....

To all the Canadian hockey fans on this site.....GO WINGS-1st place! :) I can't help it, I'm from Michigan, eh!:hockey:
Click to expand...
Hehe GO HABS ;) . We may just be the wings biggest competition at the moment!!

~ Lisa ~
 
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